I want to be more involved in the rare disease community we belong too.
Community Voices

I'm new here!

Hi, my name is Plurbaybee. I'm here because I have a rare disease called Wildervank Syndrome, I am also the parent of a child with a rare disease called Cornelia de Lange syndrome. His nickname on social media is Warrior Bee. We are here to raise awareness, to spread joy, and help people grow in their understanding of rare disease.

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