Madalynn

@madalynann
Hi I’m madalyn, I’m 23 and I’ve been diagnosed with chiari malformation, Ehlers Danlos Syndrome, postural orthostatic tachycardia syndrome, Syringomyelia, CFS, Mass cell activation syndrome, tethered cord syndrome, gastroparesis, scoliosis, kyphosis, and intractable chronic pain.
Community Voices
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Test result Tuesday #SpoonieProblems

<p>Test result Tuesday <a class="tm-topic-link ugc-topic" title="spoonie problems" href="/topic/spoonie-problems/" data-id="5b23ceba00553f33fe99d163" data-name="spoonie problems" aria-label="hashtag spoonie problems">#SpoonieProblems</a> </p>
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What’s on your wishlist?

<p>What’s on your wishlist?</p>
9 people are talking about this
Community Voices

What’s on your wishlist?

<p>What’s on your wishlist?</p>
9 people are talking about this
Community Voices

<p></p>
8 people are talking about this
Community Voices

Test result Tuesday #SpoonieProblems

<p>Test result Tuesday <a class="tm-topic-link ugc-topic" title="spoonie problems" href="/topic/spoonie-problems/" data-id="5b23ceba00553f33fe99d163" data-name="spoonie problems" aria-label="hashtag spoonie problems">#SpoonieProblems</a> </p>
9 people are talking about this
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New appointment with a gastrointestinal doctor that I haven’t seen yet. I’ve been Diagnosed with gastroparesis, but due to the coronavirus, I have not been able to see this doctor because of the fact that he is four hours away, nervous to go see this new doctor especially because the plan with my doctor last time was to get G/J tube placed, any tips for moving forward with this or just talking to a new Gastro doctor would be greatly appreciated