OodhamStrong

@foundachair
I am Native American and proud. My tribe is Tohono O'Odham Nation. It is on the border of Mexico and Cells, Arizona. I am a Special Education Aide for a middle school. I a Certified Clinival Aromatherapist. I love Rubber Duckies, Spider-Man, Dinosaurs, dystopian novels, and Cocolime Fitness designed for fibro and CFS warriors. I am getting diagnosed with a lot of new things. My old doctor said my pain was Fibromyalgia, but now I am seeing a neurologist, GI, and trying to get into a Rheumatologist because my new amazing doctor is actually testing me for things and finding stuff. I have a bulged disc, degenerative disc, Achilles Tendonitis, Plantar Fasciitis, gluten allergy, raynaud's disease, Sinus Tachycardia, and GI bleeding. I am sure fibro is still there but with the other things I have options.
Community Voices

Coping Mechanisms?

What kind of coping mechanisms do you guys use while waiting for doctor's appointments? Not in the waiting room, but in the time between making the appointment and actually having the appointment. Patience is not one of my virtues, so I want to know what works for you!

6 people are talking about this
Community Voices

TRUE or FALSE: I tend to be friends with people who are similar to me.

<p>TRUE or FALSE: I tend to be friends with people who are similar to me.</p>
45 people are talking about this
Community Voices

I'm 24 and I still don't know what I want to do with my life which is causing me to be anxious because a lot of people my age know what they want to do with their lives and already working in their careers but me I don't know whether I want to do and I'm being pressured by society to just have it figured out when I don't have it figured out this yet.

10 people are talking about this
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Community Voices

Hope For Great Doctor Found! Sharing positive doctor experiences

Hello warriors,

I wanted to put this out there because I feel like we have all had our fair share of doctors who don't listen to us or go to the easiest solution that may not even be the problem.
But what about the good doctors and people here who need hope they will find one? What prompted this was how my new doctor went out of her way to help me.
I have had chronic pain since I was a kid. I couldn't get my parents to believe me and a suffered until I found an okayish doctor at 22 who told me it was fibromyagia and treated the pain with gabapentin which was a life saver, but that is where he stopped. Every issue I had was fibro to him. I could have broken my leg and he would say fibro, but because of insurance I was stuck with this guy for 4 years before my insurance changed and I had to get all new doctors. I was afraid no one would treat me finding a primary was a nightmare, but I landed in my current PA's lap and she is AMAZING. She did labs and found autoimmune markers in my blood tests, she listened to my pain/numbness, got me tested and sent to a neurologist who is now getting me injections and physical therapy for my bulging disc, a podiatrist who is getting me incerts for achilles tendonitis/plantar fasciitis.
Yesterday she called me to let me know about my positive GI bleeding and I told her the GI doctor I was referred to said she could not get me in for 3 months... for a GI bleed! She called them and less than 5 minutes later the GI doctor calls me back and scheduled me for 2 weeks from now. 3 months to 2 weeks with her going out of her way to call them to get me in.

Have hope, good doctors are out there.
Please share positive stories if you would like.
#ChronicIllness #ChronicPain #Undiagnosed #Undiagnosed autoimmune disease #ChronicSpinePain #Fibromyalgia #StayStrong

9 people are talking about this
Community Voices

Hope For Great Doctor Found! Sharing positive doctor experiences

Hello warriors,

I wanted to put this out there because I feel like we have all had our fair share of doctors who don't listen to us or go to the easiest solution that may not even be the problem.
But what about the good doctors and people here who need hope they will find one? What prompted this was how my new doctor went out of her way to help me.
I have had chronic pain since I was a kid. I couldn't get my parents to believe me and a suffered until I found an okayish doctor at 22 who told me it was fibromyagia and treated the pain with gabapentin which was a life saver, but that is where he stopped. Every issue I had was fibro to him. I could have broken my leg and he would say fibro, but because of insurance I was stuck with this guy for 4 years before my insurance changed and I had to get all new doctors. I was afraid no one would treat me finding a primary was a nightmare, but I landed in my current PA's lap and she is AMAZING. She did labs and found autoimmune markers in my blood tests, she listened to my pain/numbness, got me tested and sent to a neurologist who is now getting me injections and physical therapy for my bulging disc, a podiatrist who is getting me incerts for achilles tendonitis/plantar fasciitis.
Yesterday she called me to let me know about my positive GI bleeding and I told her the GI doctor I was referred to said she could not get me in for 3 months... for a GI bleed! She called them and less than 5 minutes later the GI doctor calls me back and scheduled me for 2 weeks from now. 3 months to 2 weeks with her going out of her way to call them to get me in.

