BC

@towardseudaimonia
Community Voices

Lamictal and bad joint pain? Taking lamictal then Arthritis diagnosis?

#Epilepsy #Arthritis #ChronicPain #BipolarDisorder #Lamictal

Hi all, I’m sorry and I hope it is okay that I am using this to try to find if anyone else is having or has had a similar experience as me regarding potential drug side effects and chronic pain or inflammation or arthritis(?) caused by lamictal/lamotrigine.

I’m very confused and freaking out—I was diagnosed w psoriatic arthritis in June after years of increasingly bad joint and ligament pain (I didn’t have good insurance, so 4-5 years I dealt with it and other then telling my PCP never spoke w a specialist, of any kind, about it.) Around the same time I started experiencing severe knee pain (I was only 25) I also started Lamictal for bipolar, but I never wondered if they were related and after 6mo I was no longer seeing any specialist bc I had no insurance, just taking the meds on my own and getting thru what I could day by day pain wise (basically becoming a low key alcoholic for years).

Because of the recent arthritis diagnosis and worsening pain, through random research about arthritis this week I just started finding accounts from 2018 (epilepsy forum discussions) of other early 20’s and 30’s people who were on lamictal, started having disruptive joint pain and ended up going to Rheumatologists; some were then being diagnosed with arthritis and some say they were told lamictal played a role in the pain and inflammation and were taken off and after several months things got better. I have seen 8 doctors since June but none of them have said anything about a potential connection, and this week my Dr says I should start Humira at home for my arthritis pain (a pretty serious drug so I’d like to be pretty darn certain before taking it…)

Please reply if you know or think you know anything about what I’m talking about. I am waiting on doctors (second opinions and neurologists, and I can’t get in for weeks) and my pain has become some severe it is hard for me to work/use my hands/type; any anecdotal help will help me w research. Thank you!!

5 people are talking about this
Community Voices

Lamictal and bad joint pain? Taking lamictal then Arthritis diagnosis?

#Epilepsy #Arthritis #ChronicPain #BipolarDisorder #Lamictal

Hi all, I’m sorry and I hope it is okay that I am using this to try to find if anyone else is having or has had a similar experience as me regarding potential drug side effects and chronic pain or inflammation or arthritis(?) caused by lamictal/lamotrigine.

I’m very confused and freaking out—I was diagnosed w psoriatic arthritis in June after years of increasingly bad joint and ligament pain (I didn’t have good insurance, so 4-5 years I dealt with it and other then telling my PCP never spoke w a specialist, of any kind, about it.) Around the same time I started experiencing severe knee pain (I was only 25) I also started Lamictal for bipolar, but I never wondered if they were related and after 6mo I was no longer seeing any specialist bc I had no insurance, just taking the meds on my own and getting thru what I could day by day pain wise (basically becoming a low key alcoholic for years).

Because of the recent arthritis diagnosis and worsening pain, through random research about arthritis this week I just started finding accounts from 2018 (epilepsy forum discussions) of other early 20’s and 30’s people who were on lamictal, started having disruptive joint pain and ended up going to Rheumatologists; some were then being diagnosed with arthritis and some say they were told lamictal played a role in the pain and inflammation and were taken off and after several months things got better. I have seen 8 doctors since June but none of them have said anything about a potential connection, and this week my Dr says I should start Humira at home for my arthritis pain (a pretty serious drug so I’d like to be pretty darn certain before taking it…)

Please reply if you know or think you know anything about what I’m talking about. I am waiting on doctors (second opinions and neurologists, and I can’t get in for weeks) and my pain has become some severe it is hard for me to work/use my hands/type; any anecdotal help will help me w research. Thank you!!

5 people are talking about this
Community Voices

Lamictal and bad joint pain? Taking lamictal then Arthritis diagnosis?

#Epilepsy #Arthritis #ChronicPain #BipolarDisorder #Lamictal

Hi all, I’m sorry and I hope it is okay that I am using this to try to find if anyone else is having or has had a similar experience as me regarding potential drug side effects and chronic pain or inflammation or arthritis(?) caused by lamictal/lamotrigine.

I’m very confused and freaking out—I was diagnosed w psoriatic arthritis in June after years of increasingly bad joint and ligament pain (I didn’t have good insurance, so 4-5 years I dealt with it and other then telling my PCP never spoke w a specialist, of any kind, about it.) Around the same time I started experiencing severe knee pain (I was only 25) I also started Lamictal for bipolar, but I never wondered if they were related and after 6mo I was no longer seeing any specialist bc I had no insurance, just taking the meds on my own and getting thru what I could day by day pain wise (basically becoming a low key alcoholic for years).

