NotSoCrazyCatLady

@notsocrazycatlady
Hi! I'm here because I'm looking for a way to regain some control over a life that has felt anything but my own. I've dealt with chronic illness from the time I was an adolescent. Sadly, my multitude of complex symptoms were dismissed and written off as anxiety for years. Despite pleading with doctors to listen to me as I presented with more and more debilitating symptoms, I was put on psychotropic medications - despite having no family history of mental illness or trauma. This, combined with the fact that I showed no response, and in fact, felt worse on psychiatric meds somehow was not enough for a single physician out of the hundreds I saw to consider that MAYBE, just maybe, I wasn't mentally ill (where's Dr. House and the differential diagnosis board when you need him?!). Hence, my username. While I am a proud cat lady, I refuse to be told my very real conditions are "in my head" any longer. I think it is an abomination that in this era of modern medicine, so many chronically ill women are being treated as if it's the 19th century and they're hysterical. As a result of this abhorrent mistreatment, I have missed out on the entirety of my adolescence, young adulthood, and a good portion of adulthood (this was partially due to having thyroid cancer at age 17). I am only now beginning to simultaneously unravel and connect all of my medical conditions together to better understand what is, and has been happening to me for most of my life. Unfortunately, the years of missed diagnoses in favor of labeling me mentally ill have taken a toll on my body. A new rheumatologist recently theorized that I've had Lupus or a similar condition since childhood, and now I'm chronic. Because of my autonomic nervous system disorder (probably triggered by this childhood autoimmune disease), I cannot tolerate most medications - this means I likely will not be able to take the immunomodulating medications my body needs. It is this reality that has brought me to a place of profound grief, despair, existential crisis, therapy, and this website. It is hard not to think of how different my life might be if I were put on Plaquenil instead of Prozac, or a steroid instead of benzodiazepines. While I might not be able to undo the years of disservice from the medical community, perhaps I can connect with those who have a similar story, and we can heal together.
Community Voices

I'm New Here!

<p>I'm New Here!</p>
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Community Voices

I'm New Here!

<p>I'm New Here!</p>
8 people are talking about this