Rainbow Spoonie

@rainbowspoonie
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When stress triggers your FND

The news has been so upsetting lately, one tragedy or dystopic thing after another, and as much as I try to avoid the bad news and other stress triggers, it’s impossible to avoid completely. I have hyperempathy too, which makes it so much worse. This week my FND has been flaring for the first time in a long while, and while it’s still mild compared to the symptoms some of you all deal with, it’s still upsetting.

The edges of my vision go fuzzy. I start slurring and stumbling over my words, having trouble even getting the words out. Even trying to type on my phone, I misspell the same word over and over. My hands shake and my limbs start going numb and getting weak. I have micro blackouts where I stop suddenly and my eyes close involuntarily. My senses go haywire and everything is too much and I just want to fast forward to bedtime so I can lie in the dark and silence.

It’s debilitating and stressful (which triggers even more symptoms). My usual self care routine just doesn’t cut it during flares like these.

Does anyone have any tips for coping when symptoms like mine get out of hand?

TIA

#FunctionalNeurologicalDisorder
#FunctionalNeurologicalDisorder #FND

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Alathia Hayes

20 Things People With Fibromyalgia Need on a Bad Day

As a woman living with fibromyalgia, I have found one of the greatest resources I have for managing my illness is other fibromyalgia warriors. The depth of knowledge and experience we can share with one another is a powerful tool. What works for you may not work for everyone, but I think we all have something we can learn from each other. We recently asked our Mighty readers with fibromyalgia what they need on a bad day. Maybe you have fibromyalgia yourself and are looking for new ideas to help manage your pain. Or maybe you’re trying to understand the needs of someone you love who has fibromyalgia. Either way, I think you’ll find these answers to be helpful in building community and understanding around fibromyalgia. Here’s what fellow fibro warriors need on a bad day: 1. “I need empathy, compassion and understanding. I need for other people to recognize my pain.” — Renée S. 2. “A mountain of pillows is necessary.” — Katrina J. 3. “Understanding and compassion. Also comfy clothes and something to take my mind off my symptoms (a book, film, game — whatever I can manage).” — Sharice H. 4. “My bed and my cats.” — Ashley T. 5. “I’ve found that ice packs, lots of pillows and the support my husband gives me helps a lot.” — Liz T. 6. “Heat! Whether it’s a bath or a hot water bottle. I find somewhere comfortable to lie down, like my bed or my couch, so I can curl up and try my best to relax my body and not stiffen up.” — Eden S. 7. “Compassion, especially if I have to cancel plans.” — Anne M. 8. “Removal of as much external stimuli as possible. Silence, darkness, solitude.” — Gabrielle M. 9. “Wheelchair and shower chair.” — Paula R. 10. “I need to listen to classical music to allow my mind to drift away from the pain.” — Pamela J. 11. “I use an acupressure mat and pillow. The initial pain is then followed by warmth and comfort.” — Cathy W. 12. “Ice, peppermint, fuzzy socks, mindless shows, stuffed animals and understanding.” — Leslie M. 13. “Comfy clothes, a weighted blanket and Netflix!” — Eloise K. 14. “On a really bad day, I stay in comfy lightweight cotton pj’s and soft fleece blankets. If I have the energy, I take epsom salt baths.” — Jorie P. 15. “Chocolate.” — Donna B. 16. “Empathy, compassion and ice cream.” — Tiffany H. 17. “My bed and prayer.” — Kathy M. 18. “Validation!” — Deb W. 19. “Elastic waist band pants, and someone to cook for me while reminding me I’m not a loser. And lots of water!” — Mel K. 20. “Kindness. That is all.” — Patricia W. What would you add? Let me know in the comments below. To see more from Alathia, visit alathiahayes.com

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What's your favorite finger food?

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