rosemary

@wildrosemary
Community Voices
Community Voices

Holistically treating my IST

Hi everyone,

This is my first post here and I’m really happy to find community that can relate to some of my health struggles.

I wanted to share a bit of my story with the hope that maybe it will help someone. A bit of a background on this, the first time I was told I had an #Arrhythmia was about 10 years ago and back then I actually had #bradycardia . It hadn’t bothered me much throughout the years until last August.

First, I started having very sharp chest pains accompanied by palpitations that would last around 15 minutes. The feeling spread to pain in my arm which really worried me at the time. It went from happening every few days to every single day.

I went to the doctors and they did an EKG that showed tachycardia. After lots of back and forth I was able to get a referral for a cardiologist who did another EKG that was borderline and Echo which came back normal. I’m waiting to receive a halter monitor. Overall though, this doc in particular is terribly rude doctor and tells me it’s just anxiety.

It’s very hard to get an appt with him and in between I ended up at urgent care 3x and taken by ambulance to the hospital 1x when my HR hit 180 BPM. I was at the point of debilitating IST that hit when I was sitting down working on my computer or laying down - multiple times a day. It felt like my heart was running a marathon over and over. Absolutely exhausting.

That brings me to this current moment. The ER doc gave me Propranolol which is the FIRST thing to stop an episode. He also gave me Xanax 3x/day but I haven’t touched it because I don’t believe this is anxiety related.

None of my docs are trying to find the root cause so I’ve done a lot of my own research and I’m trying to treat this issue holistically. The most fascinating discovery I’ve made so far is this:

Right before my arrhythmia got bad last year, I started carb cycling (I’m also vegan and have been for over a decade). I’ve done keto before and ended up in the hospital years ago for palpitations while on the diet - I didn’t make that correlation until recently.

I looked at my Kardia app and realize that all my 130+ BPM episodes tended to be on my low carb days. I’m trying to test out this theory so today when I started having an episode, HR 105 and climbing, I ate a few pieces of fruit, some crackers, and honey - literally anything I had in my fridge that was high carb.

Within 15 minutes my HR went down to 80 BPM. That’s the LOWEST it’s been in a very long time and the first time I have been able to self-regulate the tachycardia.

I’m also taking magnesium every day which has helped with the palpitations. I’m going to end my carb cycling and incorporate healthy carbs into each of my meals to see if it helps reduce the onset of IST.

Has anyone else had this experience?

TL;DR:
My IST might be triggered by a low carb diet and wonder if others noticed this too.

#InappropriateSinusTachycardia #Tachycardia #SinusTachycardia

2 people are talking about this
Community Voices

Advice for high altitudes with #InappropriateSinusTachycardia #Dysautonomia

Hi everyone,

I’m dealing with IST and taking Propranolol as needed along with lifestyle changes. I still don’t have a doctor whom I trust or takes the condition seriously so I thought I’d ask some other people advice.

I’ve lived close to sea level my whole life on the west coast from California to Oregon. Recently I made the decision to move to another state. All of the places I want to live are at high altitudes and I’m aware that it can cause some effects on the heart.

I spent a week in Sedona, AZ which is around 4,300’ elevation. I’m currently in Albuquerque, NM which is at 5,312’ elevation. My tachycardia seems to have gotten worse during this time and is less easy to manage.

I’m planning to travel to Santa Fe which is at 7,199’ elevation. Is this too much for my condition? Is it safe if I try increasing steadily or should it be avoided?

Thanks so much! #InappropriateSinusTachycardia #ist #Dysautonomia

1 person is talking about this
Community Voices

Holistically treating my IST

Hi everyone,

This is my first post here and I’m really happy to find community that can relate to some of my health struggles.

I wanted to share a bit of my story with the hope that maybe it will help someone. A bit of a background on this, the first time I was told I had an #Arrhythmia was about 10 years ago and back then I actually had #bradycardia . It hadn’t bothered me much throughout the years until last August.

First, I started having very sharp chest pains accompanied by palpitations that would last around 15 minutes. The feeling spread to pain in my arm which really worried me at the time. It went from happening every few days to every single day.

I went to the doctors and they did an EKG that showed tachycardia. After lots of back and forth I was able to get a referral for a cardiologist who did another EKG that was borderline and Echo which came back normal. I’m waiting to receive a halter monitor. Overall though, this doc in particular is terribly rude doctor and tells me it’s just anxiety.

It’s very hard to get an appt with him and in between I ended up at urgent care 3x and taken by ambulance to the hospital 1x when my HR hit 180 BPM. I was at the point of debilitating IST that hit when I was sitting down working on my computer or laying down - multiple times a day. It felt like my heart was running a marathon over and over. Absolutely exhausting.

That brings me to this current moment. The ER doc gave me Propranolol which is the FIRST thing to stop an episode. He also gave me Xanax 3x/day but I haven’t touched it because I don’t believe this is anxiety related.

None of my docs are trying to find the root cause so I’ve done a lot of my own research and I’m trying to treat this issue holistically. The most fascinating discovery I’ve made so far is this:

Right before my arrhythmia got bad last year, I started carb cycling (I’m also vegan and have been for over a decade). I’ve done keto before and ended up in the hospital years ago for palpitations while on the diet - I didn’t make that correlation until recently.

I looked at my Kardia app and realize that all my 130+ BPM episodes tended to be on my low carb days. I’m trying to test out this theory so today when I started having an episode, HR 105 and climbing, I ate a few pieces of fruit, some crackers, and honey - literally anything I had in my fridge that was high carb.

Within 15 minutes my HR went down to 80 BPM. That’s the LOWEST it’s been in a very long time and the first time I have been able to self-regulate the tachycardia.

I’m also taking magnesium every day which has helped with the palpitations. I’m going to end my carb cycling and incorporate healthy carbs into each of my meals to see if it helps reduce the onset of IST.

Has anyone else had this experience?

TL;DR:
My IST might be triggered by a low carb diet and wonder if others noticed this too.

#InappropriateSinusTachycardia #Tachycardia #SinusTachycardia

2 people are talking about this
Community Voices

need help dont know who can see this

tw//r*pe hi please help someone i am dissociated right now. i am struggling to cope it has been 3 years now since i was r***d in my bum and im scared its not getting better i dont know what to do its never going to go away it feels like.

2 people are talking about this