Community Voices


I’m not all sure how this works so I thought I’d just introduce myself first.
My name is Matt and I’ve had multiple sclerosis for a very long time and for various reasons I have only ever taken one DMD and only for a short period of time. As usual I’m trying my best to give some information about my life and situation but don’t want to come across and needy or in search of sympathy but im sure you all understand and as usual only fellow MSers will understand anyone it.
I have a habit of rambling on a bit 🙄😆 but when it starts to come out it really comes out. I was diagnosed with MS aged 40 but it appears I’ve very likely had since at least 19 when I was diagnosed with optic neuritis, I had no idea what that meant and neither did anyone else it seems but at least I was in blissful ignorance for the next 20 years and wasa fairly normal bodied person with the odd issue that I always blew off.
Fast forward to the age of 34 and my wife passed from cancer which obviously had a huge impact on my then undiagnosed MS but as always happens I learned to live with it as much as I good and now I was left with two children to care for aged 34, I didn’t have a clue, I had given up my job six month earlier to look after my wife which ended up the best thing I could have done because we got to spend a solid six months together fully in every way and it was priceless.
Then after a reasonably short time I met someone online and of course they lived across the pond in America. Ff again and I moved to the states and married this woman. Life just went on as we raised out respective kids together until I had my MS diagnosis and that’s when she decided she wanted a divorce Wichita was devastating to me as I had nothing, she was a successful lawyer and I was a handyman that couldn’t use his arm which was totally numb and stayed that way for 8 month and thank the lord I recovered most of its use back. I started to drive Uber lyft to make a living , my car got written off in a pretty bad accident and I also had health issues following it .
Ff again and I met another lady who I absolutely worshiped but in known to me she was a meth addict who after about 4 years into our relationship she killed herself. Again I was devistated and I was also evicted from the apartment we lived in so now I was also homeless walking on a walker with nowhere to go. I’ve been living where I can ever since then in friends garages etc. I hope this doesn’t sound to whiny or needy I just get carried away and I guess this is a kind of Theropy.
I’m trying to write this in stages so that I don’t repeat myself which is always a possibility.
I get terrible (cogfog) as I call it and can completely forget what’s going on or been said I’m not even sure this post will make any sense and I’m also sure I’ve probably missed things but there ya go, that’s me.
Hi everyone, it’s nice to meet you all and I hope this post is ok🙏

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