Beatriz Bade

@beatrizbade
Community Voices

What was the best part of your October?

<p>What was the best part of your October?</p>
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I’m really working hard to…

<p>I’m really working hard to…</p>
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THIS or THAT?

<p>THIS or THAT?</p>
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Describe your health this week in 3 words.

<p>Describe your health this week in 3 words.</p>
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When I say “I’m fine,” what I really mean is…

<p>When I say “I’m fine,” what I really mean is…</p>
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Hey guys, I hope everyone is doing ok, despite the pandemic. I've been struggling with craniofacial fibrous dysplasia and I have reached the edge. Been to the doctor and he ordered me to do a bone scintigraphy. Since I got this D-x, I've been hearing that this illness usually stops prior to the adulthood. But, according to the exam, mine is active and I am turning 40 in a few months.

I've been in a lot of pain and dealing with constant tinnitus which is driving me crazy. Last week, I also went to the ENT and as he saw my CT, he saw there is bone growth in the area close to the ear, hence the tinnitus and dizziness.

Is anybody facing this issue as well? I will need to replace the jaw and the TMJ due to the dysplasia and the arthritis.

#FibrousDysplasia

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What’s a new symptom you’ve been experiencing?

<p>What’s a new symptom you’ve been experiencing?</p>
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Would you rather paint underwater or picnic in a hot air balloon?

<p>Would you rather paint underwater or picnic in a hot air balloon?</p>
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Hi guys, just wondering if those with #Fibro also face nausea? Since this #Flareup I am having a hard time dealing with food. Just looking/smelling the food makes me feel nauseated. I am used #ChronicPain and #exhaustion , but nausea is new to me.

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