bee

@beechan
Community Voices

Does anyone here struggle to make friends? Or wishes there was an easier way?

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Community Voices
bee

Has your POTS a gotten worse with other CI?

I’ve had like 12+ CI diseases develop in the past yr-I’m overwhelmed & dying my mum doesn’t get it nor do the other kids…I just want to hide

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Summer

Does heat make your POTS worse? If so, what have you found that helps? I am in Georgia and almost completely disabled during the summer.

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Community Voices
bee

I just made a group called Teen and Adolescent Ill is anyone interested in joining?

<p>I just made a group called Teen and Adolescent Ill is anyone interested in joining?</p>
Community Voices
bee
Community Voices

I was just diagnosed yesterday with Ehlers-Danlos-4

I have a very long history of so many different surgeries. I have had a lot of problems
Just too many right now to get into. I would love to write a short story about my Journey to this point. I have been through a lot I’m really just trying to understand this.. It has been a very long road Thank you ne I will add a picture soon.

5 people are talking about this
Community Voices

I’ve had gastroporesis for 15 yrs. I’ve been on domperidone and PPI’s for the reflux. I’ve had SIBO 5 times. How did you decide to get a feeding tube?

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