julz67910

@julz67910
Community Voices

Why is this my only option?

Due to Fibromyalgia, I can't wash my hair anymore. I turned to local social services in December, & had an off-puttingly terrible experience.
My mam is emotionally abusive, but she's the only one I have for support. She offered to wash my hair for me & I said yes. So she spent 15 minutes shouting at me asking stuff like "if you can't bend your neck or lift up your arms then what are we supposed to do? What are you going to wear? Why haven't you brought anything to wear?"
Because I came round to have a bath & you offered, ffs! People, she offered. Then seemed super-cross that I took her up on it? #Abuse #Disability #Fibromyalgia #ChronicPain

78 people are talking about this
Community Voices

Pain meds

I’m going to a new pain specialist in 9 days. It can’t come soon enough. I’m just wondering what everyone is taking that has RSD/CRPS. Right now I’m on nothing. If I wasn’t a single mother, would have killed myself by now. #ComplexRegionalPainSyndrome

4 people are talking about this
Community Voices

Pain meds

I’m going to a new pain specialist in 9 days. It can’t come soon enough. I’m just wondering what everyone is taking that has RSD/CRPS. Right now I’m on nothing. If I wasn’t a single mother, would have killed myself by now. #ComplexRegionalPainSyndrome

4 people are talking about this
Community Voices

Ketamine infusions for pain

Can anyone share your experience with ketamine infusions to treat chronic pain (fibromyalgia, CRPS, neuropathy, general pain, etc)? I have severe nerve pain that really limits my functioning and I would like to try ketamine infusions if I can find a way to access them. I’m speaking to my pain specialist next week and am wondering how to approach this topic with him? He has been very hesitant in the past when I’ve asked about this as he is concerned about side effects. I’m in Canada and not sure if these treatments are available in my city (let alone if they are covered or out of pocket), but I’m willing to travel if necessary. Any advice or thoughts you can share would be very appreciated!! Thanks so much!

#ketamine #Ketamineinfusions #ChronicPain #CRPS #Fibromyalgia #nervepain #severepain

13 people are talking about this
Community Voices

♾💩

I just turned 39. I have CRPS (2 years in), Degenerative Disc Disease, Depression & Anxiety, PTSD, Spinal Stenosis, Degenerative Osteoarthritis, Spondylisis, Chronic Migraines, Fibromyalgia, Kidney Disease, Ovarian Cysts that burst and come back sporadically, Vitamin D & Potassium Deficiencies. There’s more but those are the ones I can think of right now. I have lived with all of these for about 15 years, except when I thought I couldn’t handle a bit more pain, CRPS invited itself into the fold. Why not, right? PAIN IS WHAT I HAVE! Just like most of you on this site. I guess I’m typing this so I don’t shoot myself in the head. I’m a single mother of 4. Car accident survivor, domestic violence survivor, brutally raped by more than one person, more than one time in my life survivor, one of my children is the product of rape and attempted murder survivor. With all the physical and emotional pain, medications have been my lifeline for about 15 years now. They keep my mind from going off the deep end, but as of now, I have one foot off the cliff. I was taking CBD Oil from my pharmacy. It helped so much in combination with all my meds. When I took my drug test, it came up as THC. This is illegal in Kentucky. So how is CBD Oil legal? No wonder it helped me so much! The doctor took away ALL PAIN & ANXIETY MEDS. My spinal cord stimulator helps a lot but it’s currently maxed out. I feel like my medical records are now tainted and no doctor is ever going to help me. WTF am I here for? To live in agony and never get out of bed again? #ComplexRegionalPainSyndrome #ChronicDepression #PTSD #AnkylosingSpondylitis #Migraine #Arthritis #OvarianCyst #Fibromyalgia #KidneyDisease

