drdan210

@drdan210
Community Voices

Talking when fatigued

Has anyone else experienced difficulty with getting enough air force behind your voice when fatigued?

Community Voices

My new morning weekend view

<p>My new morning weekend view</p>
3 people are talking about this
Community Voices

Covid vaccine

I had my first Pfizer shot yesterday. Everything went ok.
About 12 hours after injection my arm started to hurt.
Had a restless sleep due to arm pain.
Today, headache, body aches, malaise, fatigue, hard time concentrating, and sunlight hurts eyes. I’ve had similiar symptoms when I catch a “virus”.
I’m sure it’s a sign my immune system has kicked in.
Just hope the second shot in 3 weeks doesn’t throw me for a loop.
#MitochondrialDisease

5 people are talking about this
Community Voices

Covid vaccine

I had my first Pfizer shot yesterday. Everything went ok.
About 12 hours after injection my arm started to hurt.
Had a restless sleep due to arm pain.
Today, headache, body aches, malaise, fatigue, hard time concentrating, and sunlight hurts eyes. I’ve had similiar symptoms when I catch a “virus”.
I’m sure it’s a sign my immune system has kicked in.
Just hope the second shot in 3 weeks doesn’t throw me for a loop.
#MitochondrialDisease

5 people are talking about this
Community Voices

Covid vaccine

I had my first Pfizer shot yesterday. Everything went ok.
About 12 hours after injection my arm started to hurt.
Had a restless sleep due to arm pain.
Today, headache, body aches, malaise, fatigue, hard time concentrating, and sunlight hurts eyes. I’ve had similiar symptoms when I catch a “virus”.
I’m sure it’s a sign my immune system has kicked in.
Just hope the second shot in 3 weeks doesn’t throw me for a loop.
#MitochondrialDisease

5 people are talking about this
Community Voices

Disability in Biden cabinet

According to the CDC, 1 in 4 Americans have a disability. This makes us one of the largest minority groups in the the US.
Since Biden has stated that he wants this government to look like the rest of America, who out there things he needs to have someone in his cabinet that “looks” like us

2 people are talking about this
Community Voices

Invest in Rest

As someone who collects and uses saying on a daily basis, I am quite jealous that I didn’t think of that phrase first. You’d think that as a person who suffers daily from the effects of a lack of energy and takes naps daily, I would have been the first to come up with “invest in rest”.
Just to add a little more, here are some of my more frequently used sayings especially with my grandkids. “Ask a stupid question, get a stupid answer.”
My wife’s version is:” play stupid games, get stupid consequences”
“Poor planning on your part, doesn’t make it an emergency on my part”
“Pain is a great teacher. You learn a lot when it hurts”
“Love- the more you give, the more you get”
“Fake it til you make it”
Have a good day😊

Community Voices

Disability in Biden cabinet

According to the CDC, 1 in 4 Americans have a disability. This makes us one of the largest minority groups in the the US.
Since Biden has stated that he wants this government to look like the rest of America, who out there things he needs to have someone in his cabinet that “looks” like us

2 people are talking about this
Community Voices
April Barcalow

Explaining How It Feels to Have an Undiagnosed Chronic Illness

One of the hardest aspects of chronic illness and rare diseases can be the long wait to finally reaching a diagnosis. It’s a reality for many of us that we go on living with the symptoms for years without having a “label” to make sense of it all. We live with what I call “the undiagnosis.” One of the biggest challenges can be finding a way for friends and family to understand what we’re experiencing while we’re in this period of unknown. We may find ourselves describing all the conditions doctors have ruled out, just to give our friends an idea of the host of symptoms we experience. We may stick to something vague, like telling them we have “some kind of autoimmune disease,” or “something going on with my muscles.” We may avoid social interactions altogether because the process of trying to explain and justify something that’s stumped doctors for years becomes exhausting. I’ve been living undiagnosed for two years with symptoms that affect my daily life: headaches, dizziness, brain fog, muscle fatigue and weakness, general fatigue, difficulty swallowing, sleep disturbances and post-exertional crash. I use a cane to walk most days. For longer distances, I use a wheelchair. Some days and weeks my symptoms are so mild, I can function almost as I did before. Others, I can hardly get out of bed. I’ve seen so many doctors, run so many tests and drawn so many labs in the past two years that I’m not sure I could even list all of them anymore. I’ve become jealous of people who tell me they have positive lab results because all of mine have been so incredibly elusive! In this period of unknown, it’s tempting to wonder if I’m imagining it all. Surely by now doctors would have found something to justify what I’m experiencing. I begin to wonder if they’re using that awful medical word behind my back: malingering. It makes me shudder to think about it. I want to be taken seriously more than anything, but negative test after negative test erodes that confidence. The truth is that many of us with chronic, complex illnesses struggle for years to finally understand what’s happening in our bodies. Diagnosis means treatment and help, sure, but it also means confirmation that we’re not imagining our symptoms. It means we have a level place from which to talk about what we’re experiencing with our friends and family. Diagnosis becomes the holy grail in our health journey. If — like me — you’re still on your quest for that elusive label, take heart! You’re not the only one describing your illness by listing all the things it isn’t. You aren’t the only one questioning your perception. And you’re not the only one hoping somehow a label will make it all right.