Beatriz Bade

Hey guys, I hope everyone is doing ok, despite the pandemic. I've been struggling with craniofacial fibrous dysplasia and I have reached the edge. Been to the doctor and he ordered me to do a bone scintigraphy. Since I got this D-x, I've been hearing that this illness usually stops prior to the adulthood. But, according to the exam, mine is active and I am turning 40 in a few months.

I've been in a lot of pain and dealing with constant tinnitus which is driving me crazy. Last week, I also went to the ENT and as he saw my CT, he saw there is bone growth in the area close to the ear, hence the tinnitus and dizziness.

Is anybody facing this issue as well? I will need to replace the jaw and the TMJ due to the dysplasia and the arthritis.

#FibrousDysplasia

Hi guys, just wondering if those with #Fibro also face nausea? Since this #Flareup I am having a hard time dealing with food. Just looking/smelling the food makes me feel nauseated. I am used #ChronicPain and #exhaustion , but nausea is new to me.

I'm. So. Tired. I've been exhausted for weeks, months really. I keep trying to catch up on rest and take it easy, but I'm getting so behind on everything and all I want to do is sleep. When will it end?

#Fibromyalgia #ChronicIllness #ChronicFatigue #EhlersDanlosSyndrome #Anxiety #Depression