Pixie

@chubbypixie
I have a rare disease called lipedema this has now caused me to have lymphedema. My legs, butt, thighs, and upper arms are abnormally large. Weight loss is nearly impossible, as the fat deposits are abnormal and stubborn. I also have anxiety and depression.
Community Voices

Discontinued Tampons

<p>Discontinued Tampons</p>
Community Voices

My concrete legs #Lipedema

I feel like my legs are heavy as concrete. This disease is going to take my mobility before I can even get a dr to give me a formal diagnosis. Lipedema is a rare disease, not because it’s rare really......it’s more about Dr.’s not knowing what it is, so patients aren’t being diagnosed. I have had this disease all my life, but last year was the first time I’ve ever heard the term lipedema. My sister saw it on a website, looked it up then told me “I think I know what you have!” I have gone to several doctors since and have not been given the diagnosis as of yet. How do I know I have this disease? It’s visual, there are no blood tests, yet. I look like the poster child for this disease. I am struggling with the fact that I go to doctors and they just see an obese person they don’t see the young overweight girl that I was before this disease hit me like a Mac truck. I used to walk 3 miles 4 days a week and go to the gym and lift weights 3 days a week........I have been struggling with an unknown disease for the past 4 years going to doctors, begging in tears for help and understanding, only to be told I need to lose weight. If they only knew they were giving me a nearly impossible task. 4 years ago I had no walking issues I could nearly run.....today I hobble, walking, and standing cause me pain. I use a walker or a cane wherever I go. I’m hoping to get help before this disease puts me in a wheelchair. Until then I try to maintain my pain with a keto diet, intermittent fasting, a supplement protocol by Dr Karen Herbst I found online, and using a vibration plate. Ultimately the only way to remove the lipedema fat from my legs, to gain back my mobility......I require liposuction.......that is The only way to remove the fat.

6 people are talking about this
Community Voices

My concrete legs #Lipedema

I feel like my legs are heavy as concrete. This disease is going to take my mobility before I can even get a dr to give me a formal diagnosis. Lipedema is a rare disease, not because it’s rare really......it’s more about Dr.’s not knowing what it is, so patients aren’t being diagnosed. I have had this disease all my life, but last year was the first time I’ve ever heard the term lipedema. My sister saw it on a website, looked it up then told me “I think I know what you have!” I have gone to several doctors since and have not been given the diagnosis as of yet. How do I know I have this disease? It’s visual, there are no blood tests, yet. I look like the poster child for this disease. I am struggling with the fact that I go to doctors and they just see an obese person they don’t see the young overweight girl that I was before this disease hit me like a Mac truck. I used to walk 3 miles 4 days a week and go to the gym and lift weights 3 days a week........I have been struggling with an unknown disease for the past 4 years going to doctors, begging in tears for help and understanding, only to be told I need to lose weight. If they only knew they were giving me a nearly impossible task. 4 years ago I had no walking issues I could nearly run.....today I hobble, walking, and standing cause me pain. I use a walker or a cane wherever I go. I’m hoping to get help before this disease puts me in a wheelchair. Until then I try to maintain my pain with a keto diet, intermittent fasting, a supplement protocol by Dr Karen Herbst I found online, and using a vibration plate. Ultimately the only way to remove the lipedema fat from my legs, to gain back my mobility......I require liposuction.......that is The only way to remove the fat.

6 people are talking about this
Community Voices

My concrete legs #Lipedema

I feel like my legs are heavy as concrete. This disease is going to take my mobility before I can even get a dr to give me a formal diagnosis. Lipedema is a rare disease, not because it’s rare really......it’s more about Dr.’s not knowing what it is, so patients aren’t being diagnosed. I have had this disease all my life, but last year was the first time I’ve ever heard the term lipedema. My sister saw it on a website, looked it up then told me “I think I know what you have!” I have gone to several doctors since and have not been given the diagnosis as of yet. How do I know I have this disease? It’s visual, there are no blood tests, yet. I look like the poster child for this disease. I am struggling with the fact that I go to doctors and they just see an obese person they don’t see the young overweight girl that I was before this disease hit me like a Mac truck. I used to walk 3 miles 4 days a week and go to the gym and lift weights 3 days a week........I have been struggling with an unknown disease for the past 4 years going to doctors, begging in tears for help and understanding, only to be told I need to lose weight. If they only knew they were giving me a nearly impossible task. 4 years ago I had no walking issues I could nearly run.....today I hobble, walking, and standing cause me pain. I use a walker or a cane wherever I go. I’m hoping to get help before this disease puts me in a wheelchair. Until then I try to maintain my pain with a keto diet, intermittent fasting, a supplement protocol by Dr Karen Herbst I found online, and using a vibration plate. Ultimately the only way to remove the lipedema fat from my legs, to gain back my mobility......I require liposuction.......that is The only way to remove the fat.

6 people are talking about this