Suzanne Wilders

@suzannewilders
I have fibromyalgia and am interested in how others live their life with this condition
Community Voices

Seeking personal experience information from anyone with Endometrial Hyperplasia…..

I’ve been doing slot of thinking about previous things drs have said to me and my symptoms of my chronic lower abdominal pain. After googling I came across Endometrial Hyperplasia and would like to know more about it from those who actually have the condition so I can see whether it might be something to suggest to the drs to consider. #ChronicIllness #ChronicPain

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Community Voices

Day 19 4 week challenge

Day 19 week 3

Woke up feeling sad. It’s my mother-in-law’s memorial service today. I am going to think about her all day today. I remember her getting all dressed up to go out for the evening and putting on all her jewellery. She loved going out. I felt a little more motivated than usual and started editing my book. Felt good. Less foggy today.

Breakfast

2 ginger biscuits and apple

Snack

A small avocado on 2 rice cakes plus chia seeds

Lunch

Squash soup with 2 crackers

Snack

12 almonds

Dinner

Fish and broccoli, green beans and broad beans.

Exercise: 1 hour dog walk

Pain level after walk: Achy Level 4

Energy level: 5

Weight: 14 stone 7 lb

Sleep: 86% 1hr deep

Weather: cloudy warm

Catherine

3 Myths About Living With Fibromyalgia -- Debunked

Fibromyalgia is a complex condition characterized by chronic widespread pain and fatigue. As it’s a hidden disability, friends/family/colleagues often know little or nothing about it — it’s entirely up to the individual how much they let show. This can lead to some serious misunderstanding and labeling of people with fibromyalgia as lazy, unreliable, or miserable. As a 27-year-old who has lived with fibromyalgia for five years now, here are three things I would like you to know to debunk those myths: 1) If I have to cancel plans, I don’t take that lightly. Every minute of every day, my body is giving me a reason to go home and curl up in bed. That means that every time I’m not doing that, I’m fighting it. When you see me at a café with a friend, at work, or in the supermarket, I could be battling against heaviness in my body, irritation caused by my clothes, backache from the chair I’m using, or fatigue tempting my eyes to close. My condition has caused me to persist with daily life through the type of pain and exhaustion that would ordinarily warrant a sick day. With this in mind, please know that when I do have to cancel plans with you or take a day off work, I really mean it. It might be that my pain is particularly bad that day and I don’t feel physically able to get out. Perhaps I know I have a busy week at work coming up and I want to preserve my strength and energy for that. Maybe I’ve just been pushing through for a while now and I need a moment to stop and give the pain and fatigue the rest it craves. Whatever the reason, you need to know that I value our plans, and canceling is a painstaking decision for me. 2) I still want to hear from you. I can vividly remember sitting in a café with a friend while she poured her heart out about the difficult circumstances she had been in for the previous few weeks. Responding to her visible emotion, I asked her, “Why didn’t you tell me about this while it was happening? I could’ve helped!” Her response caused my heart to sink – “I know you’ve been in pain and I didn’t want to bother you.” Friends, family, colleagues, and even strangers — the last thing I want you to believe is that I don’t have the capacity for you. My physical abilities might be limited sometimes, and I may feel overwhelmed, but I always value knowing what’s going on with you. I want to hear when you don’t feel well or you’re in pain without you comparing it to mine or worrying that it’s trivial. Even if I can’t physically see you, I can always text or call, and nothing makes me happier than hearing from you. 3) Don’t wrap me in cotton wool. Honestly, living in constant pain is the most confusing thing for your emotions! There are days where I go from feeling like a powerful pain-themed superhero who is going to take on the world and tackle ableism to being a hollow weepy mess in the space of about half an hour. The important thing to know is that I’ve become very experienced at managing my pain and my emotions. It’s not helpful to automatically exclude me from something that you don’t think I’ll physically manage, or to avoid conversations about my pain in case they upset me. Give me the choice — extend the invitation anyway and ask me how I’m feeling. If I want to laugh about my illness (like the time I had to leave the house with my hair half-straightened because my arms ran out of steam halfway through), please laugh with me! This is part of who I am, and I don’t want it to be feared.

