Jwalkerobrien_2012

@jwalkerobrien_2012
Community Voices

Fear that I'm not really ok...

I was diagnosed with #POTS 2 1/2 years ago, and have been living with symptoms for at least 7 years. For the first 2 yrs after my diagnosis, I was stuck with a doctor who clearly wasn't putting in much effort to help me, so I saw no improvement at all. I now have a great doctor that I love, and his treatment plan was so encouraging, but I'm currently pretty #discouraged because since January I have had covid and walking pneumonia, therefore I've had a big setback. I'm so tired of feeling bad ALL the time. I have 2 young kids, and I feel like my lack of ability to participate in things with them is wrecking their childhood. I also have always been a big worrier, so even if I've dealt with certain symptoms before, if they are really acting up, I get afraid that the doctors missed something, and I'm gonna die. I just need a community that understands and that can reassure me that my symptoms are normal to my condition. #mentallyexhausted #sotired
#heartflutterssuck

Community Voices

I'm new here!

Hi, my name is Jwalkerobrien_2012. I'm here because I need to be able to communicate with others who understand what I'm going through.

#MightyTogether #Dysautonomia

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