Sharon

@doverlane
Community Voices

#Fibromyalgia #ChronicPain Sensory Deprivation Therapy

I went for a float today (sensory deprivation tank) and i felt great afterwards!

It’s the 5th time i’ve been, but it’s too expensive to keep up, but maybe as a treat sometimes.

Anybody else try flotation therapy here?

X

4 people are talking about this
Community Voices

Self Care

It's probably been close to 2 years (eeks that's so crazy ) since I cut my hair.. I mean, honestly that's crazy, right? Well that's probably because my life took a crap; when I was diagnosed with fibromyalgia.. I mean come on, it's bad enough I have had to struggle with depression and it's sidekick anxiety MOST of my life! Nothing prepared me for #Fibromyalgia ... Still here it is... And I still can't wrap my head around it.. Prescription after prescription...oh and the weight gain... Yeah, I pretty much have sucked at life for almost 3 years now!
Sorry, that wasn't even where I was going with this... But if you here right now, thanks for letting me vent...
#CheckInWithMe #Depression #Fibromyalgia #warrior

8 people are talking about this
Community Voices

I am not too young to be in pain

I have been very upset lately at the amount of "but your too young to ahve pain" or "just wait until your my age!" They don't underatand at all that young people can be sick and in pain just like them. I am tired of not being taken seriously because of how young I am. I urge people not familiar with the medical history of who they are taking to think before making those kind of comments, think about how hurtful for young people to hear that their pain isn't "real" or "as bad" because they are young. I have been suffering from chronic pain since I was 9 years old and I am currently in my early 20s. Every week at least once I get a comment about how I must be fine since I am young.
Young people! I hope by my actions of explaining my pain to others that this could help other healthy realize that fibro or chronic illnesses does not care how old you are.
#Fibromyalgia #ChronicPain

8 people are talking about this
Community Voices

REWARD Yourself!!!

After all of the struggles, trials, and problems us Mighties have to go through on a daily basis, here is a reminder for you to reward yourself for all that you do! For all that you have accomplished-even for the little things like making it through another day even if you did less than you wanted to. You Still Made It! And that is incredibly brave and strong in my eyes no matter what others say.
Reward yourself! Even if it is a little piece of chocolate or candy you have been craving, that little extra piece of pizza, or even ordering chinese in because surviving your day was a bit more work than you thought it would be. Take that bubble bath or soak your feet in those epsom salts you have heard about.
REWARD Yourself! Because You DESERVE it!

#Fibromyalgia #Arthritis #EhlersDanlosSyndrome #ChronicPain #ChronicFatigueSyndrome #HypothyroidismUnderactiveThyroidDisease #RareDisease #PainIsRough #LifeIsAStruggle #REWARDYourself !

4 people are talking about this
Community Voices

Fibromyalgia Diagnosis (my experience)


The day I was diagnosed with fibromyalgia was as odd as it sounds a happy day for me. It was 6- months ago now but I finally had an answer that explained the ‘ghost pain’ I was experiencing!

I call it ghost pain because I experience debilitating random pain in areas that I’d not injured and had no explanation for. There one day gone the next.

I was happy because as shitty as the diagnosis is, I was relieved that I didn’t have bone cancer or more severe joint problems as I’d first thought.

Everything made sense when I was diagnosed. I couldn’t believe my eyes when my doctor gave me the pamphlet on fibromyalgia. It was like reading a story about myself.

I guess what frustrated me was the years of misdiagnosis, from a twisted pelvis, tight glute muscles, knots in my neck and shoulder muscles. I supposedly carried stress in my back. Had gout without crystals and was magnesium deficient because my muscles were weak. Insomnia was related to work stress. Countless MRIs for migraines and joint pain that confirmed nothing was wrong. Excruciating foot pain that lasted months then magically disappeared overnight! The list goes on.

I’m so much more at ease now I have a diagnosis because I know what’s causing my pain. The stress that comes from not knowing was eating me up and making me miserable. I occasionally cry when the pain gets really severe or is constant but I no longer cry because I don’t know what’s wrong. And that’s a huge step forward for me.

Why did it take 20+ years to diagnose me?

Once I was diagnosed by a rheumatologist, he gave me a prescription for three nights worth of sleeping pills/muscle relaxants. I can’t tell you how much better I felt after just three nights.

I also began exercising more (walking and stepper) to help with sleep and began taking MCT oil in my morning coffee which helps tremendously with getting rid of brain fog. I’m still quite fatigued but life is so much better because I am more positive.

I returned to scuba diving last week too thanks to my supportive husband who carried my tank and washed my gear because he knows the dive alone exhausted me.

