Aasta

@fierce_warrior
Hey there - I’m 27, single, demosexual, a geek and I’m pretty shy. I suffer from several chronic health conditions. Ehler’s Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Irritable Bowel Syndrome, Non-Alcoholic Fatty Liver Disease, Migraines, Diabetes, Interstitial Cystitis and Trigonitis. Along with the aforementioned illnesses I do suffer with a number of other ‘miscellaneous symptoms’. I’ve been ill for the last twelve years and I absolutely hate it. Feel free to ask me any questions.
Community Voices

What should I do about the hot weather?

Hey, everyone. I hope you're all okay and doing as well as you possibly can be. I'm very desperate for some advice on the weather for Monday and Tuesday this week.

My health rapidly gets worse in warm weather. My POTS acts up and I faint a LOT, my joints end up hurting really badly, I get muscle cramps and I dehydrate VERY easily. And when I'm dehydrated, my bladder condition flares up and becomes extremely painful.

On both Monday and Tuesday it's meant to be over 40 degrees, and I can see myself suffering really badly. Does anyone have any tips/hacks/advice for me? I'm willing to try anything. I'm going to keep bottled water in the fridge, make sure I drink as much as I can without popping, and I'll probably stay in bed with my fan directed at me.

Thank you all in advance.

#posturalorthostatictachycardia #EDS #POTS #NAFLD #Diabetes #InterstitialCystitis #Migraines #ChronicPain #hotweather #Tipsandadvice #pleasehelp

12 people are talking about this
Community Voices

I’d like some advice on the antibiotic I’m taking for a dental infection…

Hey, everyone. Thank you for taking the time to read this.

Yesterday I saw my dentist for a pretty big abscess on my gum near my jaw. I have a broken tooth that needs to be removed under general anaesthetic and every now and then, I get an infection in it. Unfortunately, the NHS waiting list for dental work under sedation is ENORMOUSLY long. So I’ll be waiting for a while yet.

I’m allergic to a few antibiotics, so I’ve been told to take Penicillin for five days. Which is fine. I usually get a bit of diarrhoea with it, but I have IBS anyway so that’s normal. BUT. This time… I can’t get this burning sensation in my stomach to go away. I’ve tried taking it WITH food and WITHOUT food.. Doesn’t seem to matter. I have GERD, so I suppose it could be that, but it happens usually a little while after I take the stuff and can last for a few hours.

Does anyone have any recommendations? Any handy tips? It’s much appreciated.

Thank you all in advance.

#dental #DentalInfection #GERD #IBS #Antibiotic #Penicillin #Burningsensation #Advice

Community Voices

I’m starting to think I might have Gastroparesis.

Ever since I was a baby, I’ve struggled with stomach issues. I’ve never been able to vomit normally - I literally projectile vomit EVERY time. I’ve been told it looks like I’m a cartoon when I do it. I end up with EXTREME stomach and throat pain. And over the years, I’ve noticed that I can sometimes not have eaten for 6+ hours but I’m still bringing up an excessive amount of what appears to be undigested food.

This past weekend, I managed to catch Norovirus - the “winter” vomiting bug. Between the hours of 3:30am and 8:30am on Sunday morning, I was curled up on the bathroom floor sobbing, unable to stop myself from bringing stuff up. But I hadn’t eaten since 6:30pm that evening. So, it had been around NINE hours WITHOUT consuming anything other than water.

TRIGGER WARNING - this part might be a bit gross…

When I started vomiting, I could SEE what I’d eaten for dinner. Very clearly undigested cucumber, cherry tomatoes, and stuff like that. I managed to fill a 2 LITRE bowl up twice in the space of about 30-60mimutes, then I continued to bring up insane amounts of bile (BRIGHT greenish yellow) for HOURS afterwards. This can’t be normal, surely? I thought the stomach was supposed to be empty after 4-6hours? But to have a FULL stomach after NINE hours? Jesus. I haven’t felt so ill in all my life.

From all the retching and vomiting, I’ve torn the muscles in my sides and my abdomen - it’s really hard to laugh and cough without crying. My fever was originally 39.8°C but is now down to 37.9°. I’m still achy, though. I imagine it’ll be a few more days before I’m back to my version of ‘normal’.

