Luca Garai

@garailuca
Community Voices

I am new here

Let me introduce myself
Hello everyone,

I am Luca 25 years old , I am a female. I am suffering from VACTERL association. Furthermore I have got a cystostomy because there was no muscle on my bladder because of that I was incontinence when I was a teenager. I have only one kidney but it is working very well, fortunately. l haven’t got uterus but I have got
ovaries which are working very well as well. However I have got other gynecological problem: because of my cloaca malformation my sexual life is quite difficult actually I am to narrow for anything. My doctors don’t do anything with it. They are completely helpless with me.
About me:
I am a medical student. I like listening to music, reading a book or going to a concert. However I have been single for nearly five years due to my gynaecological problem, and I feel so lonely. I feel like nobody deserve to have me. Furthermore I have got ptsd, depression and panic attack according to my point of view, because the physicians say that I have no mental illness at all.
of course if you have a question about my case I will answer it with pleasure.
I have got an intermediate English exam but I am Hungarian,so if I make a fault in grammar please excuse me. #PTSD #PanicAttack #Vacterl #lonly

13 people are talking about this
Community Voices

I am new here

Let me introduce myself
Hello everyone,

I am Luca 25 years old , I am a female. I am suffering from VACTERL association. Furthermore I have got a cystostomy because there was no muscle on my bladder because of that I was incontinence when I was a teenager. I have only one kidney but it is working very well, fortunately. l haven’t got uterus but I have got
ovaries which are working very well as well. However I have got other gynecological problem: because of my cloaca malformation my sexual life is quite difficult actually I am to narrow for anything. My doctors don’t do anything with it. They are completely helpless with me.
About me:
I am a medical student. I like listening to music, reading a book or going to a concert. However I have been single for nearly five years due to my gynaecological problem, and I feel so lonely. I feel like nobody deserve to have me. Furthermore I have got ptsd, depression and panic attack according to my point of view, because the physicians say that I have no mental illness at all.
of course if you have a question about my case I will answer it with pleasure.
I have got an intermediate English exam but I am Hungarian,so if I make a fault in grammar please excuse me. #PTSD #PanicAttack #Vacterl #lonly

13 people are talking about this
Community Voices

When a person lives a quarter of a century with a congenital malformation, that should have been killed him. She reaches a certain age where her kidneys shouldn't really work anymore, but it still works, she shouldn't really live anyway. She goes on in life, and gets to the point where she wants to love, but her two relationships have already over into a solvable problem. I can love, take care of a man as much as I can, but this at a certain point won’t be enough. All of it because of one thing that could have been fixed if an old grumpy gynaecologist professor had been sent me five meters away to the another physician office, ten years ago. However you asked another opinion on your case with other doctor, but the old irritating gynaecologist just did not care for it at all. Instead, the elderly gynecologist prof. states, “then you will be left alone for your whole life ”. If you ask back, do you want to be alone for a lifetime? There is no longer an answer to this. Yes, he was spared me from a certain level of risk, but he didn’t expect that it will be ruin my soul and so I can’t live in this condition ; patient goes on to get there, where is no doctor over her who is familiar with her condition so instead of there are many excuses for why they are not willing to help her, such as "I've never seen anything like this , it's not belong to here, go out of here, heal yourself." The patient has psychiatric symptoms, but according to the papers, she is not ill and again does not fit anywhere: “get out of here, nothing wrong, heal yourself”. Regardless, the patient has ptsd-like symptoms and has not slept for years. The patient goes on and realizes that there is no doctor over her who will understand her , she will not have a partner because on this way no one wants to live in the long term, her parents are tired at the age of six and can now practically be sick of being born; No matter how kind, calm and helpful I am to people, there is no way out of the prison called my body, I will be alone with it and I will start to get really tired. Where is the endpoint of the chronic patient? How long do you have to put up with this? When they are born and asked, do you want to live like this? Why can't you say no?

Community Voices
Community Voices

Illness and Panic


#PanicAttacks
I have a really hard time with illnesses and panic attacks. I have a panic disorder. officially diagnosed at 17 but suffering much longer than. that. When someone is sick around me (mainly the V word) I lose it. if I don’t feel well for whatever reason. lose it. Last night I woke up having a panic attack and then started getting nauseated and I just haven’t been able to calm down. It’s so uncomfortable, I’m so tired. I know I’ve been through this before and I can get through it. The intense fear is just crippling me. Not helping it’s Christmas and I’m freaking out if I am actually sick.

1 person is talking about this
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