Does anyone here struggle to make friends? Or wishes there was an easier way?
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bee
@beechan
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Has your POTS a gotten worse with other CI?
I’ve had like 12+ CI diseases develop in the past yr-I’m overwhelmed & dying my mum doesn’t get it nor do the other kids…I just want to hide
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Summer
Does heat make your POTS worse? If so, what have you found that helps? I am in Georgia and almost completely disabled during the summer.
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I just made a group called Teen and Adolescent Ill is anyone interested in joining?
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After a 4yr battle against TPN I finally went home on full term #TPN #Gastroparesis #CysticFibrosis #childrenshospital
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I was just diagnosed yesterday with Ehlers-Danlos-4
I have a very long history of so many different surgeries. I have had a lot of problems
Just too many right now to get into. I would love to write a short story about my Journey to this point. I have been through a lot I’m really just trying to understand this.. It has been a very long road Thank you ne I will add a picture soon.
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I’ve had gastroporesis for 15 yrs. I’ve been on domperidone and PPI’s for the reflux. I’ve had SIBO 5 times. How did you decide to get a feeding tube?