I’ve had SO many investigations for acid reflux, stomach aches and GERD in the past. All we ever found was the GERD, a hiatal hernia and VERY inflamed stomach linings. Surely gastroparesis would’ve been found before now…? How do I go about having this looked into?

Thank you all in advance, guys. And I’m sorry for the graphic description of my puke. 😬

#chronicillnesswarrior #ChronicPain #GERD #IBS #NAFLD #POTS #EDS #Dysautonomia #Norovirus #TMI #SicknessBug #InterstitialCystitis #Diabetes #Migraines

5 people are talking about this
Community Voices

Guess who managed to break her foot by WALKING!

<p>Guess who managed to break her foot by WALKING!</p>
12 people are talking about this
Community Voices

Guess who managed to break her foot by WALKING!

<p>Guess who managed to break her foot by WALKING!</p>
12 people are talking about this
Community Voices

I’m so sick of existing…

Hello, everyone. I hope you’re all doing as well as you can be. I really need to rant to people who may understand what I’m going through. On November 4tb my sister gave birth to the most beautiful baby boy named Oskar. I’ve never loved anything or anyone as much as I love my gremlin (my pet name for him).

Ever since my sister announced the pregnancy, I’ve been terrified that I’ll only ever be known as ‘The Sick Aunt.’ The aunt he will dread going to see because I can’t play with him constantly, I’d have to take several breaks.

And then there have been other things going on…

I’m so fed up with my body. I hate it. Constantly interfering with anything that makes me happy or feel good.

Wanna go to King’s Lynn so I can go shopping? Have a date and then go back to my girlfriend’s house? Nope. Not allowed.

You haven’t paid attention to your bladder today. We’re going to make you piss yourself, then start getting cramps…

Wanna go to the fair? SURE! Ah, oh no… I have to stop after one ride because I was going to faint.

Then, Oskar playing on the floor, he keeps looking at me and reaching out to me. I sit on the floor to play. 5minutes later? Nah. Can’t do that. My hips, back and knees betray me as I slowly have to get up and he’s left with no one to play with.. I’m just so fucking frustrated and so sick of being me.

I just.. I really don’t know what to do. I’m so physically AND mentally exhausted.. I can’t cope with this. I don’t want to exist.

#POTS #EDS #NAFLD #InterstitialCystitis #Diabetes #BPD #Depression #Migraines #ChronicPain #chronicillnesswarrior

20 people are talking about this
Community Voices

I’m so sick of existing…

Hello, everyone. I hope you’re all doing as well as you can be. I really need to rant to people who may understand what I’m going through. On November 4tb my sister gave birth to the most beautiful baby boy named Oskar. I’ve never loved anything or anyone as much as I love my gremlin (my pet name for him).

Ever since my sister announced the pregnancy, I’ve been terrified that I’ll only ever be known as ‘The Sick Aunt.’ The aunt he will dread going to see because I can’t play with him constantly, I’d have to take several breaks.

And then there have been other things going on…

I’m so fed up with my body. I hate it. Constantly interfering with anything that makes me happy or feel good.

Wanna go to King’s Lynn so I can go shopping? Have a date and then go back to my girlfriend’s house? Nope. Not allowed.

You haven’t paid attention to your bladder today. We’re going to make you piss yourself, then start getting cramps…

Wanna go to the fair? SURE! Ah, oh no… I have to stop after one ride because I was going to faint.

Then, Oskar playing on the floor, he keeps looking at me and reaching out to me. I sit on the floor to play. 5minutes later? Nah. Can’t do that. My hips, back and knees betray me as I slowly have to get up and he’s left with no one to play with.. I’m just so fucking frustrated and so sick of being me.

I just.. I really don’t know what to do. I’m so physically AND mentally exhausted.. I can’t cope with this. I don’t want to exist.

#POTS #EDS #NAFLD #InterstitialCystitis #Diabetes #BPD #Depression #Migraines #ChronicPain #chronicillnesswarrior

20 people are talking about this
Community Voices

I hate living like this…

<p>I hate living like this…</p>
14 people are talking about this
Community Voices

I hate living like this…

<p>I hate living like this…</p>
14 people are talking about this
Community Voices

I hate living like this…

<p>I hate living like this…</p>
14 people are talking about this