Community Voices

Down the mental rabbit hole

Hi all, I am new to this group. I am really struggling today. I have been on leave from my teaching job for 2 years now. My old school is closing and I need to pack up my classroom. I am suppose to try and go back to work part time in the fall - if I don't I will lose my contract. The last few days have been really high pain days for me and my brain fog has been brutal. On my good days I feel like I could be okay to go back, I really miss teaching- on days like today I wonder what I am thinking. Of course it doesn't help that I feel guilty and stupid for not being able to convince my brain that it is over reacting and that my body isn't in real danger. It feels so stupid to be suffering as much as I am and to be told over and over that it is just my brain over reacting to non dangerous stimulus. #CheckInWithMe #ChronicPain #Teacher

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Community Voices

Day 18 of a 4 week challenge

Its getting difficult now. I am on day 18 of a 4 week challenge to eat a restrictive diet to help alleviate my fibromyalgia symptoms. I have only had a few hiccups i.e. on jacket potato and a bit of a tortilla when out with family and friends. Unfortunately my diet is no vegan but no dairy and no gluten plus no nightshades. There is a lot I can eat but eating out is definitely challenging. I would love a cheer. #livingthelife#

4 people are talking about this
Community Voices

Day 18 4 week challenge

Day 18 3rd week

Woke up earlier than usual. Felt good until didn’t take medicine at 1 pm. Downhill after that. Felt achy rest of day even though I did take it.

Breakfast

Oatmeal, coconut milk and strawberries

Snack

apple

Lunch

Roast vegetable salad with pesto.

Snack

Apple and 2 rice cakes plus hummus

Dinner

Fish and spinach

Exercise: 1 hour dog walk

Pain level after walk: Achy Level 4 then 7

Energy level: 5 then 3

Weight: 14 stone 8 lb

Sleep: 80% 34m

Weather: sunny then rainy

Community Voices

Day 16 and 17 4 Week Challenge

Day 16 3rd week

Feeling much better today. A bit anxious as I am going out to dinner. It will be interesting if I eat anything out of plan if it affects me. Rebecca ill so stayed in with her most of the day. Have run out of hummus. Need to buy some chickpeas as I am missing this snack.

Breakfast

Anti oxidant drink

Snack

4 nairn ginger oat biscuits

Lunch

Hummus and rice crackers

Snack

12 almonds

Dinner

Chicken salad plus a little bit of tortilla

Exercise: 1 hour dog walk

Pain level after walk: Achy Level

Energy level: 4

Weight: 14 stone 8 lb

Sleep: 82% 43m deep

Weather: sunny

Day 17 3rd week

Woke up feeling good. Pain less than usual. Was a little constipated but all ok in the pm. Drink lots of liquid which must have helped. Had night shade vegetables but only a little and some tortilla last night again only a little. Back on track today.

Breakfast

Antioxident drink

Snack

3 nairn ginger biscuits

Lunch

Avocado and quinoa salad

Snack

apple

Dinner

Mint and courgette soup

Exercise: 1 hour dog walk

Pain level after walk: Achy Level 4

Energy level: 5

Weight: 14 stone 8 lb

Sleep: 82% 43m deep

Weather: hot.

Community Voices

Feeling better

<p>Feeling better</p>
Community Voices

Day 16. 4 week challenge

<p>Day 16. 4 week challenge</p>
Community Voices

Days 14 and 15 4 week challenge

Day 14

The weather has changed and is sunny again in patches. Are going to visit friends in Surrey which is a 2-hour drive. Going rogue today as it is impossible to keep on plan but will try to keep to food list. Met friends in gardens. There were sandwiches and jacket potatoes so had to go off plan. Not happy. Still only one meal.

Breakfast

Antioxident drink

Snack

Quinoa and walnut bar

Lunch

Baked potato and veg chilli (off plan)

Snack

apple

Dinner

Chicken plus beans

Exercise: 2 hour walk round Wisley Gardens

Pain level after walk: Achy Level 4

Energy level: 5

Weight: 14 stone 7 lb

Sleep: 86% 1 hour 17m

Weather: 1 hour mainly sunny

Day 15 3rd week

Woke up feeling good. Pain ok. Rushed home to walk dogs. Back home so ate on plan. Digestion system brilliant. Half way through. Pain levels pretty much the same. Arthritis pains too. However the big bonus is that my digestion system is now brilliant. Before went number 2 every 5 days now every day or 2 days.

Breakfast

Oatmeal breakfast

Snack

Humus/avocado plus crackers

Lunch

Fish salad

Snack

apple

Dinner

Fish salad (swap)

Exercise: 1 hour dog walk

Pain level after walk: Achy Level 5

Energy level: 5

Weight: 14 stone 8 lb

Sleep: 80% 50m deep (different bed

Weather: 1 hour rainy.