I now find a way to do the things I love and have things planned so I have things to look forward to (no matter how small) because otherwise this terrible condition will get the better of me.

I’m also so grateful to find this group simply because there are people who understand what I’m going through. You guys make me feel normal- if you know what I mean. Hugs xx#Fibromyalgia

4 people are talking about this
Community Voices

Fibromyalgia Diagnosis (my experience)


The day I was diagnosed with fibromyalgia was as odd as it sounds a happy day for me. It was 6- months ago now but I finally had an answer that explained the ‘ghost pain’ I was experiencing!

I call it ghost pain because I experience debilitating random pain in areas that I’d not injured and had no explanation for. There one day gone the next.

I was happy because as shitty as the diagnosis is, I was relieved that I didn’t have bone cancer or more severe joint problems as I’d first thought.

Everything made sense when I was diagnosed. I couldn’t believe my eyes when my doctor gave me the pamphlet on fibromyalgia. It was like reading a story about myself.

I guess what frustrated me was the years of misdiagnosis, from a twisted pelvis, tight glute muscles, knots in my neck and shoulder muscles. I supposedly carried stress in my back. Had gout without crystals and was magnesium deficient because my muscles were weak. Insomnia was related to work stress. Countless MRIs for migraines and joint pain that confirmed nothing was wrong. Excruciating foot pain that lasted months then magically disappeared overnight! The list goes on.

I’m so much more at ease now I have a diagnosis because I know what’s causing my pain. The stress that comes from not knowing was eating me up and making me miserable. I occasionally cry when the pain gets really severe or is constant but I no longer cry because I don’t know what’s wrong. And that’s a huge step forward for me.

Why did it take 20+ years to diagnose me?

Once I was diagnosed by a rheumatologist, he gave me a prescription for three nights worth of sleeping pills/muscle relaxants. I can’t tell you how much better I felt after just three nights.

I also began exercising more (walking and stepper) to help with sleep and began taking MCT oil in my morning coffee which helps tremendously with getting rid of brain fog. I’m still quite fatigued but life is so much better because I am more positive.

I returned to scuba diving last week too thanks to my supportive husband who carried my tank and washed my gear because he knows the dive alone exhausted me.

I now find a way to do the things I love and have things planned so I have things to look forward to (no matter how small) because otherwise this terrible condition will get the better of me.

I’m also so grateful to find this group simply because there are people who understand what I’m going through. You guys make me feel normal- if you know what I mean. Hugs xx#Fibromyalgia

4 people are talking about this
Community Voices

Fibromyalgia Diagnosis (my experience)

The day I was diagnosed with fibromyalgia was as odd as it sounds a happy day for me. I finally had an answer that explained the ‘ghost pain’ I was experiencing!

I call it ghost pain because I experience debilitating random pain in areas that I’d not injured and had no explanation for. There one day gone the next.

I was happy because as shitty as the diagnosis is, I was relieved that I didn’t have bone cancer or more severe joint problems as I’d first thought.

Everything made sense when I was diagnosed. I couldn’t believe my eyes when my doctor gave me the pamphlet on fibromyalgia. It was like reading a story about myself.

I guess what frustrated me was the years of misdiagnosis, from a twisted pelvis, tight glute muscles, knots in my neck and shoulder muscles. I supposedly carried stress in my back. Had gout without crystals and was magnesium deficient because my muscles were weak. Insomnia was related to work stress. Countless MRIs for migraines and joint pain that confirmed nothing was wrong. Excruciating foot pain that lasted months then magically disappeared overnight! The list goes on.

I’m so much more at ease now I have a diagnosis because I know what’s causing my pain. The stress that comes from not knowing was eating me up and making me miserable. I occasionally cry when the pain gets really severe or is constant but I no longer cry because I don’t know what’s wrong. And that’s a huge step forward for me.

Why did it take 20+ years to diagnose me?

One I was diagnosed by a rheumatologist, he gave me a prescription for three nights worth of sleeping pills/muscle relaxants. I can’t tell you how much better I felt after just three nights.

I also began exercising more (walking and stepper) to help with sleep and began taking MCT oil in my morning coffee which helps tremendously with getting rid of brain fog. I’m still quite fatigued but life is so much better because I am more positive.

I returned to scuba diving last week too thanks to my supportive husband who carried my tank and washed my gear because he knows the dive alone exhausted me.

I now find a way to do the things I love and have things planned so I have things to look forward to (no matter how small) because otherwise this terrible condition will get the better of me.

I’m also so grateful to find this group simply because there are people who understand what I’m going through. You guys make me feel normal- if you know what I mean. Hugs xx