@comcleod | contributor
I am 26 years old. I live in Ohio with my husband and our two cats. I am diagnosed with fibromyalgia, ADHD, PCOS, and Meralgia Parasthetica (and many more). I write about my experiences as a disabled young person. Follow me on Instagram: clsmcleod
Community Voices

#Fibromyalgia thoughts

I’m working on creating some posts for this upcoming week for Fibromyalgia Day on May 12. I’d really like to know and include what other people with fibro wish those without fibro knew… if you are willing to let me share, please let me know! I’ll keep it anonymous! #Fibromyalgia #ChronicPain #Awareness

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My diagnosis didn’t make me feel relieved

I was diagnosed last week. Finally, after doing months of research, talking with doctors, begging to be tested… I sat down with my therapist and said my doctor wasn’t taking me serious, please test me. And minutes later there it was. ADHD combined presentation. Finally, at 26, I was diagnosed after struggling through life.
There it was and yet, I didn’t feel good. I thought after this fight, I would have some relief, some sense of weight being lifted…. And I didn’t. None of that was there. Days later, I still don’t feel it. I feel more lost and worried. I am just… stuck.

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1 year later

A year ago, I got confirmation from the doctor that I had miscarried between 4-5 weeks. She said it was a chemical pregnancy and just brushed it off. The pregnancy was a complete surprise and we had only relished in the news for a day before the bleeding started. A year later, we’ve decided to put trying for a baby on the back burner. A year later, I randomly think about the baby that would have been. I picture a boy, caramel skin tones, thick curly hair, and big brown eyes. They would look more like their dad than me. I picture him at his first Christmas or is taking him to family gatherings. I look at pictures taken a few days before the confirmation and see the sunbeams - is that him? Was he there with us? My husband and I aren’t huge on the whole after life thing but I believe there is a special places for souls of babies and animals to go. I find comfort in thinking my baby’s soul is up there, always watching over their mama. I wish I had been able to see you grow up and do amazing things, baby. You’ll be in my heart, always. #Miscarriage

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Which type of communication is hardest for you to keep up with?

<p>Which type of communication is hardest for you to keep up with?</p>
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Dealing with non-believers?

I have fibromyalgia (along with a lot of other things) and I really struggle with people who don’t believe me. There’s doctors, family members, and friends who have all told me that fibromyalgia isn’t real or that my pain isn’t real. I’ve stopped talking to my friends about how I feel most days because it just feels pointless. It doesn’t seem like they care or anything. How do you deal with people like that? What do you do to feel less lonely? #TheMighty #Fibromyalgia #ChronicIlless #ChronicPain

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