I feel good after I write one of my reps. It was empowering rather than being passive and stewing over things.
Has anybody else interacted with their representatives? I'd love to hear your stories.
nmss.quorum.us/campaign/143536
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
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Keep being mighty — for yourself and for others. This weekend would have been Reeve's been 73rd birthday.
Sorry I haven't been around this week, buds: lots of work lately and limited energy.
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
7 reactions Sylvia Longmire uses a wheelchair due to #MultipleSclerosis, and tirelessly travels around the globe, showing us wonderful places to go and how best to do so.
She's an author and former Defense Department analyst. But she is best known for spinning around the world to famous international destinations or to a charming small town not far away from you — always with recommendations for a good bite to eat, an interesting place to see (she's an art-museum docent herself), and are those "accessible" accommodations really is useful as advertised?
Badass Solo Traveller Sylvia Longmire Isn't Letting MS Slow ...
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
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it isn’t permanent and it will eventually pass."
"Above all, I’ve realized it’s important to be kind to yourself and give yourself grace to handle the challenges you face." — Nicole Pedra, 37, diagnosed with #MultipleSclerosis at age 10
#MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
6 reactions Sometimes it comes from someone I have no idea who they are, but it hits me just right (or wrong). #@$%!
Has this ever happened to you? How do you deal with stuff like this?
Caregiver concerns:Bruce Willis' wife addresses questions. www.marketwatch.com/story/emma-heming-willis-on-moving-husba...
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
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You're not just tired — you're MS tired.
How many nappers do we have here?
How many extra coffee drinkers?
What tips can you share with the community to help with fatigue?
Yawn, that was hard. Bye.
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
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A study at Wayne State Univ. in Detroit shows improved gait & balance, changes in the brain, and >lower numbers of falls.< This is all supervised, of course, and more study is needed.
My wife will be pleased because she swears by its benefits. Me, I can barely walk going forwards!
Uh, any takers?
Study: journals.lww.com/jnpt/abstract/9900/structural_and_functiona...
#MultipleSclerosis #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
2 reactions In your exhibit, what #MultipleSclerosis or #ChronicIllness symptom would go in your kiosk?
Mine would have people walking past me, coming and going, some staring — and every once in a while everything falls on its side with a thud (and some people keep walking past).
Sensory kiosks recreate Multiple Sclerosis symptoms at Bengaluru event
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
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