a random girl

@arandomgirl
Hey ! I am a 19 yo girl that has ankylosing spondilitis . I’m French so forgive my English grammar mistakes :)
Community Voices

How do you keep going when life gets a little too much ?

Hello ,

I’m a 19 college student and I have anlylosing spondylitis . Long story short , my bones get inflamed and hurt ( it is a chronic illness) .

I am always in a flare since my treatment doesn’t work , but lately , things have been getting really worse . My pain has become stronger than I can handle . I barely could keep my stuff anymore and have been on the verge of crying in class because I was hurting so bad . It’s been about 4-5 days that I have really poorly slept, my nights have been marked by insomnia .

I feel like I’m drowning in all the responsibilities that I have , which I don’t even have that much , all the medical things I have to do , and I should do , it’s too much to handle and I’m in a household that doesn’t understand my pain and my struggles

I know it’s probably the exhaustion of doing too much , with not enough energy but it feels like a lot, and I feel like I can’t handle it .

My midterms are also coming , and idk how I will cope with that

Please help me come through #AnkylosingSpondylitis #ChronicIllness #ChronicPain

7 people are talking about this
Community Voices

How do you keep going when life gets a little too much ?

Hello ,

I’m a 19 college student and I have anlylosing spondylitis . Long story short , my bones get inflamed and hurt ( it is a chronic illness) .

I am always in a flare since my treatment doesn’t work , but lately , things have been getting really worse . My pain has become stronger than I can handle . I barely could keep my stuff anymore and have been on the verge of crying in class because I was hurting so bad . It’s been about 4-5 days that I have really poorly slept, my nights have been marked by insomnia .

I feel like I’m drowning in all the responsibilities that I have , which I don’t even have that much , all the medical things I have to do , and I should do , it’s too much to handle and I’m in a household that doesn’t understand my pain and my struggles

I know it’s probably the exhaustion of doing too much , with not enough energy but it feels like a lot, and I feel like I can’t handle it .

My midterms are also coming , and idk how I will cope with that

Please help me come through #AnkylosingSpondylitis #ChronicIllness #ChronicPain

7 people are talking about this
Community Voices

How do you keep going when life gets a little too much ?

Hello ,

I’m a 19 college student and I have anlylosing spondylitis . Long story short , my bones get inflamed and hurt ( it is a chronic illness) .

I am always in a flare since my treatment doesn’t work , but lately , things have been getting really worse . My pain has become stronger than I can handle . I barely could keep my stuff anymore and have been on the verge of crying in class because I was hurting so bad . It’s been about 4-5 days that I have really poorly slept, my nights have been marked by insomnia .

I feel like I’m drowning in all the responsibilities that I have , which I don’t even have that much , all the medical things I have to do , and I should do , it’s too much to handle and I’m in a household that doesn’t understand my pain and my struggles

I know it’s probably the exhaustion of doing too much , with not enough energy but it feels like a lot, and I feel like I can’t handle it .

My midterms are also coming , and idk how I will cope with that

Please help me come through #AnkylosingSpondylitis #ChronicIllness #ChronicPain

7 people are talking about this
Community Voices

How do you keep going when life gets a little too much ?

Hello ,

I’m a 19 college student and I have anlylosing spondylitis . Long story short , my bones get inflamed and hurt ( it is a chronic illness) .

I am always in a flare since my treatment doesn’t work , but lately , things have been getting really worse . My pain has become stronger than I can handle . I barely could keep my stuff anymore and have been on the verge of crying in class because I was hurting so bad . It’s been about 4-5 days that I have really poorly slept, my nights have been marked by insomnia .

I feel like I’m drowning in all the responsibilities that I have , which I don’t even have that much , all the medical things I have to do , and I should do , it’s too much to handle and I’m in a household that doesn’t understand my pain and my struggles

I know it’s probably the exhaustion of doing too much , with not enough energy but it feels like a lot, and I feel like I can’t handle it .

My midterms are also coming , and idk how I will cope with that

Please help me come through #AnkylosingSpondylitis #ChronicIllness #ChronicPain

7 people are talking about this
Community Voices

I’m joking about it but it’s so not funny , If I wasn’t so used to it , I would be in the fucking hospital right now crying and yelling because of the pain .

