Cody Stevens

@codystevenspmg
I am the President/CEO of The PMG Awareness Organization, Inc., as well as a PMG (Polymicrogyria) parent. My hope is to connect with anyone and everyone that can relate in this fashion.
Community Voices

Caretakers and the Financial Burden

I would like to hear what your thoughts are on a parent needing to leave the work force for a child with a rare disorder? With a rare disease or disorder, it can be hard to trust a sitter, child care location, or a school to properly take care of your child, when you yourself, are still learning the details of how to do it properly. So, I have seen many families bring a parent home, to take the reigns in full time child care. But, of course, that doesn't come without added financial burden, as the income to the house had fallen. Any thoughts or advice as to how to help make this situation not as difficult?

#RareDisease #RareDisorder #Caretaker #selfcare #FamilyAndFriends

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Community Voices

What advice would you give to someone who’s new to caregiving?

<p>What advice would you give to someone who’s new to caregiving?</p>
84 people are talking about this
Community Voices

What is the kindest thing a stranger has done for you? #52SmallThings

<p>What is the kindest thing a stranger has done for you? <a class="tm-topic-link mighty-topic" title="#52SmallThings: A Weekly Self-Care Challenge" href="/topic/52-small-things/" data-id="5c01a326d148bc9a5d4aefd9" data-name="#52SmallThings: A Weekly Self-Care Challenge" aria-label="hashtag #52SmallThings: A Weekly Self-Care Challenge">#52SmallThings</a> </p>
87 people are talking about this
Community Voices

The PMG Awareness Organization and our Rare Community!

Just a quick hello to our Polymicrogyria and our Rare Disease Communities! I wanted to introduce myself. My name is Cody Stevens and I am the PMG Awareness Organization President/CEO. I look forward to a bright future, not just with our organization, but with new friends and connections within our Rare Disease community!

Hopefully in the near future, you will hear plenty more from us regarding ways that we can all connect and relate to each other and how in so many ways, our multiple rare conditions that make up our community can work and grow together! I can't wait to connect with all of you on a much deeper level! Wishing all of you and everyone on The Mighty a safe, strong, and bright future!

Sincerely,

Cody Stevens
PMG Awareness Organization President/CEO

#pmg #pmgawareness #RareDisease #RareDisorder