Have hope, good doctors are out there.
Please share positive stories if you would like.
#ChronicIllness #ChronicPain #Undiagnosed #Undiagnosed autoimmune disease #ChronicSpinePain #Fibromyalgia #StayStrong

9 people are talking about this
Community Voices

Hope For Great Doctor Found! Sharing positive doctor experiences

Hello warriors,

I wanted to put this out there because I feel like we have all had our fair share of doctors who don't listen to us or go to the easiest solution that may not even be the problem.
But what about the good doctors and people here who need hope they will find one? What prompted this was how my new doctor went out of her way to help me.
I have had chronic pain since I was a kid. I couldn't get my parents to believe me and a suffered until I found an okayish doctor at 22 who told me it was fibromyagia and treated the pain with gabapentin which was a life saver, but that is where he stopped. Every issue I had was fibro to him. I could have broken my leg and he would say fibro, but because of insurance I was stuck with this guy for 4 years before my insurance changed and I had to get all new doctors. I was afraid no one would treat me finding a primary was a nightmare, but I landed in my current PA's lap and she is AMAZING. She did labs and found autoimmune markers in my blood tests, she listened to my pain/numbness, got me tested and sent to a neurologist who is now getting me injections and physical therapy for my bulging disc, a podiatrist who is getting me incerts for achilles tendonitis/plantar fasciitis.
Yesterday she called me to let me know about my positive GI bleeding and I told her the GI doctor I was referred to said she could not get me in for 3 months... for a GI bleed! She called them and less than 5 minutes later the GI doctor calls me back and scheduled me for 2 weeks from now. 3 months to 2 weeks with her going out of her way to call them to get me in.

Have hope, good doctors are out there.
Please share positive stories if you would like.
#ChronicIllness #ChronicPain #Undiagnosed #Undiagnosed autoimmune disease #ChronicSpinePain #Fibromyalgia #StayStrong

9 people are talking about this
Community Voices

Hope For Great Doctor Found! Sharing positive doctor experiences

Hello warriors,

I wanted to put this out there because I feel like we have all had our fair share of doctors who don't listen to us or go to the easiest solution that may not even be the problem.
But what about the good doctors and people here who need hope they will find one? What prompted this was how my new doctor went out of her way to help me.
I have had chronic pain since I was a kid. I couldn't get my parents to believe me and a suffered until I found an okayish doctor at 22 who told me it was fibromyagia and treated the pain with gabapentin which was a life saver, but that is where he stopped. Every issue I had was fibro to him. I could have broken my leg and he would say fibro, but because of insurance I was stuck with this guy for 4 years before my insurance changed and I had to get all new doctors. I was afraid no one would treat me finding a primary was a nightmare, but I landed in my current PA's lap and she is AMAZING. She did labs and found autoimmune markers in my blood tests, she listened to my pain/numbness, got me tested and sent to a neurologist who is now getting me injections and physical therapy for my bulging disc, a podiatrist who is getting me incerts for achilles tendonitis/plantar fasciitis.
Yesterday she called me to let me know about my positive GI bleeding and I told her the GI doctor I was referred to said she could not get me in for 3 months... for a GI bleed! She called them and less than 5 minutes later the GI doctor calls me back and scheduled me for 2 weeks from now. 3 months to 2 weeks with her going out of her way to call them to get me in.

Have hope, good doctors are out there.
Please share positive stories if you would like.
#ChronicIllness #ChronicPain #Undiagnosed #Undiagnosed autoimmune disease #ChronicSpinePain #Fibromyalgia #StayStrong

9 people are talking about this