Caretakers and the Financial Burden
I would like to hear what your thoughts are on a parent needing to leave the work force for a child with a rare disorder? With a rare disease or disorder, it can be hard to trust a sitter, child care location, or a school to properly take care of your child, when you yourself, are still learning the details of how to do it properly. So, I have seen many families bring a parent home, to take the reigns in full time child care. But, of course, that doesn't come without added financial burden, as the income to the house had fallen. Any thoughts or advice as to how to help make this situation not as difficult?
#RareDisease #RareDisorder #Caretaker #selfcare #FamilyAndFriends
