Col Usher

@col-usher | contributor
Devoted dad, lover of life, advocate for all!
Col Usher

My Son's Hard Question About His Sister's Down Syndrome

This is not the way I’d thought I’d startTo share this message from my heartA question asked from my little buddyThat left Dad feeling somewhat cruddy! The little voice asked as we left home,“Does anyone wish Eden didn’t have Down syndrome?”Mom jumped straight in with no way, no howWhile my heart dropped low and my head took a bow. Now before you go, “Well, that’s just not right!”And before you try to pick a fightI love Eden Rose more than anyoneAnd I hope you understand this when I’m done. My little girl had all of my heartFrom the get go, right from the startShe had me wrapped ’round her little fingerThat’s why the pain of this question will linger. There is nothing to change, not one little thingShe’s my angel, my dream, she makes my heart sing.She’s funny, loving, determined and sneakyShe’s strong, fierce and a whole heap of cheeky. Her love is bold, pure and trueAccepting of others, yes, even you!This world, unfortunately, won’t always see thisAnd she’ll bare the brunt of those who “take the piss.” The thought of this cuts deep for meThe father’s heart wants to protect, you seeI would give all I have and then someTo save her from other peoples’ dumb. Saving from all that hurts or scarsAnd to set her high among the starsA love so deep it wants to shield her painTo keep her away from others’ disdain. I don’t feel this way from a diagnosisIt’s this broken world that brings my prognosisThe fear of “different” that eats awayIt stops us from just saying G’day. There is nothing here that you can catchBut a beautiful relationship just might hatchIf you stop for a moment and truly see,It’s not the “dis,” but the ability. My angel was sent to me from above,To show us what it means to loveSo after all this, it’s not her, it’s us — We need to change our prejudice. RELATED: What’s One Thing You Wish People Knew About Down Syndrome? This post originally appeared on Perfect By Design X2. The Mighty is asking the following: Can you describe the moment someone changed the way you think about a disability or disease? If you’d like to participate, please send a blog post to community@themighty.com. Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Want to end the stigma around disability? Like us on Facebook. And sign up for what we hope will be your favorite thing to read at night.