Ann Marie

@keepgettingup
I am here to find support and give support. I still have shame about depression and anxiety, and very few people to none to talk to about it. I hope to find community and friendship here.
Community Voices

What’s stopping you from becoming the person you want to be?

<p>What’s stopping you from becoming the person you want to be?</p>
34 people are talking about this
Community Voices

Sleeping fully clothed

Ever sleep with your child to calm them down while you are fully clothed.? Then, wake up the next morning and jump into everything and wear those same clothes again? Me, last night and today. Worst of all? No one cares or asks how they can help. Not my husband or anyone I saw yesterday and again today. I hope it gets better. I did take a bath tonight and put on pajamas—a better start for bedtime!
#ParentsOfChildrenWithSpecialNeeds

1 person is talking about this
Community Voices

Info on Regression in Ds

<p>Info on Regression in Ds</p>
1 person is talking about this
Community Voices

Pro-Choice vs Pro-life.

This is something I’ve always wondered about… parents/family members of people who have Down Syndrome:
How does it make you feel/ what do you think when people terminate a pregnancy directly due to a pre-natal diagnosis of Down Syndrome? Do you believe people have the right to choose?
No judgement whatsoever. There’s no right or wrong answer. Thank you so much for taking the time to respond, and I wish you all the best for the future

4 people are talking about this
Community Voices

Loving Jason

I am in desperate need of some answers…..My son Jason is a high-functioning guy with Down Syndrome.
In the last year I have watched him change. We have really noticed it for a few months.
Jason has problems with his ears and I flush them out when needed.
This time he is really having trouble hearing.
He doesn’t hear me when I call him and says he can’t hear.
Along with not being able to hear he is just not himself. He is not funny like he has always been.
He is not engaged like he normally is.
Since Covid came the changes are more and more noticeable.
My daughter and neighbors also see a big difference in him.
I took him to the Doc for his ears, but she said they are okay.
My nightmare has always been-could he get Alzheimer’s.
I don’t know how the changes come to signal AD.
What should I look for?
What can I do for him?
How do you know if he has AD?
I am scared for my son and am desperate for answers.
I need to protect and help my son.
I don’t know if his hearing is causing all of the changes.
I need my son back.
I am taking him for an Echo this month to check on his heart…..but if someone can tell me where I go from here-please tell me.
Thanking you,
Carol Wallace
623-695-3612

5 people are talking about this
Community Voices

How do I explain depression?

My husband keeps asking me why I’m not happy. I’ve been diagnosed with major depressive disorder. I can’t get him to understand that it has nothing to do with being happy. 😓

9 people are talking about this
Community Voices

Waking up is the hardest

The moment I open my eyelids, the emotions and negative thoughts come flooding in. I dread waking up every single morning. I’m feeling so overwhelmed by the way I feel, and it’s hard for me to get up and on with the day.

Can anyone else relate?

#BorderlinePersonalityDisorder #Anxiety #Depression

55 people are talking about this
Community Voices

Sad for Present and Future

I have no one to vent these thoughts to, so, I am posting here. I am sad that my daughter’s life is hard and limited. I am sad that my life is hard and limited to being her caregiver. I am, at best, an “okay” caregiver, going from bad to good, then back again. My sleep is irregular because her sleep is irregular. I am sad, afraid, and angry that there are almost no supports & services in this state for adults with IDD. I am sad that she developed Regression which lowered her skills and now is taking meds daily. And with every extra need she has, more doors close for her and me. I often feel there is no hope for her future which is also my future. I feel she is trapped and I am trapped. No hope, Few to no options. How can you focus on today only, when, you have to CREATE the future for your child? No point and no hope. She is between “low functioning” and “middle functioning” and needs help in restroom due to a colon disease plus regression, and meds 4 times a day. Very few options. She is pleasant mostly, so I am grateful for that. Going through motions with little to no progress. Where to turn?

#ParentsOfChildrenWithSpecialNeeds #sad

5 people are talking about this
Community Voices

Sad for Present and Future

I have no one to vent these thoughts to, so, I am posting here. I am sad that my daughter’s life is hard and limited. I am sad that my life is hard and limited to being her caregiver. I am, at best, an “okay” caregiver, going from bad to good, then back again. My sleep is irregular because her sleep is irregular. I am sad, afraid, and angry that there are almost no supports & services in this state for adults with IDD. I am sad that she developed Regression which lowered her skills and now is taking meds daily. And with every extra need she has, more doors close for her and me. I often feel there is no hope for her future which is also my future. I feel she is trapped and I am trapped. No hope, Few to no options. How can you focus on today only, when, you have to CREATE the future for your child? No point and no hope. She is between “low functioning” and “middle functioning” and needs help in restroom due to a colon disease plus regression, and meds 4 times a day. Very few options. She is pleasant mostly, so I am grateful for that. Going through motions with little to no progress. Where to turn?

#ParentsOfChildrenWithSpecialNeeds #sad

5 people are talking about this
Community Voices

Now what?

#DownSyndrome #downsyndromeawareness #DevelopmentalDelays
Today was one of those days where I found myself asking "what next?"  We were at the park with two of our three kids. Our oldest who is nearly 21 and has Down Syndrome and our youngest who is 8. Our 8 year old ran around the park doing her thing. Our oldest picked a swing and I pushed her. Over the years I have seen the posts about the very high functioning people with Down Syndrome getting out of high school, going to college, becoming models etc etc etc. And that's .... super. But it's harder to find the stories from parents whose kids are not so up there on the scale. Last year, before the pandemic, she was involved for a time with a local organization that gives the adults with cognitive delays a place to go. Perhaps they went to volunteer some place, maybe they went bowling, maybe they just drove around and got food. They did something to get out of the house so their caregivers could go to work or take a break. Those are the stories we don't hear about. It only lasted so long, and she refused to go. Now, she's home. Every. Damn. Day. And I can't leave her alone because she doesn't understand, please don't microwave metal. Please don't consume soy sauce. Please don't take a walk by yourself. She needs someone to watch her. And asking for respite care is not as easy as all that. And our family is limited.
We are one of those families whose kid falls into the category of not so high functioning so they don't make it into a tv show or land a modeling contract. I have nothing against those individuals whatsoever.
What I have a problem with is that while it's great to want to show the world that a label isn't everything, at least show the world that that label holds many different variables.
And some of us are left with trying to figure out what happens to our loved ones.
I'm tired.
I'm concerned. I go over game plans in my head.
Financial concerns are one thing.
But it's the love, the support. The real human connection that she'll lose when we die.
Because the fact is, she barely has it now while we're alive.
The world is consumed with feel good stories about the person with the disability who conquered it all and is giving TED talks about the power of positive thinking and not feeling sorry for yourself.
But it's not nearly concerned enough about recreating a society that needs to make room for people who aren't keeping up with the rest.
I need a break. And taking that break is impossible while I'm not only fighting her challenges but fighting an uphill battle to raise an awareness to disability.

1 person is talking about this