Evar

@lizard_prizm
Community Voices

SSRI withdrawal symptom remedies?

Anyone find anything that helps the itchiness or brain shakes cause by SSRI withdrawal? I am tapering down as the doctor recommended and it is really uncomfortable. #CheckInWithMe

4 people are talking about this
Community Voices

What’s your favorite comfort item?

<p>What’s your favorite comfort item?</p>
73 people are talking about this
Community Voices

What spell would your symptoms be from?

<p>What spell would your symptoms be from?</p>
2 people are talking about this
Community Voices

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4 people are talking about this
Community Voices

Searching for a diagnosis and treatment

I have all the symptoms of #PosturalOrthostaticTachycardiaSyndrome including the pulse rate spikes when I change position and frequent near-syncope. I just had a tilt table test and the doctor and cardiologist both said it’s not PoTS because my blood pressure is going down instead of staying the same. Now they are saying they might not be able to diagnose me with anything, I will just need to monitor and avoid my symptom triggers. This is what I have been doing for years and it is not good enough! I am so limited in my activities and work. I am feeling so discouraged. Any advice or helpful information out there? #Undiagnosed #MedicalZebra #AutonomicDysfunction #LivingWithPOTS

2 people are talking about this
Community Voices

Searching for a diagnosis and treatment

I have all the symptoms of #PosturalOrthostaticTachycardiaSyndrome including the pulse rate spikes when I change position and frequent near-syncope. I just had a tilt table test and the doctor and cardiologist both said it’s not PoTS because my blood pressure is going down instead of staying the same. Now they are saying they might not be able to diagnose me with anything, I will just need to monitor and avoid my symptom triggers. This is what I have been doing for years and it is not good enough! I am so limited in my activities and work. I am feeling so discouraged. Any advice or helpful information out there? #Undiagnosed #MedicalZebra #AutonomicDysfunction #LivingWithPOTS

2 people are talking about this
Community Voices

Which season impacts your fibromyalgia symptoms the most?

<p>Which season impacts your <a href="https://themighty.com/topic/fibromyalgia/?label=fibromyalgia" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce7f00553f33fe992ab1" data-name="fibromyalgia" title="fibromyalgia" target="_blank">fibromyalgia</a> symptoms the most?</p>
123 people are talking about this
Community Voices

How do I help others to understand?

Hello Friends,

Last night during virtual game night my friends started talking about the fear of getting long covid symptoms. I said that I know how difficult these symptoms can be from experience, since I likely have long covid as well as fibromyalgia, according to my doctors. Everyone was silent and eventually they moved on to talking about something else. I felt so triggered and alone. I know it's not because they don't care, but they don't know how to respond and they don't get what I'm going through. Later, some of them were complaining about work, and the others were able to sympathize and say things like, "I'm sorry. That sucks. That sounds really difficult. Hang in there!" I wished that I had gotten some response like that. I wonder if it's because my issues are too much or too confusing for them to empathize with.

I was wondering if others could relate or had any advice with how to communicate to friends and family what's really going on with me regarding chronic illness/disability stuff. So far, it's taken a lot of explaining to give a few close friends even the smallest shred of understanding, and it's very emotionally exhausting to share in this way.

Thanks for being here and letting me share my experience!

3 people are talking about this
Community Voices

morning struggles

<p>morning struggles</p>
5 people are talking about this
Community Voices

So tired of the pain

I dont want to be here anymore. I'm tired of the pain, stigma, and feelings inside me. Everyone would be so much better off without me. #dontwanttolive

1 person is talking about this