Rare Disease

Creating a schedule can be challenging, especially when you’re trying to keep track of everything you want to accomplish in your head, or have multiple people in a household that you’re responsible for. Sometimes it’s beneficial to use a blend of materials and resources like planners, note apps, calendars, dry erase boards, and alarms to help.

Mighty staffer @xokat really like to use a traditional pen and paper calendar (it’s monthly and is an excuse to use stickers, let’s be real) alongside her Gmail work calendar and project management tool so she doesn’t forget anything personally or professionally.

What system works best for you?

#52SmallThings #MentalHealth #CheckInWithMe #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #Caregiving #Autism #ADHD

Honestly, sometimes you just need to take a break from talking about health. Not only is it valid and very necessary to take a break from your symptoms and emotions from time to time, but it can be especially important to define your identity outside of those labels. (But we know how tough that is when your lived experiences are all-consuming! It’s all about balance, friends.)

So we’re curious what else you like to discuss. The weather? Your hobbies? Pop culture? Food? Nostalgic trips down memory lane? Travel? Your pets? Your kids?

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Being alone is a tricky thing because even though we have an evolutionary instinct to find fulfillment through social groups and romantic partners, neither will actually fulfill us. It's so easy to believe that if only we had the social or romantic status that we dream of that it would make us happy, but how many people do you know (including yourself) who have found either of these and still felt lonely? There is of course nothing wrong with either. But as long as you place your worth on an external person or object, you will ultimately be left unsatisfied and will either want more or want something new. Be comfortable being alone first, and then let whatever fruits of this world come in and out of your life. Does anyone practice this?

As a way to better share advice with you all, I make video responses to your mental health questions.

The last video I made was about what to do if you find yourself distracting yourself from painful thoughts and what that could mean. If this sounds relevant to you, you can check out the video here:

www.instagram.com/thomas_of_copenhagen

Otherwise, if you have any questions about mental health, please post in my group and I will try to make a video response specifically for you.

~ Thanks to all. Thanks for all. ~

Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

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Mighty staffer @xokat had some blood work done yesterday, and, like always, she was very vocal about her history of passing out. In the past, she has occasionally been met with a little bit of grumbling for being a “high-maintenance patient,” but yesterday was such a pleasant surprise. The phlebotomist took her to the kids’ room (there were so many cool stickers on the wall!) so she could lay on a couch-like table and already had juice on standby. The best part? The health care professional actually thanked her for advocating because it meant there would be no surprises!

So that got her thinking about self-advocacy and how important it is, but also how scary it can be — especially if you’re met with resistance. Whether it’s something for your mental health, a specific boundary you have in place, or a sticky situation in the workplace, we’d love to hear about your latest self-advocacy adventures.

⛰️ P.S. Here’s a really stellar piece from a Mighty contributor about the mountain that is speaking up for yourself: Why Is Disability Self-Advocacy So Hard?

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Mighties, let’s share what we’re prioritizing today from our to-do list. Whether it's running a time-sensitive errand, wrapping up a specific project at work, taking some time for much-needed self-care, returning a phone call, grocery shopping, or even updating your personal or family calendar, we are cheering you on to get 👏 it 👏 done!

Mighty staffer @xokat is going to try and finish cleaning out her fridge and churn out some work-related writing since she wasn’t feeling very well yesterday and admittedly got behind. (It happens!)

P.S. If "all" you do today is surviveand make it through, that absolutely counts and we're really proud of you. 🫶

#52SmallThings #CheerMeOn #CheckInWithMe #MentalHealth #Caregiving #Anxiety #Depression #ChronicIllness #ChronicPain #Cancer #Autism #ADHD #RareDisease #Disability