SheahM

@sheahm
Community Voices

Virus vs flare up

Hi,
Only got diagnosed a few weeks ago but I was assessed and diagnosed within 20mins of meeting my new doctor. My question is, do you get a huge flare up when you catch a virus?
I got a sinus type virus last week and within 2 days I could barely walk or move without crying in pain. My ankles/wrists/fingers were sore/swollen and my hips were at a level of pain I have never experienced before. I have 7 multilevel herniated discs in my spine and this causes sciatica, but this was a whole new level for me. I have noticed that my flares have been getting worse over last 2 years, hence chasing a diagnosis.

5 people are talking about this
Community Voices

How has your illness effected your confidence?

<p>How has your illness effected your confidence?</p>
Community Voices

Feeling Better with PAXLOVID?

I’ve been very symptomatic for a few days but after just 3 doses of Paxlovid, the fog has lifted! Anyone else?

5 people are talking about this
Community Voices

Feeling better after Paxlovid!

Does anyone else have experience with feeling great soon after taking Paxlovid?

I’ve taken just 3 doses and I feel so much better!

Community Voices

Feeling Better with PAXLOVID?

I’ve been very symptomatic for a few days but after just 3 doses of Paxlovid, the fog has lifted! Anyone else?

5 people are talking about this
Community Voices

Comobilities

After getting diagnosed with POTS last year, I thought that was going to be the end of the mystery of why I feel so sick. But, just as life happens to unfold, this was indeed not the end.

Once I started treatment, things got a bit better. I could work again and I was only fainting a few times a week, if that.

However, recently, things have gotten worst than ever. I'm back to fainting multiple times a day, except this time it has left me almost completely bed bound. I lost my job, my hobbies, my ability to even shower without someone close by.

It's been hard.

But even worst is I am having bad abdominal pain, constipation, vomiting episodes, and more GI tract symptoms which I've never had before.

I heard that POTS has many comobilities, and I fear that this might be one developing.

I am trying to hold out and change my lifestyle but as the days get worst I fear I may have to go seek urgent help.

What is everyone else's experience with POTS' comobilities, if any? And how long did they take to manifest?#POTS

5 people are talking about this
Community Voices

what do you guys do to ease respiratory symptoms like a heavy chest feeling and need to cough?

10 people are talking about this
Community Voices
6464

Loss of hearing upon standing

I was wondering about this symptom. I do not feel like I about to faint I just lose my hearing for a short while and then it slowly returns. I am fighting with several of my doctors about my Pots . It is extra tough as a male

8 people are talking about this
Community Voices

How has EDS affected your personal relationships?

<p>How has <a href="https://themighty.com/topic/ehlers-danlos-syndrome/?label=EDS" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce7a00553f33fe991e01" data-name="EDS" title="EDS" target="_blank">EDS</a> affected your personal <a href="https://themighty.com/topic/relationships/?label=relationships" class="tm-embed-link  tm-autolink health-map" data-id="5b23ceb100553f33fe99b6a2" data-name="relationships" title="relationships" target="_blank">relationships</a>?<br></p>
36 people are talking about this
Community Voices

How has EDS affected your personal relationships?

<p>How has <a href="https://themighty.com/topic/ehlers-danlos-syndrome/?label=EDS" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce7a00553f33fe991e01" data-name="EDS" title="EDS" target="_blank">EDS</a> affected your personal <a href="https://themighty.com/topic/relationships/?label=relationships" class="tm-embed-link  tm-autolink health-map" data-id="5b23ceb100553f33fe99b6a2" data-name="relationships" title="relationships" target="_blank">relationships</a>?<br></p>
36 people are talking about this