Ian Scheil

@iansaid | contributor
I am a 29 year old Complex Unspecified Neuromuscular Disease, Fibro, Autoimmune Atrophic Gastritis, Linear Neuroendocrine Hyperplasia, Nonalcoholic Non Obese Fatty Liver Disease, ADHD, OCD, OCPD and Complex PTSD Patient (with other physical health diagnosis’ in addition) whose life has turned upside down. I’ve had to take the experience to learn new ways of defining success in my life and rediscover how to still be me in the midst of everything. I'm bisexual and advocate for LGBTQ+ health care, and especially trans health care rights and equality both inside and outside the LGBTQ+ community.
Community Voices

IF US Supreme Court Overturns Roe, The US Is IN Violation of International Charter on Human Rights

<p>IF US Supreme Court Overturns Roe, The US Is IN Violation of International Charter on Human Rights</p>
2 people are talking about this
Community Voices

The Trauma of Intrusive Thoughts

<p>The <a href="https://themighty.com/topic/trauma/?label=Trauma" class="tm-embed-link  tm-autolink health-map" data-id="5b23cec300553f33fe99e90c" data-name="Trauma" title="Trauma" target="_blank">Trauma</a> of Intrusive Thoughts</p>
4 people are talking about this
Community Voices

We need a space

Hello all and welcome to the group. Having gone through many denials myself and having had to deal with them and their effects on my loved ones, I had been looking for a place where people come together to just share these stories together. I've watched people lose their lives because of insurance denials. I've watched members of my support groups be seriously injured. When it comes to what many of these companies do it is pure abuse, and downright murder in many aspects. Yet it is all legal. We need a place to document, to share, and bring to light the reality of denials of care and just how they are affecting us, our loved ones, and the issues caused by them.

Please share your story here and let's make a growing number of posts and stories to show the harm that is being done. Together we can make a difference. Just by hearing one another and letting each other know we're not alone can be life saving.

2 people are talking about this
Community Voices

I am having a small pity party at the moment. It was such a struggle to get up my stairs just now because my legs are stiff. It hit me that my disease only gets worse over time and there is no cure. It is possible I will be in a wheelchair by the time I hit my 60s. Please don't get me wrong, I am grateful that what I have is not fatal. I am also grateful that it is a disease that progresses slowly. Normally I don't really think about it, I go about my day. It is what it is. Tomorrow I will wake up and keep going. But for right now? I just want to feel sorry for myself.
#CharcotMarieToothDisease
#NeuromuscularDisease

4 people are talking about this
Community Voices

What is your Insurance Denial Story? Share it as a new post in the group

Share a new post in the group detailing the denial experience you had with health insurance and its effect on you or your loved ones. Make sure to name the insurer as well because it may help spot trends too. Use the hashtag #InsuranceDenialStories . Invite others to share their stories here too. Let's build a supportive database to really document and show the true human cost of Insurance denials and possibly even spot trends to help mitigate the horrors that are being perpetrated against those most in need.
#ChronicIllness #Depression #MentalHealth #HealthInsurance #Insurance #Abuse #ChronicPain #Grief #Disability #CPTSD #PTSD

Community Voices

Starting a New Group for Insurance Denial Stories

I am starting a new group where we can share insurance denials and their effects on us and our loved ones. Too often the real impact of these denials goes unheard and unseen. Let's bring some light to this major issue plaguing many with a variety of health conditions! Share your story and let's build a group where we can share them together. #Insurance #Grief #PainMedication #AnkylosingSpondylitis #Asthma #Fibromyalgia #ChronicIllness #Depression #Anxiety #PTSD #CPTSD #MentalHealth

8 people are talking about this
Community Voices

Starting a New Group for Insurance Denial Stories

I am starting a new group where we can share insurance denials and their effects on us and our loved ones. Too often the real impact of these denials goes unheard and unseen. Let's bring some light to this major issue plaguing many with a variety of health conditions! Share your story and let's build a group where we can share them together. #Insurance #Grief #PainMedication #AnkylosingSpondylitis #Asthma #Fibromyalgia #ChronicIllness #Depression #Anxiety #PTSD #CPTSD #MentalHealth

8 people are talking about this
Community Voices

Starting a New Group for Insurance Denial Stories

I am starting a new group where we can share insurance denials and their effects on us and our loved ones. Too often the real impact of these denials goes unheard and unseen. Let's bring some light to this major issue plaguing many with a variety of health conditions! Share your story and let's build a group where we can share them together. #Insurance #Grief #PainMedication #AnkylosingSpondylitis #Asthma #Fibromyalgia #ChronicIllness #Depression #Anxiety #PTSD #CPTSD #MentalHealth

8 people are talking about this
Community Voices

Starting a New Group for Insurance Denial Stories

I am starting a new group where we can share insurance denials and their effects on us and our loved ones. Too often the real impact of these denials goes unheard and unseen. Let's bring some light to this major issue plaguing many with a variety of health conditions! Share your story and let's build a group where we can share them together. #Insurance #Grief #PainMedication #AnkylosingSpondylitis #Asthma #Fibromyalgia #ChronicIllness #Depression #Anxiety #PTSD #CPTSD #MentalHealth

8 people are talking about this