Because of the recent arthritis diagnosis and worsening pain, through random research about arthritis this week I just started finding accounts from 2018 (epilepsy forum discussions) of other early 20’s and 30’s people who were on lamictal, started having disruptive joint pain and ended up going to Rheumatologists; some were then being diagnosed with arthritis and some say they were told lamictal played a role in the pain and inflammation and were taken off and after several months things got better. I have seen 8 doctors since June but none of them have said anything about a potential connection, and this week my Dr says I should start Humira at home for my arthritis pain (a pretty serious drug so I’d like to be pretty darn certain before taking it…)

Please reply if you know or think you know anything about what I’m talking about. I am waiting on doctors (second opinions and neurologists, and I can’t get in for weeks) and my pain has become some severe it is hard for me to work/use my hands/type; any anecdotal help will help me w research. Thank you!!

5 people are talking about this
Community Voices

Chronic illness diagnosis, how to cope with anger and negativity? #ChronicPain #Arthritis #AlcoholDependence

I am 31 and have had chronic undiagnosed pain for 5 years. 2 weeks ago I was diagnosed w psoriatic arthritis.

I used to drink a lot, probably every day, to temporarily relieve the pain and the anger—I felt like my chronic pain was robbing me of my life and like I was a more pleasant person a little drunk than sober.

Now, bc of a new rx my pain is significantly better some days, but I am still angry, even more so than before. I stopped drinking heavily in February, but as my anger and rage curdle from knowing this arthritis is lifelong I find myself wanting to drink to calm down. I’m holding back from drinking, but now I’m spewing my anger on family and a potential significant other. Some days I hate everything, want to trash my apartment and berate my mom and this almost boyfriend. What can I do w my anger? How do I calm down and release this toxic energy?

I’m seeing a therapist, starting PT, going to acupuncture, but does anyone have any more immediate ideas for channeling my rage?

Ideas and advice appreciated 🙏🏼

5 people are talking about this
Community Voices

Chronic illness diagnosis, how to cope with anger and negativity? #ChronicPain #Arthritis #AlcoholDependence

I am 31 and have had chronic undiagnosed pain for 5 years. 2 weeks ago I was diagnosed w psoriatic arthritis.

I used to drink a lot, probably every day, to temporarily relieve the pain and the anger—I felt like my chronic pain was robbing me of my life and like I was a more pleasant person a little drunk than sober.

Now, bc of a new rx my pain is significantly better some days, but I am still angry, even more so than before. I stopped drinking heavily in February, but as my anger and rage curdle from knowing this arthritis is lifelong I find myself wanting to drink to calm down. I’m holding back from drinking, but now I’m spewing my anger on family and a potential significant other. Some days I hate everything, want to trash my apartment and berate my mom and this almost boyfriend. What can I do w my anger? How do I calm down and release this toxic energy?

I’m seeing a therapist, starting PT, going to acupuncture, but does anyone have any more immediate ideas for channeling my rage?

Ideas and advice appreciated 🙏🏼

5 people are talking about this

What Is 'Toxic Positivity'?

