Teenie27

@teenie27
Lupus Warrior Nurse Rescue Mom x2
Community Voices
Community Voices
Community Voices

Hugs

It’s been a hot minute since I’ve been on here; work has been busy! I just wanted to wish everyone a Happy Thanksgiving and hope you all stay strong!

I am so happy to have a community like you all, because the truth is no one will ever truly understand Lupus but us.

XOXO

Community Voices

Starting to think more long term

Im 16 and I got diagnosed with Lupus a year ago this month. I got back from a doctor's appointment yesterday and they said everything was going great! I'm so happy not to be I'm and out of the hospital but I'm starting to think about how my life has been and will be changed. I'm constantly tired and my joints are crackly almost all the time. My friends don't really understand and I feel like I constantly have to explain to a new person why I can't quite do as much as other people. Everyone's been really supportive but I feel like no one around me really understands what I'm going through and how it will be like this forever. #Lupus #ChronicPain #ChronicIllness

3 people are talking about this
Community Voices

What do you all eat for lunch and dinner?

I’m wondering if my veggie , lots of fruit and dried fruit , greens, nuts , yogurt, tofu, oats gluten free diet are giving me trouble with lupus. I use chlorophyll, green powders too. There’s other things but that enough.

9 people are talking about this
Community Voices

COVID Vaccine

<p><a href="https://themighty.com/topic/corona-virus-covid-19/?label=COVID" class="tm-embed-link  tm-autolink health-map" data-id="5e678dcff3e6f44cb2d93fd4" data-name="COVID" title="COVID" target="_blank">COVID</a> Vaccine</p>
6 people are talking about this
Community Voices

COVID Vaccine

<p><a href="https://themighty.com/topic/corona-virus-covid-19/?label=COVID" class="tm-embed-link  tm-autolink health-map" data-id="5e678dcff3e6f44cb2d93fd4" data-name="COVID" title="COVID" target="_blank">COVID</a> Vaccine</p>
6 people are talking about this
Community Voices

Remembering feeling "normal"

I was diagnosed with Lupus and RA 16 years ago. I am very fortunate in receiving my diagnosis at the onset of symptoms due to family history and have been able to manage it with meds. But, I sometimes say to myself, I don't remember anymore what "normal" is (or actually was).

I always laugh when I go to see my Rheumatologist and they want me to rate my pain on a scale and ease of daily activities of 1 - 10. I mean, compared to what? When I felt "normal" 16 years ago, or compared to when I had my last flare or just the everyday of waking up and wondering when I get out of bed how tired will I be today? How much will my feet and hands hurt? My usual response is 5...its the easiest answer.

I have embraced this autoimmune disease life with open arms and don't let it define who I am, but there are still days that I wish I felt or even remembered what "normal" was #Lupus #RheumatoidArthritis #spoonielife

7 people are talking about this
Community Voices

What a difference!

<p>What a difference!</p>