8 people are talking about this
Community Voices

♾💩

I just turned 39. I have CRPS (2 years in), Degenerative Disc Disease, Depression & Anxiety, PTSD, Spinal Stenosis, Degenerative Osteoarthritis, Spondylisis, Chronic Migraines, Fibromyalgia, Kidney Disease, Ovarian Cysts that burst and come back sporadically, Vitamin D & Potassium Deficiencies. There’s more but those are the ones I can think of right now. I have lived with all of these for about 15 years, except when I thought I couldn’t handle a bit more pain, CRPS invited itself into the fold. Why not, right? PAIN IS WHAT I HAVE! Just like most of you on this site. I guess I’m typing this so I don’t shoot myself in the head. I’m a single mother of 4. Car accident survivor, domestic violence survivor, brutally raped by more than one person, more than one time in my life survivor, one of my children is the product of rape and attempted murder survivor. With all the physical and emotional pain, medications have been my lifeline for about 15 years now. They keep my mind from going off the deep end, but as of now, I have one foot off the cliff. I was taking CBD Oil from my pharmacy. It helped so much in combination with all my meds. When I took my drug test, it came up as THC. This is illegal in Kentucky. So how is CBD Oil legal? No wonder it helped me so much! The doctor took away ALL PAIN & ANXIETY MEDS. My spinal cord stimulator helps a lot but it’s currently maxed out. I feel like my medical records are now tainted and no doctor is ever going to help me. WTF am I here for? To live in agony and never get out of bed again? #ComplexRegionalPainSyndrome #ChronicDepression #PTSD #AnkylosingSpondylitis #Migraine #Arthritis #OvarianCyst #Fibromyalgia #KidneyDisease

8 people are talking about this
Community Voices

My right leg has become smaller than my left

Ok so does anyone know why right looks darker and smaller than my left? Also its far colder than the rest of my body. Doctor said that it may be related to CRPS but didnt clarify

3 people are talking about this
Community Voices

♾💩

I just turned 39. I have CRPS (2 years in), Degenerative Disc Disease, Depression & Anxiety, PTSD, Spinal Stenosis, Degenerative Osteoarthritis, Spondylisis, Chronic Migraines, Fibromyalgia, Kidney Disease, Ovarian Cysts that burst and come back sporadically, Vitamin D & Potassium Deficiencies. There’s more but those are the ones I can think of right now. I have lived with all of these for about 15 years, except when I thought I couldn’t handle a bit more pain, CRPS invited itself into the fold. Why not, right? PAIN IS WHAT I HAVE! Just like most of you on this site. I guess I’m typing this so I don’t shoot myself in the head. I’m a single mother of 4. Car accident survivor, domestic violence survivor, brutally raped by more than one person, more than one time in my life survivor, one of my children is the product of rape and attempted murder survivor. With all the physical and emotional pain, medications have been my lifeline for about 15 years now. They keep my mind from going off the deep end, but as of now, I have one foot off the cliff. I was taking CBD Oil from my pharmacy. It helped so much in combination with all my meds. When I took my drug test, it came up as THC. This is illegal in Kentucky. So how is CBD Oil legal? No wonder it helped me so much! The doctor took away ALL PAIN & ANXIETY MEDS. My spinal cord stimulator helps a lot but it’s currently maxed out. I feel like my medical records are now tainted and no doctor is ever going to help me. WTF am I here for? To live in agony and never get out of bed again? #ComplexRegionalPainSyndrome #ChronicDepression #PTSD #AnkylosingSpondylitis #Migraine #Arthritis #OvarianCyst #Fibromyalgia #KidneyDisease

8 people are talking about this
Community Voices

♾💩

I just turned 39. I have CRPS (2 years in), Degenerative Disc Disease, Depression & Anxiety, PTSD, Spinal Stenosis, Degenerative Osteoarthritis, Spondylisis, Chronic Migraines, Fibromyalgia, Kidney Disease, Ovarian Cysts that burst and come back sporadically, Vitamin D & Potassium Deficiencies. There’s more but those are the ones I can think of right now. I have lived with all of these for about 15 years, except when I thought I couldn’t handle a bit more pain, CRPS invited itself into the fold. Why not, right? PAIN IS WHAT I HAVE! Just like most of you on this site. I guess I’m typing this so I don’t shoot myself in the head. I’m a single mother of 4. Car accident survivor, domestic violence survivor, brutally raped by more than one person, more than one time in my life survivor, one of my children is the product of rape and attempted murder survivor. With all the physical and emotional pain, medications have been my lifeline for about 15 years now. They keep my mind from going off the deep end, but as of now, I have one foot off the cliff. I was taking CBD Oil from my pharmacy. It helped so much in combination with all my meds. When I took my drug test, it came up as THC. This is illegal in Kentucky. So how is CBD Oil legal? No wonder it helped me so much! The doctor took away ALL PAIN & ANXIETY MEDS. My spinal cord stimulator helps a lot but it’s currently maxed out. I feel like my medical records are now tainted and no doctor is ever going to help me. WTF am I here for? To live in agony and never get out of bed again? #ComplexRegionalPainSyndrome #ChronicDepression #PTSD #AnkylosingSpondylitis #Migraine #Arthritis #OvarianCyst #Fibromyalgia #KidneyDisease

8 people are talking about this
Community Voices

Does anyone else get actual burns on their skin from their CRPS? I am burning from the inside out.

4 people are talking about this