I have ankylosing spondylitis , and I’m in excruciating pain right now and I have no idea how to make it better . Every position , standing , sitting or lying doesn’t help / makes it worse .

I have discovered something , a TENS unit that I’d love to get but I can’t get it because I’ll no longer have healthcare protection soon , or I need to pay it on my own and my college student budget can’t afford it along with the other medical expenses I’ll have this month

I’m tired of the healthcare system taking so long getting me a proper treatment. I have had this condition for about 7-8 years and have been diagnosed for about 2 years now and nothing has happened / my condition has been getting worse .

I’m trying to stay positive, and trying not to think about it , but sometimes I just can’t , my body takes over …

I’m just really hurting rn and I needed to vent , I know I’ll regret posting this when I wake up tomorrow. I hate complaining but sometimes you just have to let it all out .

3 people are talking about this
Community Voices

Tips and gadgets for Ankylosing spondylitis

Hello , I’m 19 and I have ankylosing spondylitis

I’m currently having a really bad flare , I’m crying because of the pain rn . I need to go to college tommorow and i don’t know if I will be able to .

Im in despair , I’m looking for a tool to help me cope with / prevent the pain

I wondered if any of you knew any tools , object , gadgets or advices to help when you’re having a really bad flare .

I’m sorry I can’t make my brain work and think clearly so this is very short and messy

#AnkylosingSpondylitis #ChronicIlless #ChronicPain #BackPain

6 people are talking about this
Community Voices

Tips and gadgets for Ankylosing spondylitis

Hello , I’m 19 and I have ankylosing spondylitis

I’m currently having a really bad flare , I’m crying because of the pain rn . I need to go to college tommorow and i don’t know if I will be able to .

Im in despair , I’m looking for a tool to help me cope with / prevent the pain

I wondered if any of you knew any tools , object , gadgets or advices to help when you’re having a really bad flare .

I’m sorry I can’t make my brain work and think clearly so this is very short and messy

#AnkylosingSpondylitis #ChronicIlless #ChronicPain #BackPain

6 people are talking about this
Community Voices

Tips and gadgets for Ankylosing spondylitis

Hello , I’m 19 and I have ankylosing spondylitis

I’m currently having a really bad flare , I’m crying because of the pain rn . I need to go to college tommorow and i don’t know if I will be able to .

Im in despair , I’m looking for a tool to help me cope with / prevent the pain

I wondered if any of you knew any tools , object , gadgets or advices to help when you’re having a really bad flare .

I’m sorry I can’t make my brain work and think clearly so this is very short and messy

#AnkylosingSpondylitis #ChronicIlless #ChronicPain #BackPain

6 people are talking about this
Community Voices

Tips and gadgets for Ankylosing spondylitis

Hello , I’m 19 and I have ankylosing spondylitis

I’m currently having a really bad flare , I’m crying because of the pain rn . I need to go to college tommorow and i don’t know if I will be able to .

Im in despair , I’m looking for a tool to help me cope with / prevent the pain

I wondered if any of you knew any tools , object , gadgets or advices to help when you’re having a really bad flare .

I’m sorry I can’t make my brain work and think clearly so this is very short and messy

#AnkylosingSpondylitis #ChronicIlless #ChronicPain #BackPain

6 people are talking about this
Community Voices

I have ankylosing spondilitis and I’m scared to have kids because of it

Hey ! So I am a 19 year old girl with ankylosing spondilitis , so obviously , this question isn’t about right now , but it is definitely something I think about a lot and that I worry about if I get into a relationship .

Look . I want to have kids . More than anything I want to have children and to be a mother . But I’m scared because of AS . I’m scare to transmit it to them ( I don’t have the gene ) . I would feel so guilty if they ended up in the same pain I am in . I wouldn’t want to do that for my kids .

I’m scared of how the pregnancy will go , if I will be able to get them into the world safe without complications ( due to AS )

And I’m also scared about my own health . I’m scared that I will be ok when I get pregnant , but that the pregnancy and the childbirth would take a huge toll on my health .

Im scared that when they grow up , i won’t be able to do all the things I’d want to do with them , to take proper care of them etc …

Please if there are any moms here that also deal with AS , let me know your experience

#mom #AnkylosingSpondylitis #mother

4 people are talking about this