autoimmune

Feed
Groups
Create a new post for topic
Join the Conversation on
2.7K people
0 stories
469 posts
Explore Our Newsletters
What's New in
All
Stories
Posts
Videos
Latest
Trending
Post
Mangomeow
 • 
@mangomeow
Lupus 16h

I am in so much pain

How do I deal being in so much physical pain? I cannot take ibuprofen because of my kidney, my chest and joint pain are killing me. I have autoimmune but my doctor is not caring enough to give me a proper care, I had to fight in the first place to get a diagnosis.

I feel like my life is a russian doll of pain and suffering, being trapped in a crappy country (Iran), being trapped with unsupportive toxic parents and having no friends, being trapped with this failing body,and being trapped in my mind with mental illness.

What do you guys do when everything is falling apart? How can I find hope?

#Lupus #Depression #autoimmune #Pain #Anxiety #help #Undiagnosed

Most common user reactionsMost common user reactionsMost common user reactions 18 reactions • 8 comments
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 4w
See full photo

We are 3 million strong. We are diverse and worldwide. Every year, we have broader supports, better treatments, closer to a vaccine, closer to a cure.

Today is World MS Day. If you are living with #MultipleSclerosis or are an MS #caregiver, family member, friend or ally, it would be great to hear from you here.

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

(edited)
Most common user reactionsMost common user reactions 5 reactions • 1 comment
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1mo
See full photo

Lady at party: "You need to take this one supplement my mom takes."

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Most common user reactions 10 reactions • 2 comments
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1mo
See full photo

This morning, reminiscing with a friend about visiting Yellowstone — suddenly it brought to mind a teen openly staring across an outdoor café at me--

in my mobility scooter, just gawking and gawking... That was 30 years ago! But this morning I could see him clear as day, like it was yesterday.

I was a grown man and he was a kid, and I paid him no heed. And I swear I have not thought of him at all over the years. Yet he popped up this morning. Is that freaking crazy?!

I know I've tried consoling or empowering friends who have been hurt by others' ableism, by urging that we not to let the ugly folks, the know-nothings, have power over us.

But *that's* what ableism does.

#ableism #MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Most common user reactionsMost common user reactions 6 reactions • 1 comment
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1mo
See full photo

My friend Pam met a mother and 3yo daughter at the MS Walk. The girl ended up holding her hand most of the way.

The Walks and other events are empowering and a great way to find community, resources & support. I've met some of my best friends at MS Society events.

Find yours: www.nationalmssociety.org/how-you-can-help/get-involved/fund...

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
Most common user reactions 7 reactions
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1mo
See full photo

Meet "Uncle Mike"! Er, not the guy -- the guy is me. Uncle Mike is my drinkholder. I have #MS-impaired hands.

My flesh-and-blood Uncle Mike made two of these for me. Guess he got tired of holding my drink! :)

Cheers!

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Most common user reactionsMost common user reactions 12 reactions • 1 comment
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1mo
See full photo

Thursday's Ask an MS Expert is one we can really sink our teeth into: MS and Oral Health. 5/14/26, 12 – 12:30 PM ET, find link below.

Living with #MultipleSclerosis can make it difficult to keep up with oral care. With a few simple daily habits, you can protect your smile and support your overall health. In this program, get helpful ideas and strategies to make oral care easier and more comfortable when living with MS, from Ann Eshenaur Spolarich PhD, RDH, professor and assistant dean for research at A.T. Still University-Arizona School of Dentistry & Oral Health.

tinyurl.com/ytx239zs

#MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
Most common user reactionsMost common user reactions 3 reactions
Share this post Share
Save
Post
John
 • 
@themightyjohn
MightyTogether 1mo
See full photo
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1mo
See full photo

Your Voice Matters: What supports do you need to continue your career?

Fill out this survey to help shape the MS Society's new employment-supports program. What do you need as a person with MS? Surveys due 5/22/26.

Because MS is often diagnosed during prime working years, this work is designed to better understand how MS affects employment, financial stability, and career progression for individuals under age 45. Insights gathered through the survey will directly inform future programming grounded in lived experience and aligned with the Society’s mission.

surveymonkey.com/r/MYQ3WST

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Employment Needs Survey

Take this survey powered by surveymonkey.com. Create your own surveys for free.
Most common user reactionsMost common user reactions 4 reactions
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1mo
See full photo

Solidarity and red carnations to our 90,000+ Canadian brothers and sisters living with MS. Thanks for being part of our community!

For over 50 years, the carnation has been a symbol of hope and support for the #MultipleSclerosis community.

#MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Most common user reactions 5 reactions
Share this post Share
Save