There’s no denying that positivity can be powerful. I know when I’m struggling with anxiety and negative thoughts, if I can hold onto an ounce of hope — that I’ll make it through, that I’m not defined by my thoughts, that I’m not as bad as my brain is making me out to be — I can cope a little better. The positivity we hold within ourselves, when we can manage it, makes it a little easier to get by. That being said, perhaps counterintuitively, positivity isn’t always the best way to help others. You can’t make someone be positive. You can’t sprinkle positivity dust on them and make their problems go away. And honestly, when people are seeking help and support, they’re usually not looking for straight-up, inspirational poster positivity. More often, they’re looking for validation that their negative feelings are OK. I’ve always kind of known this, but didn’t think about it in a tangible way until I saw a graphic made by Whitney Hawkins Goodman, LMFT, owner of The Collaborative Counseling Center. She runs the Instagram account @sitwithwhit, and after she posted an image explaining “Toxic Positivity,” I started seeing it all over social media.   View this post on Instagram  Here are some positive sayings I found on Pinterest. Alone, they’re pretty benign. But for someone who is really struggling they can sting. I translated them into some different variations that I think still inspire hope, but are validating. What do you think?A post shared by whitney hawkins goodman lmft (@sitwithwhit) on Feb 1, 2019 at 7:55am PST The graphic shows the difference between supporting someone with validation and hope, and trying to support them with “toxic positivity.” According to Whitney, it’s the difference between, “This is hard… I believe in you,” and, “ Just be happy! ” If you could never pinpoint why simple “inspiring” quotes didn’t sit well with you, this could be the explanation. It reminds me of a popular animated video about empathy, which uses the words of Brené Brown. If sympathy is shouting down at someone while they’re stuck in a hole, empathy is getting into the hole with them. If “toxic positivity” is telling someone to just “look at the bright side,” support is putting yourself in someone’s shoes, and accepting their feelings for what they are. Of course, when we throw around phrases like, “Think positive,” or, “Stop being so negative,” we’re probably coming from a good place. You’re spreading these messages because you want people to be happier, damn it! So what’s wrong with reminding people to be positive? The hard-to-face truth is, supporting people isn’t about being “positive.” In fact, when you force positivity down someone’s throat, it can actually have the opposite effect. “Toxic positivity” can make people feel unsafe expressing their negativity, and negativity thrives in isolation. It can make people think there’s something wrong with them for not simply “choosing” happiness, and shame is negativity’s enabling best friend. When we’re supporting someone who’s hurting, we need to leave room for positivity to grow. And you don’t yell at a flower to “just” grow — you water it. In this case, you water it with listening, with validation, and with unconditional support. It’s OK to experience negative emotions, and with support, we can help people who are stuck in negativity find their own way out. Simply telling them to “be positive” doesn’t cut it. Thanks to Whitney for making this informative graphic! You can follow her on Instagram here. Join the conversation by answering the question below:

Community Voices

Do I just accept being miserable for a while?

I am writing this bc I have no one else right now. I am miserable. My distractions are all gone, in part bc I screwed up and was a trash person and got too drunk and in part bc I was with a narcissistic who said all the right things but never followed through. I’m trying to drink less, but without it I am always sad and I’m not fun bc I’m sad. I understand why people wouldn’t want to be around me, and it just feeds the already constant feeling of not being good enough. I think I should be stronger and have more willpower, I hate myself most days for not being able to see the light when so many others have it worse. I cry everyday and worry my coworkers will notice on a zoom call or worse that I’ll seem so sad and despondent that they’ll fire me. My cyclothymia has moved closer to full blown bi polar 2, I feel helpless. When you hit this place what do you do? Do you just cry every day and wait for it to finally get better? I am lost.

1 person is talking about this
Community Voices

Does anyone have a good teletherapy site they recommend to find an affordable ( #Therapy

I’m pretty desperate for a therapist, yet I’ve found looking for one very overwhelming. I have Beacon insurance thru MetroPlus NYC marketplace, but I did not find very many therapists that are in-network, and many had very long wait times for a first appointment if they were in network. I feel like I need to talk to someone ASAP before I do or say something that messes up my job or relationship (again hah) Any recommendations appreciated!! #CyclothymicDisorder #Depression #SubstanceMisuse #SubstanceAbuse

1 person is talking about this
Community Voices

I’m 30 yrs old and in constant pain, what could it be? Finally have insurance and wanted to talk to a doctor about it, where do I start? #ChronicPain

I think it started at 25, and the last 3 years it has become pretty immobilizing. Everything hurts more often than not—my skin, my muscles, my knee and elbow joints. Most mornings feel like I spent the whole day before in a mosh pit—aches, sore, my whole body feels bruised. My arms get tired and hurt from washing my hair in the shower, and I can’t keep walking pace w my friends (I live in nyc, generally we all walk pretty fast.) Some days the pressure of my mattress on my body makes me grimace. I’ve considered this could be #fibermyalgia ? I have ADHD and am on the bipolar spectrum/have cyclothymia, I think there are comorbidities w bp. Any ideas? I feel so defeated.

6 people are talking about this
Community Voices

I’m 30 yrs old and in constant pain, what could it be? Finally have insurance and wanted to talk to a doctor about it, where do I start? #ChronicPain

I think it started at 25, and the last 3 years it has become pretty immobilizing. Everything hurts more often than not—my skin, my muscles, my knee and elbow joints. Most mornings feel like I spent the whole day before in a mosh pit—aches, sore, my whole body feels bruised. My arms get tired and hurt from washing my hair in the shower, and I can’t keep walking pace w my friends (I live in nyc, generally we all walk pretty fast.) Some days the pressure of my mattress on my body makes me grimace. I’ve considered this could be #fibermyalgia ? I have ADHD and am on the bipolar spectrum/have cyclothymia, I think there are comorbidities w bp. Any ideas? I feel so defeated.

6 people are talking about this