Tierra Drollinger

@tierradrollinger23 | contributor
I have dealt with pain for 14 years already, passing the half-my-life-with-pain mark now being 26. It started with me being born with twisted leg bones followed by discovering this at the age of 13 after pain in my knees from my twisted bones grinding on them. 2 years later I had waist down reconstruction surgery. The left surgery went well. The right surgery did NOT. Epidural didn’t work (later finding out it was because of my Ehlers Danlos Syndrome) and my nerves were rewired from the extreme pain via my bones being broken and twisted to straighten them. I was diagnosed with Amplified Musculoskeletal Pain Syndrome (AMPS) which was full body-extremely rare. I learned to ignore the pain so I could try and live a normal life, but it got so bad my hands no longer would work from the excruciating pain. I barely made it to graduation, failing my last quarter of school. Luckily my ranking was 4th so I still graduated with extreme pain and with help from others who had to write for me. Pretty quickly I was bed-bound and dreaming of hospitalization so I could have strong medication to ease my molecular deep ache. Flash forward to 3 years later when I was miraculously healed over-night. I thought I was free and worked on gaining back all my muscles that were atrophied. But then my pain came back and began rising ever higher. I joined this site for freedom to express my struggle held deep inside for so long with a smile on my face and not even my family knowing what I went through. I never realized how glorious it was to be open and now I refuse to go back. My sense of peace demands to no longer have a fake smile on my face. I am now diagnosed with EDS, AMPS, Fibromyalgia, Hypothyroidism, Severe Insomnia, Asthma, Chronic Fatigue, and recently diagnosed with Lupus as well with a promise that I will soon cross the line and be diagnosed with Juvenile Arthritis. It is SO freeing to know that the reason for all of my pain is because of my many overlapping diagnoses. I am currently working on filing for disability and have lost my dream of Interior Design to keep me warm. Also dealing with blisters covering my scalp and making it ridiculously tender with serious GERD and acid reflux problems due to the EDS. Constantly focusing on not throwing up each second is my new normal. Swallowing 10 times per first swallow is becoming habit. Technically Miserable but still I will fight on, savoring each moment and smiling at each thing that lifts my burden a little. Life should be cherished, no matter how pain-filled. And with The Mighty at my ruined and failing finger-tips, I will carefully walk into the world with my shoulders back, face to the sun, and hope in my heart with a wish to lift a few fellow down-trodden. We got this!!!!
Community Voices

Write it out, post it where you will see it and never forget how WORTHY you are. 💕

<p>Write it out, post it where you will see it and never forget how WORTHY you are. 💕</p>
1 person is talking about this
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Community Voices

What do you do for self-care to prepare for a difficult day?

<p>What do you do for self-care to prepare for a difficult day?</p>
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<p>Such a terrible day!</p>
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THIS!
If you struggle with nausea and vomiting:this will help calm the raging sea inside you

<p>THIS!<br>If you struggle with nausea and vomiting:this will help calm the raging sea inside you</p>
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Even though He loves us with a perfect love He still has to follow what is best for us.

<p>Even though He loves us with a perfect love He still has to follow what is best for us.</p>
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SO proud of this pic! Lol

<p>SO proud of this pic! Lol</p>
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Some more artwork
Google consider the lilies. It is something I often do when I am really struggling with my lot in life.

<p>Some more artwork<br>Google consider the lilies. It is something I often do when I am really struggling with my lot in life.</p>
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Something a friend mentioned to me and it was EXACTLY what I needed to hear.

<p>Something a friend mentioned to me and it was EXACTLY what I needed to hear.</p>
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