Liz Bernstein

@liz-bernstein | contributor
Liz Bernstein is a 30-year-old autistic with a bachelors degree from The University of Iowa. She is currently finishing her studies in medical coding. She is also training her next service dog and will soon retire her current service dog. She enjoys spending time with her dogs, knitting, reading, traveling and cold weather.
Liz Bernstein

What I Want You to Know About Being a Service Dog Handler

They see his fur first, then they see his face. The awkward smiles start. The “ooos” and “aws” follow. Then they begin to speak to him in a higher-pitched voice. Parents point him out to their uninterested children, saying, “Look at the doggie!” As if they had never seen a dog before. Some even try to pet him without asking. Then you have the individuals who scream (literally) when they see him. None of them really notice the individual on the other end of the leash. I hold my hand up and say, “Please don’t. He’s working.” They suddenly notice me and give me a look of shock, disdain or repulsion. Some even become combative because I don’t want them speaking to or petting my service dog. Liz’s service dog Mac This is a normal day in the life of a service dog handler. People will randomly come to you and try to interact with your dog. They unknowingly or don’t care that by distracting the dog, they are putting the handler in immediate danger. If you see a service dog team in a public place, they are most likely there for the same reason as you. Service dog handlers do not allot the extra time that is needed to allow everyone to say hello to their dog. Many of us just want to get what we need done and go on with our day. Service dogs are legally medical equipment under federal and state laws. A service dog goes through 1.5 to 2.5 years of intense and specific training in order to mitigate their handler’s disability. You must be disabled in order to utilize a service dog. In many states, they fall under the white cane law. While they are an optional piece of medical equipment, they are helpful in some cases. Emotional support animals and therapy dogs are not service dogs and are not covered under the Americans with Disabilities Act. And no matter how much you pay for an ID or vest on a website, it does not make your animal a service animal! Service dogs are medical equipment when they are working. They need to pay attention to their handler and be able to perform the tasks they have been trained to. Tasks are based on the handler’s needs, not wants. Legitimate tasks include opening and closing doors/cabinets, retrieving dropped or named items, guide work, pulling a wheelchair, blood glucose changes detection, deep pressure therapy, etc. “Just being there,” “cuddles/comfort” and tethering a child to a dog are not tasks. Service dogs must be proficient in advanced obedience, public access training and task training. These dogs cost thousands of dollars to train and maintain. They can range from $10,000 to $50,000 to train. Even owner training is expensive. I have about $25,000 in my current service dog and $9,000 in my service dog in training. Liz’s service dog in training, Linc These dogs are not pets under the law. They do get to enjoy life and have time off. Many handlers participate in extracurricular activities such as obedience competitions, agility (there are many videos of handlers in wheelchairs participating in this sport), rally-o, etc. Service dogs must be in tip-top shape when working. They must be clean and healthy. In my experience, i t is frowned upon in the service dog community to work a dog with a disability of their own. Service dogs rely heavily on their senses (sight, hearing, smell and at times touch) in order to work and assist their handlers appropriately. So, when you distract a service dog, they are no longer able to perform the tasks they need to. So next time you see a service dog team, please do not make any sounds toward the dog and handler and do not try to pet a working dog. It is rude and very dangerous for the handler if you do. You should also never touch an animal you don’t personally know or don’t have permission to touch. We are not a walking petting zoo. Please respect us as a team and allow us to go on with our day. For more information about service animals: Frequently Asked Questions About Service Animals and the ADA U.S. Department of Justice: Service Animals Service Dog Central Disclaimer from the author: The breed shown in this article is not normally trained for service dog work due to their natural instincts. The author of the article has over 10 years of canine training experience and understands canine body language and behavior. Choose the dog breed based on your disability(ies) and your needs, not on the look of the dog. The dogs in the article were chosen based on the author’s needs, not looks. This article does not back any trainers or organizations; all information provided is to educate about service dogs. Follow this journey on Liz’s blog.

Liz Bernstein

When People Say 'You Don't Look Autistic'

“You don’t look autistic.” This is a common statement I hear if I ever tell someone my diagnosis. I use a service dog for my autism and severe migraines, and I am currently training his successor. So people are always curious as to why someone who can walk, speak and seems perfectly “fine,” uses a service dog. Most people assume I am training them for someone else in more “need.” While it is no one’s business, it is a common question. Service dogs are trained to mitigate multiple different disabilities. Many are visible and many are invisible. Having one or the other or even both doesn’t make us any less disabled. Just because you can’t see my autism, doesn’t make me not disabled. My neurological conditions don’t have a “look.” Autism doesn’t have a specific “look.” It doesn’t usually affect an individual’s physical features. Autism can have physical manifestations, such as motor-skill delays and balance issues. I personally have balance and gastric issues connected to my autism. But even those aren’t “visible” to the untrained individual. Autism is a part of everything I do. It’s a part of me. I can’t turn it on and off at will. Autism partially makes me who I am, but that doesn’t mean I should be singled out or treated differently. And I honestly prefer to be treated as everyone else. Is this too much to ask? Apparently in the United States, it is quite a bit to ask for. There are autism stigmas everywhere. I believe the new “Sesame Street” character, Julia, even empowers the stereotypes and stigma about how autistics should act. We are all individuals and cannot be stuffed into a tiny box of absolutes. We should be treated as individuals and respected as such. The stigmas hurt us more than they help us. Every fellow autistic I know and have come into contact with wants to be an individual. They also have strong voices of their own, and they want to be heard. Does this mean every autistic is like this? No, but the adult ones I have met are. So, the moral of this post is basically to think before responding to someone’s diagnosis. Saying something like, “You don’t look autistic,” is rude and assuming. Don’t put us in a small box. It isn’t easy for many of us to open up to people. Please don’t make our lives harder with assumptions. Let us spread our wings and be ourselves. Follow this journey on Liz’s Life, Aspergers, Gluten Free and Raw Fed Aussies. The Mighty is asking the following: What’s one thing people might not know about your experience with disability and/or disease, and what would you say to teach them? If you’d like to participate, please send a blog post to community@themighty.com. Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Share Your Story page for more about our submission guidelines.