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Hey Junior, behave yourself!: Cold-weather twitches and the "MS hug." Do you get this too?

In the mornings, and other times too, I sometimes feel a tickle-twitch-minispasm-tightness on my side, right under my ribs. It doesn't feel bad exactly — but slightly uncomfortable + good + weird all at the same time. It makes me think of a Beatles* song, and I raise my elbow and call down (in John Lennon's voice), "Hey Junior, behave yourself!"

It might be the "MS hug," a combo of muscle spasticity and dysesthesia or misfiring/confusion of signals and sensations due to nerve damage. Dysesthesia causes the feeling of tightness across the torso that is the typical MS hug, but may also cause the tremors in my legs, or the icy feeling in my friend's face (who otherwise had no other symptoms).

Often I can chase Junior away with blankets & heat, exercise, or muscle-relaxant baclofen. But if it's winter, I know that rascal will probably find his way back again.

* US singer Larry Williams wrote and sang the original.

#MShug #dysesthesia #MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability

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More evidence that vitamin D may help those with MS.

With your doctors help, it's usually a good idea to supplement with vitamin D. A ton of evidence shows a link between MS and deficiency of vitamin D. This 2025 study shows that vitamin D may delay early disease activity. Studies show nearly two-thirds of Americans have vitamin D deficiency, which can lead to osteoporosis.

Learn more about this and other 2025 MS research findings at Top 10 MS news stories of 2025

#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability

Top 10 MS news stories of 2025

Throughout 2025, the team at Multiple Sclerosis News Today brought readers the latest advances and updates in research related to multiple sclerosis (MS). Here are the top 10 most-read news stories…
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Tonight, Jan. 8, 8 PM ET: New to MS: Navigating Your Journey Program [with resource guide attached]

Connect and learn with others who are new to multiple sclerosis and navigating their own journeys. This program offers info on MS and its symptoms, and advice on how to manage your case. Talk to attendees, ask questions of a health care professional and a volunteer who is living with MS, and share your own experiences.

Also find the New to MS Resource Guide on the same page, with info from the program. Note: This program repeats on the second Thursday of every month.

Sign up at www.nationalmssociety.org/Symptoms-Diagnosis/Newly-Diagnosed/New-to-MS

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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In the last 1-2 years my wife finally found good sleep, and it's been life-changing. It can be done and is so worth trying.

Tomorrow's Ask an MS Expert can help: "Enhancing Sleep Health," 1-8-26 at 12-12:30 p.m. ET

Sleep is crucial for people with MS dealing with fatigue, spasticity or cognitive changes. Learn about the 4 domains of sleep health and the science behind good sleep from Katie Siengsukon, professor of Physical Therapy, Rehabilitation Science and Athletic Training at the Kansas University Medical Center.

Streaming on Facebook, YouTube, and Twitch. www.nationalmssociety.org/how-you-can-help/get-involved/cale...

This program originally aired on May 8, 2025. All programs are recorded and available at the MS Society's YouTube channel.

#sleep #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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"The loss of identity is usually a slow process, as you first try to keep things glued together with willpower fueled by cheap denial."

"It works in the beginning, but [breaks down] quickly and unpredictably.… The Loss of Identity From Chronic Illness is a Form of Trauma."

Can't do the same things, eat the same food, hang out with the same crowd … Who else can relate to this?

Chronic illness changes lives & lifestyles — but we can build back better, stronger.

Thought-provoking article here. Loss of Identity with Chronic Illness & The Plot Twist: Shar...

#ChronicIllness #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Loss of Identity with Chronic Illness & The Plot Twist: Sharpened Self-Worth

The loss of identity with chronic illness is an inevitable trauma experienced with a new diagnosis. Here's how to regain your self-worth.
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Heisman QB Fernando Mendoza: "I launched the 'Mendoza Burrito' at La Burrita in Berkeley … to honor [my mom's] strength and positivity."

"My mom means the world to me—she’s the most caring and positive person I know—and I’ll keep doing everything I can to support her and others living with MS!"

"In Bloomington, [Indiana], BuffaLouie’s is featuring the “Mendoza Bros. Burger” and Gable’s Bagels is serving the “Mendoza Bros. Cubano” bagel sandwich. Proceeds from both menu items will go directly to [MS funding]."

Fernando and the Indiana University Hoosiers are competing for the college football national championship.

events.nationalmssociety.org/participants/FernandoMendoza

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

I'm supporting the National MS Society!

The National MS Society's vision is a world free of MS. Donate today and help continue the Society’s mission of curing MS while empowering people affected by MS to live their best lives — MS ends with us.
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"I started [w]oodworking after I was diagnosed with MS in 2023 as a way to process the experience of living with this condition."

"Creating pieces of wood art is both a mental and physical exercise," says Richard Unis of San Diego. "I’m doing what I can to prevent progression through physical activity.

"Each board I create is a journey and a meditation. Each piece tells a story. ... it is this personal connection and interpretation that makes the creative process so rewarding.

Read Richard's article "Finding GRIT With MS Through Creating Wood Art" at Momentum Magazine. www.nationalmssociety.org/news-and-magazine/momentum-magazin...

#creativity #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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"Hoo knew?": In 2025, owls became my unlikely "creature comfort." What were yours?

In my social feeds, muscling for space with the bad, depressing headlines, you're gonna find tons of owls! Beautiful, intriguing, majestic, funny — I can't get enough of them. And this is all new for me too… Hoo knows where it came from? But when I can't get outside due to weather, I'm scrolling for these screechers.

Now, care to share? What were your 2025 sources for laughs, lightheartedness, wonder, joy?

#Distraction #funny #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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