Tessa Yu

I am a teenager who swims competitively, whilst managing chronic illnesses. Other passions include teaching and generally helping others. My chronic illness journey began a long time ago, with years of what I thought was normal prior to my diagnoses, but I am learning to find myself again.
Community Voices

Advocating for your health

My coaches think I need to advocate for my health as I keep getting pushed around by doctors and physios and not getting answers just paying money. But how do you do this? I want to be tested for cervical instability as I have a lot of symptoms of it and also am hyper mobile with atrophic scarring and fragile skin but I don’t want to come off as a hypochondriac which is what I feel the dr and physio were saying. Any tips? Please as I don’t know what to do anymore

Community Voices

Hyper mobile taping

Hi so I have been having issues lately with my hyper mobile and weak joints giving way- most notably developing post concussion syndrome from my wrist collapsing whilst I was lifting weights. Anyway how do you find is best to tape wrists specifically but also back for hypermobility- one wrist just for stability and the other is to almost immobilise it as it is quite painful. Thx x

Community Voices

#Concussion with hypermobility or #EhlersDanlosSyndrome

Have any of you struggled to explain your symptoms because of your very different normal? I wrestle now. My hypermobilty has been like a superpower except when it's not, like when my ankle popped or the times my head touched my back. But 2 days ago a "normal" wrestling injury happened, a concussion. I got thrown onto my head and bounced back into my opponents head. Mild concussion. It was hard to explain that yes I'm dizzy but no more than my "normal". That my neck hurts but that's my normal. Do concussions affect us differently? Have any of you had one? #POTS #EDS

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Community Voices

I have started schooling In Behavioural Intervention.
I wanted to be able to do this beacouse i never really got the help i needed, i want to help kids learn and be the best person they can be. But
I've been just getting so frustrated with myself, this online learning is really showing major difficulties for me. Honestley, i feel like i should not be doing this at times. I really am just lost.

i KNOW there is acessibility services, and such but it is still primary all online. Is there any way i can learn more profficiantly? Or are there tests out there that can help me?

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Community Voices

Handling pain #Hyperacusis #Migraine

What are your tips on handling pain? I have nerve damage in my ear causing severe hyperacusis and it means when I have too much noise I get poor motor control (exacerbated by my #Hypermobility ), migraines (with auras and tinnitus) and debilitating fatigue. I just want to feel normal and am sick of being told it’s my anxiety

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Community Voices

I wish others would listen to me when I say...

<p>I wish others would listen to me when I say...</p>
239 people are talking about this
Community Voices

I always feel better when someone...

<p>I always feel better when someone...</p>
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Community Voices

What symptom is “loudest” for you today?

<p>What symptom is “loudest” for you today?</p>
477 people are talking about this
Erin Migdol

