autoimmune

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Selma Blair: A Day in My Life with Multiple Sclerosis

Multiple Sclerosis Connections 1d

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Selma Blair is a big fan of hitting the snooze button. If only her therapy dog, Scout, an English red fox Labrador, would let her stay in bed.

“Even though I’m doing really well, fatigue is really, really hard for me,” says the actress, who has been living with multiple sclerosis since 2018. Scout helps her get up, and then stretching and coffee help her ease into the day.

What's your morning routine, Mighties?

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Selma Blair: A Day in My Life with Multiple Sclerosis

Actress Selma Blair talks through the daily rituals—dropping her son off at school, going horseback riding—that help her stay healthy.

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nmss.quorum.us/campaign/143536

Multiple Sclerosis Connections 1w

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Put your voice out there for your well-being & others' — Become an MS Activist

I feel good after I write one of my reps. It was empowering rather than being passive and stewing over things.

Has anybody else interacted with their representatives? I'd love to hear your stories.

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Contact Congress Today!

Support Medical Research Funding and Access to Healthcare

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Multiple Sclerosis Connections 1w

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“Don’t be afraid and never give up. Never underestimate the difference you can make.” - Christopher Reeve

Keep being mighty — for yourself and for others. This weekend would have been Reeve's been 73rd birthday.

Sorry I haven't been around this week, buds: lots of work lately and limited energy.

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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Badass Solo Traveller Sylvia Longmire Isn't Letting MS Slow ...

Multiple Sclerosis Connections 3w

We Are in the World Is Sylvia Longmire? Wheeling around the world

Sylvia Longmire uses a wheelchair due to #MultipleSclerosis, and tirelessly travels around the globe, showing us wonderful places to go and how best to do so.

She's an author and former Defense Department analyst. But she is best known for spinning around the world to famous international destinations or to a charming small town not far away from you — always with recommendations for a good bite to eat, an interesting place to see (she's an art-museum docent herself), and are those "accessible" accommodations really is useful as advertised?

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Badass Solo Traveller Sylvia Longmire Isn't Letting MS Slow Down Her Travels

Having been to over 60 countries, disability advocate Sylvia Longmire shows other women that travelling with MS is possible and enjoyable.

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Multiple Sclerosis Connections 3w

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"I’ve also learned that change is inevitable. Even when I’m having a really bad flare or feeling weighed down by depression, I remind myself that

it isn’t permanent and it will eventually pass."

"Above all, I’ve realized it’s important to be kind to yourself and give yourself grace to handle the challenges you face." — Nicole Pedra, 37, diagnosed with #MultipleSclerosis at age 10

#MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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Multiple Sclerosis Connections 3w

MS and caregiver fact of life: Unsolicited comments & advice, "You're not doing it right"

Sometimes it comes from someone I have no idea who they are, but it hits me just right (or wrong). #@$%!

Has this ever happened to you? How do you deal with stuff like this?

Caregiver concerns:Bruce Willis' wife addresses questions. www.marketwatch.com/story/emma-heming-willis-on-moving-husba...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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It's that tiredness that makes you fall asleep early, and sleep in late, and when you wake up, you're still tired.

You're not just tired — you're MS tired.

How many nappers do we have here?

How many extra coffee drinkers?

What tips can you share with the community to help with fatigue?

Yawn, that was hard. Bye.

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Multiple Sclerosis Connections 1mo

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Where are you feeling MS pain? What do you do about it?

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Study: journals.lww.com/jnpt/abstract/9900/structural_and_functiona...

Multiple Sclerosis Connections 1mo

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Walking backwards = walking better: Researchers find people with can walk better & fall less often — just don't chew gum at the same time.

A study at Wayne State Univ. in Detroit shows improved gait & balance, changes in the brain, and >lower numbers of falls.< This is all supervised, of course, and more study is needed.

My wife will be pleased because she swears by its benefits. Me, I can barely walk going forwards!

Uh, any takers?

#MultipleSclerosis #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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Sensory kiosks recreate Multiple Sclerosis symptoms at Bengaluru event

Multiple Sclerosis Connections 1mo

Interesting: “Walk in my Shoes” interactive exhibit features sensory simulation kiosks to help others understand the often invisible symptoms of MS.

In your exhibit, what #MultipleSclerosis or #ChronicIllness symptom would go in your kiosk?

Mine would have people walking past me, coming and going, some staring — and every once in a while everything falls on its side with a thud (and some people keep walking past).

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Sensory kiosks recreate Multiple Sclerosis symptoms at Bengaluru event

Roche India and MSSI organized "Walk in my Shoes" event to raise awareness about Multiple Sclerosis symptoms and challenges.

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