Bri

@bri_
Critical care nurse, fighting Lyme disease and fibromyalgia
Community Voices
Bri
Community Voices
Bri
Community Voices
Bri

Please consider joining my new group: Chronic Lyme Disease.

I want to shed awareness on this very common infection, up to 500,000 infections PER YEAR. Unfortunately, that number is still on the low end as many people are not diagnosed properly due to unreliable testing! Please do not rule out Lyme disease as a source for your health conditions, as this is a treatable condition!

Chronic Lyme Disease

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Community Voices
Bri

Social media

I am considering making an Instagram account dedicated to Lyme disease awareness, living life with Lyme disease, and being a nurse with a chronic illness...

I haven’t been on Instagram in years, but maybe it’s time to start up again.

Do you guys have Instagram? Do you follow anyone in the health, fitness, or chronic illness world? What do you like about their content?

Thanks for sharing with me!

9 people are talking about this
Community Voices
Bri
Community Voices
Bri

Have you ever been bit by a tick, flea, or mosquito?

A huge and detrimental misconception of Lyme Disease is that you can only get it from a tick. FALSE. You can get the infection from any insect that bites and transmits blood!

4 people are talking about this
Community Voices
Bri

Have you ever been bit by a tick, flea, or mosquito?

A huge and detrimental misconception of Lyme Disease is that you can only get it from a tick. FALSE. You can get the infection from any insect that bites and transmits blood!

4 people are talking about this
Community Voices

To Anyone,
I need HELP. As SOON as can be.
Now let me explain, please read my full story.
Alright, back in 2006 I was in 7th grade and going to a private school. I was outside with my friends and I was laughing and took a step back and fell off the curb onto my backpack which had a book jetting out and I herniated 2 discs. (I also had servere stomach pains which made it hard for me to eat). I was put on pain meds due to the severity of my pain (young I know) I started missing alot more school then I already was. My mother took me to Doctor after Doctor for help, test after test. Almost every Doctor REJECTED me saying NOTHING was wrong even with physical evidence my back have herniated. In fact one disc swelled up and they said it was just a "Fluffy" Disc. One doctor even told my mom that my pain was from the stretch marks on my back. And these weren't minor hospitals, I'm talking John's Hopkins, Greater Baltimore Medical Center, University of Maryland, Franklin Square, even Mercy.
In the meantime I did everything I could to try and help the pain. EVERYTHING. I still went to school, even had 2 jobs and went out with friends. I hid my pain as much as I could. Also, during this time, my mother had 2, back surgeries and was working and dealing with my very crazy Schizophrenic grandmother and equally crazy Bipoloar (more like undiagnosed Schizophrenic) Uncle.
When I was in 9the grade I was diagnosed with a Gallbladder that had stones and would only contract at 2% (normal is 30% minimum). So I had it removed in '09.
I had to return to public school for 10th grade, I became even more petrified of school then I had been. (I was already on psych meds for depression and SEVERE anxiety) I also was in an abusive relationship, basically a 24/7 suicide hotline, and my GOD you can say I basically raised my Girlfriend from age 13 to 17. Oh yeah, had to keep that a secret and she lived a state away buy I went every weekend)
On top of that I found out that my girlfriend during a break with my other was being sexualy abused by her stepfather and had to intervene. She's safe now, moved on and married happily.
But, I digress. I was put on home tutoring, I did go back for 12th and graduated. My GF (that I went back to) left me and put me in a horried place.
FINALLY in 2012 I found a doctor that BELIEVED me, after I felt hopeless, that did would do surgery. So, I had a Triple Fusion to my L4, L5, S1.
A year later though, on Christmas Eve, 1 year and 3 days after my surgery, we found out my older twin sisters friends mother died early in the morning due to an alcohol overdose. We then got a call my Uncle had been found dead in his basement and that my grandmother had been on the floor with no food or water for 3 - 4 days. After going to the hospital to fight with them to save my Grandmother's Life, my Dad took me to see his Mother and siblings. We left just to get into a Head On collision. I got ended up with 2 hematomas, liver damage, a large gash from the seatbelt, a cracking fault line on my teeth, I'm pretty sure a concussion, nerve and muscle damage to my arm and a broken sternum.
Now, I was having trouble after this with finding a pain management doctor after the laws changed. When the clinic I was going to last for 4yrs they wanted me to try other pain meds other then the ones I'm on but one after the other I had an allergic reaction. So I was put back on the meds I am. I went through 4 or 5 doctors at the clinic. The last one I had never made me feel safe. I tried to find a new place but a program called CRISP came about. I was lined up to go to another doctor but because of this system only showing where that doctor works NOW, I got a discharge from the new doctor for "Doctor Hopping". I also got one from a doctor that did my back injections since I was 12. So I stayed with the old clinic.
Well, over the past few years my pain got worse. The doctor I was with would order 2 MRIs a year. Finally, he said go see my surgeon. I do find out my bottom 2 screws were fractured and I needed surgery since they were moving.
One month before my surgery my pain doctor "forgot" to send my meds to my pharmacy then went on VACATION!!
I found a new doctor, they insisted I have a discharge to be seen. So I go. She said either she weens me off or down or go on Suboxone. I agree to ween down. Next week I have surgery. I was put on 15mg morph immediate release every 4hr and 15mg morph extended every 12hrs.
A week later I see the new doctor 1 WEEK later that cuts we down to 15mg immediate every 8hrs. I begged for holding one month. Nope. And I'm NOT going on Suboxone, it's 10x WORSE!
I now have seen multiple doctors that want to take it all away.
I have no doctor and NOWHERE to go. I'm not a drug seeker, I don't do street drugs, nothing. I now am bedbound with my boyfriend taking care of me. I take this medicine to function. And now I can't.
My normal script is 15mg Morph IR every 6 and 15mg ER every 12.

Please, PLEASE, HELP! I'm scared, I'm bedbound, I'm in excruciating pain with nothing. I don't know what to do anymore.
#help #scared #ChronicPain #BackPain #PainManagement #Advice

20 people are talking about this
Community Voices
Bri

Social media

I am considering making an Instagram account dedicated to Lyme disease awareness, living life with Lyme disease, and being a nurse with a chronic illness...

I haven’t been on Instagram in years, but maybe it’s time to start up again.

Do you guys have Instagram? Do you follow anyone in the health, fitness, or chronic illness world? What do you like about their content?

Thanks for sharing with me!

9 people are talking about this
Community Voices

× " How To Re-Learn How To Date... And Also Disclose Your Physical & Mental Health Condition's " × #Thought 's #curiosity

× " Please Note : That This Post Is About Trying To Start A New Chapter... A New Beginning... So Please Don't Leave Comment's About.. How I Should Just Love Myself Frist.. I Have Been Doing It.. The Best Way's That I Can... Now What's The Best Way To Tell Someone About Physical And Mental Disabilities... My #CP Is Noticable Because I Have A Limp... I Think That I Would Probably Wait Until They Ask... But Who Know's People These Day's Are Super Dismissive And Picky.. " × #Thought 's #curiosity ☆ S.K. ☆

9 people are talking about this