Suzystarbuck74

@suzystarbuck74
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IIH

I have been diagnosed with IIH (idiopathic intercranial hypertension) there is to much pressure on my brain. They dont know why which is why its called idiopathic. I had a cerbal venos stent place in my brain in February. My headaches were better for 2 months now they are back to what they were when i started. Excrutiating pain, (i would have 5 babies instead of this pain) my doctor wants to treat it as migraines and im telling you this is not migraines..they did a spinal tap and found raised pressure still after the stint. No shit sherlock!! I am starting another water pill. Which sucks! And just having a hard time functioning and not relapsing. I find it very hard because i have nothing dor pain except these injections i go to get. They help for 12 hours but i also in a way "crave" them because it kills the pain. I have been dealing with this for 6 years constantly in pain. I have a very high pain tolerance but the headaches now are taking me down and out for the count. Somedays i feel like it would be better just to let go. But at the same time i cant do that because I have kids and couldn't do that to them or my husband. He has been my strength through all this. Tomorrow i start a new pill...again! To try and help. Idk what im trying to gain by telling you all this...maybe i just need to vent. All I want to do is sleep and kill the pain. I'm very scared about relapsing and also can't help but wonder if what i use to do is now considered as "karma" now??? This diaghas also given me memory problems. I have also been told there are abnormalities in my ways of thinking so now i go in for more testing because of that. Im tired....im tired of being poked with needles, im tired of being told what this is not... im tired of hearing well we could do this. Fucking fix me please just fix me. I lride my self on always being different but just this once I want to be "normal" i am tired of being in chronic pain. Im tired of being knocked out from injections. Im tired of going to the fucking doctors. Im scared. Im depressed. Im tired. If you read this all the way through thank you and I appreciate you!! Thank you for reading my venting session.
#Migraine

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Have just recovered from Covid. It was very similar to a fibromyalgia flare up. I had the fog, the aches and pains, the fatigue. The only real difference was the cold and cough.
#Fibromyalgia

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