16 Movies That Can Cause Illness Flare-Ups

After “Incredibles 2” hit theaters last weekend, moviegoers were quick to point out that the strobe lights that are featured prominently in the film can cause flare-ups for people with health conditions like epilepsy, migraine and other chronic illnesses. And as anyone who’s ever seen a movie (particularly an action movie) knows, there are many ways a movie can trigger health issues, due to things like flashing lights, certain sounds, loud volume, shaky or spinning camera or fast onscreen movement. Sometimes a movie will have a “trigger warning” posted outside the theater, but sometimes (as was the case with “Incredibles 2” until Disney asked theaters to post warnings), moviegoers won’t know a film could trigger their health condition until they’re in the theater, experiencing the movie for themselves. In those cases, the chronic illness community can help each other out by sharing which movies they would have appreciated a heads-up about before watching. So we asked our chronic illness community to share a movie that caused a flare-up of their health condition. Be sure to add any more suggestions of movies to watch out for in the comments. 1. “The Blair Witch Project” Photo via Facebook “‘Blair Witch Project’ or anything that is made to look like home video. The bouncing around is absolutely nauseating.” — HMarie HC “‘Paranormal Activity,’ ‘Blair Witch.’ Any film filmed with a handheld camera.” — Gillian R. 2. “Jurassic Park” Photo via Facebook “Any of the Jurassic Park films in a big cinema. The T-rex roar has just the right bass to set my POTS off at a certain volume. I still keep going to see them rather than waiting, though, as I love the films.” — Marie S. 3. “Saving Private Ryan” photo via Facebook “ I was ill for days after watching Saving Private Ryan on a 42″ television. I have a balance and vision disorder. I have been too ill to go to the cinema for 10 years.” — Jo I. 4. “Baby Driver” photo via Facebook “‘Baby Driver,’ awesome movie but gave me a massive idiopathic intracranial hypertension (IIH) flare because of the high pitched noises representing tinnitus.” — Kirsten B. 5. “Transformers” photo via Facebook “Transformer movies have too much going on for me to watch, at least during the fight scenes. So much detail and movement.” — Jennifer S. 6. “Man on Fire” photo via Facebook “‘Man On Fire’ sets off my vertigo so bad I’ve never been able to watch the whole thing.” — Rachel S. 7. Anything in 3D Photo via Getty “I can’t watch anything in 3D. I wear glasses for distance vision and am a hemiplegic migraine sufferer. Combine that with two-hours-plus of wearing 3D glasses in a big cinema and my head explodes.” — Katherine P. “I can’t watch any 3D movie. They all make me dizzy and nauseous and cause an awful headache.” — Colleen K. 8. “Wanted” photo via Facebook “‘Wanted’ with Angelina Jolie and James McAvoy… every time his ‘panic’ sends him into the rapid heartbeat, strobe effect I have to walk away. But seeing it in the cinema was torture.” — Brooke T. 9. “Doctor Strange” “‘Doctor Strange!’ I have Meniere’s disease and all the flipping and flopping and spinning… Absolute pure misery.” — Arianne L. “‘Doctor Strange.’ The heavy visual effects felt close to triggering a migraine for me, especially in 3D. I could absolutely see it being a serious issue for epilepsy or others with visual migraine triggers.” — Teresa W. 10. “Avatar” photo via Facebook “The first time I watched ‘Avatar’ I almost got sick in the theater. The flashing lights and loud sounds in that film really bothered me for some reason. One of the worst movie experiences ever, which was disappointing because I was having a night out with my family. I never watch that movie now. I was so dizzy and had to lean on my brother to leave the theater.” — Marley T. 11. “The Girl With the Dragon Tattoo” photo via Facebook “The opening sequence in ‘The Girl With the Dragon Tattoo.’ It didn’t bother me, but a dear friend of mine gets migraines triggered by lights like that. She was in so much pain the rest of the movie but didn’t want to leave.” — Elyse B. 12. “LaLa Land” photo via Facebook “‘LaLa Land’ got me bad in the theater. I was so sick. Triggered a tension headache that radiated down into my neck and shoulders, made me dizzy (dizzier than I already am 24/7) and nauseous. There are some horrendous loud noises in that movie.” — Ashley D. 13. “Spotlight” photo via Facebook “‘Spotlight’ was torture for my misophonia/sensory processing disorder. They must have used ultra-sensitive sound recording equipment because I could hear the actors opening their mouths and scratching their heads in excruciating detail.” — Kate R. 14. “Star Wars” photo via Facebook “All the Marvel movies and ‘Star Wars.’ They are so loud and the lights are so bright it actually caused me a panic attack once and I vomited right after that in the car from how hard it was, especially the fact it’s long movies and sitting down in the theater for that long is hard on me.” — Debora B. 15. “Moulin Rouge!” photo via Facebook “Moulin Rouge!’ All the spinning of the camera was enough to make me sick after not even 20 to 30 minutes of the movie. I had to turn it off. Definitely not a movie for someone who has or gets vertigo, or gets migraines.” — Mary-Anne M. 16. “Avengers: Infinity War” photo via Facebook “‘Infinity War’ with the rapid scene changes and action… I haven’t watched any of the the Thor movies because of the lightning flashes.” — Zee D.

Community Voices

Which symptom of your health condition is the most unpredictable?

<p>Which symptom of your health condition is the most unpredictable?</p>
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