John

@wheelie_out_there | contributor
PPMS stripped away the surface of my life, and left behind a new one not worse or better, but definitely different. I'm not good at very much, but I'm great at surviving. Marrying my wife was the one thing I did extremely well. She's the wonder of my life. And I write.
Community Voices

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Community Voices

Online Grief Resources – You Are Not Alone

<p>Online Grief Resources – You Are Not Alone</p>
2 people are talking about this
Community Voices

I'm new here!

Hi, my name is claudia_g70. I'm here because I have been diagnosed with Clinically Isolated Syndrome (CIS) which can be the onset of MS. I am beginning treatment in a few days with Kesimpta. I want to reach out to others with the same diagnosis and/or the same medication.

#MightyTogether #MultipleSclerosis

5 people are talking about this
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I've Been Gone Too Long (poem)

youtu.be/PKmhjdbTDYU

#MultipleSclerosis #MS #mslikesymptoms #chronicallyill #Spoonie

I’ve been gone too long

Voids stare back at me

Enough is enough; set me free

Being in this body is tiring

Enough is enough

Every day feels the same

Never changing, always something holding me back.

Going every part of nowhere

Only seeing what I want to see

Nothing can change what’s already begun

Even though I want it to change.

Too many years wasted

Only to find the truth in hell

Over the hill, right in front of me

Long has the fight lingered inside of me

Only to be snuffed by the anger and rage

Never again, never again!

Great minds never cease.

***

This poem was written from my bed as I was battling a menieres/neurological attack. I was fine one moment, then I was grabbing my head and throwing up in a bowl.

What the?

It’s frustrating, dealing with all of this. I’m strong and a badass but there are days when I don’t feel strong enough.

I have to remember that I am because it’s true. I need to be kinder to myself, nicer to myself. Because I’m worth it.

2 people are talking about this
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40 yrs with MS

Hello everyone I’m new to this site and just wanted to hi to all of you having MS since I was 23 and expecting our second son ( the scary time in my lif) I wanted to tell if you what’s got me through , I am positive I am strong, I’m a mum and now a Gran, and I enjoy all my good days and rest in my bad ones, I have learned to appreciate every day I’m given, I do my yoga, and palates when I can, I walk in the park on good days and I love my life, my family have helped keep me going and I’m thankful that I’m still here to tell you all how very happy Ian with my live stay positive you can do this

8 people are talking about this
Community Voices

Online Grief Resources – You Are Not Alone

<p>Online Grief Resources – You Are Not Alone</p>
2 people are talking about this
Community Voices

Not sure if I'm grieving in a healthy way..

Hi, I'm Jamie.. I have a psychiatric diagnosis.. I've seen the inside of a hospital countless times. Now, at 45 I've moved in with my tireless MS Warrior boyfriend. I'm happy with him.

My mother passed away in March. It was sudden.

So I sleep all the time now, even while my boyfriend rushes around and works from home and does home projects and budgets all his energy carefully. The guilt of feeling lazy is extremely heavy.

I worry that I am getting sick. The therapeutic consensus is that I have to "get out more," my therapist is really pushing me. Losing my mom was my worst fear, I realize now. Are there grief groups on here?

I'm worried that I'm on a slippery slope and will end up hospitalized with a crapshoot of new meds. I just feel so numb and am frightened of amount I sleep. Not sure if I'm strong enough to pull myself out of this.

4 people are talking about this
Community Voices

Not sure if I'm grieving in a healthy way..

Hi, I'm Jamie.. I have a psychiatric diagnosis.. I've seen the inside of a hospital countless times. Now, at 45 I've moved in with my tireless MS Warrior boyfriend. I'm happy with him.

My mother passed away in March. It was sudden.

So I sleep all the time now, even while my boyfriend rushes around and works from home and does home projects and budgets all his energy carefully. The guilt of feeling lazy is extremely heavy.

I worry that I am getting sick. The therapeutic consensus is that I have to "get out more," my therapist is really pushing me. Losing my mom was my worst fear, I realize now. Are there grief groups on here?

I'm worried that I'm on a slippery slope and will end up hospitalized with a crapshoot of new meds. I just feel so numb and am frightened of amount I sleep. Not sure if I'm strong enough to pull myself out of this.

4 people are talking about this
Community Voices
Community Voices