Hi, my name is PattyMorrisAuthor. I'm here because I’m working on a memoir + about three mothers of children with a rare disease. The book explores the isolation many mothers experience in their roles as protectors. I love connecting with others to break my own isolation and to offer what I can to others in similar circumstances.
I know it's been a while. Here's an update:
My spinal epidural lipomatosis (SEL)grew back after 4 years after surgical removal of the mass of unencapsulated fat. SEL is a very rare disease but if it grows back there's no real literature of what happens next. It's so rare it's not studied.
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I was supposed to have lumbar nerve ablation tomorrow morning. Unfortunately I have bilateral pinkeye. My doctor sent meds yesterday but too late for getting my script today. So we're expecting a meds delivery tomorrow. Unfortunately I had to cancel my appointment. I'm waiting for the nurse to call me to reschedule.
I had been waiting for 2 months for this appointment. It has been roughly 1 year since my last lumbar nerve ablation. My sciatica is flared up.
#spinalepidurallipomatosis #SpinalStenosis #RareDisease
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When you’re struggling with depression, it’s easy to start measuring your worth by what you can see around you. How much you’ve achieved, whether people approve of you, whether someone chooses you, or whether your life looks the way you thought it would. And when those things aren’t going well, it can start to feel like you aren’t doing well either.
But your circumstances are not a measurement of your value. You can lose something, struggle with something, disappoint someone, or still be figuring out who you are without becoming less worthy because of it. Part of depression recovery is learning to separate what is happening in your life from what you believe about yourself because of it. You are allowed to want more for your life while still believing the person you are today deserves compassion.
What’s one thing you’re learning not to use as a measure of your worth?
Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:
www.instagram.com/thomas_of_copenhagen
www.tiktok.com/@thomas_of_copenhagen
~ Thanks to all. Thanks for all. ~
#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether
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When we speak or write something into existence, we give it less power over us. So today, let’s try and reclaim some of that power by writing a letter to our biggest fears.
In your letter, you can touch on what your fear is, how it’s affected you, and how you can begin to let it go.
Here is Mighty staffer @sparklywartanks letter:
Dear abandonment,
I’ve been afraid of you for a long time now, ever since I was a little girl. You’ve been lingering over me and preventing me from progressing, but I’m learning who you are and where you came from. You are no longer allowed to cloud my judgment or stop me from making lasting friendships and relationships. I’m taking my life back. You’re no longer going to hold me back.
Good riddance,
Nina
#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie
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Depression can make the past feel like evidence against you. You look back at mistakes, choices, or moments when you weren’t coping well and judge that version of yourself using everything you know today. But you didn’t have today’s perspective back then. You hadn’t learned everything you’ve learned, built the strength you have now, or found the tools you have today. Healing doesn’t mean pretending you did everything right. It means allowing yourself to learn from what happened without turning your past into a reason to keep punishing yourself. You deserved compassion then, and you deserve it now too.
What would you say to a past version of yourself if you could speak to them with compassion instead of judgment?
Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:
www.instagram.com/thomas_of_copenhagn
www.tiktok.com/@thomas_of_copenhagen
~ Thanks to all. Thanks for all. ~
#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether
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🚨 Today’s public service announcement 🚨
Whether it’s from a family member, friend, nonprofit organization, free community program, online platform (like The Mighty!), doctor, or mental health professional, it’s always OK to ask and receive support for your mental health.
Mighty staffer @sparklywartanks finds talking to her therapist, sharing on The Mighty, and spending quality time with her family to be most helpful for her.
What about you?
#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie
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When you’re struggling with depression, it can be incredibly easy to live everywhere except where you actually are. Your mind replays what you wish you had done differently or jumps ahead to everything that could go wrong. Before long, yesterday and tomorrow are taking up all the space you have today.
Being present doesn’t mean pretending the past didn’t happen or refusing to think about your future. It means remembering that right now is the only place where you can actually do something for yourself. You can’t rewrite yesterday, and you don’t have to solve tomorrow today. Sometimes healing is simply bringing yourself back to this moment and asking what you need right now.
What helps bring you back to the present when your mind starts pulling you away?
Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:
www.instagram.com/thomas_of_copenhagen
www.tiktok.com/@thomas_of_copenhagen
~ Thanks to all. Thanks for all. ~
#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether
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