autoimmune

#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability

I honestly had no idea what I was getting into. We sold out at 1,000 tickets," said.Sexton, diagnosed with MS in 2013. She started MuSic Movement in 2024 as an event those living with autoimmune disease can enjoy while raising money for the MS Society and for those with MS in need. Today, Sexton is rocking out again. ...

Throughout Sexton’s [own] health battle, music has been a source of comfort, and it quickly became the perfect centerpiece for her fundraiser. “I was thinking, what can we do that can be more inclusive for everybody? ... That’s when I thought of music,” she said. ...

Through her nonprofit, Sexton helps provide funds for those in need. “There might be someone who needs a leg drop device that their insurance doesn’t cover. I want the MuSic Movement to be somewhere that they can turn to for assistance,” she said. ...

“I have connected with so many people. I have had people reach out when they are going through hard times. It’s really nice to be able to talk to people who literally understand what you are going through,” she said.

Excerpts from "How A South Side Woman Built A ‘MuSic Movement’ To Raise Money For Multiple Sclerosis Awareness" by Blockclub Chicago's Jim Lynch.

How A South Side Woman Built A 'MuSic Movement' To Raise Mon...

#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability

Where I'm from, Cubs fans fly their W flags after a win. Today MS Activists are flying the W after a bipartisan group of congressmen passed the Multiple Sclerosis Research Program (MSRP). MSRP especially benefits vets with MS, and fell victim to last year's budget cutting. But MS Activists refused to be silent and explained to their reps how important the program is. Federal MS research is restored!

Learning and speaking up feels so empowering. If you want to learn more about what’s happening on Capitol Hill and how you can share your story, join us on Feb. 9 at 1 p.m. ET for “Your Stories, Your Power: New Opportunities and Tools to Help You Make a Difference!” Register at nmss.quorum.us/event/30882

#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability #Activism

12-12:30 p.m. ET -- Vision symptoms are the first sign of multiple sclerosis. Learn strategies to navigate these challenges and get guidance for managing and optimizing visual well-being from Dr. Shiv Saidha, professor of neurology at Johns Hopkins Hospital. Program originally aired 3-7-24.

www.nationalmssociety.org/how-you-can-help/get-involved/cale...

#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability

Pregnant women with relapsing-remitting MS commonly experience reduced relapse rates, especially during months seven to nine. Understanding how this hormone-driven benefit occurs naturally in pregnancy may help us develop a new MS therapy for all. (This MS Society UK article explains more: mssociety.org.uk/research/explore-our-research/search-our-re...

And this is just what Dr. Manuel A. Friese, winner of this year's prestigious Barancik Prize, is working on right now: www.nationalmssociety.org/news-and-magazine/news/friese-2025...

#MultipleSclerosis #Pregnancy #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability

In the mornings, and other times too, I sometimes feel a tickle-twitch-minispasm-tightness on my side, right under my ribs. It doesn't feel bad exactly — but slightly uncomfortable + good + weird all at the same time. It makes me think of a Beatles* song, and I raise my elbow and call down (in John Lennon's voice), "Hey Junior, behave yourself!"

It might be the "MS hug," a combo of muscle spasticity and dysesthesia or misfiring/confusion of signals and sensations due to nerve damage. Dysesthesia causes the feeling of tightness across the torso that is the typical MS hug, but may also cause the tremors in my legs, or the icy feeling in my friend's face (who otherwise had no other symptoms).

Often I can chase Junior away with blankets & heat, exercise, or muscle-relaxant baclofen. But if it's winter, I know that rascal will probably find his way back again.

* US singer Larry Williams wrote and sang the original.

#MShug #dysesthesia #MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability

With your doctors help, it's usually a good idea to supplement with vitamin D. A ton of evidence shows a link between MS and deficiency of vitamin D. This 2025 study shows that vitamin D may delay early disease activity. Studies show nearly two-thirds of Americans have vitamin D deficiency, which can lead to osteoporosis.

Learn more about this and other 2025 MS research findings at Top 10 MS news stories of 2025

#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability

#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability

Connect and learn with others who are new to multiple sclerosis and navigating their own journeys. This program offers info on MS and its symptoms, and advice on how to manage your case. Talk to attendees, ask questions of a health care professional and a volunteer who is living with MS, and share your own experiences.

Also find the New to MS Resource Guide on the same page, with info from the program. Note: This program repeats on the second Thursday of every month.

Sign up at www.nationalmssociety.org/Symptoms-Diagnosis/Newly-Diagnosed/New-to-MS

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Tomorrow's Ask an MS Expert can help: "Enhancing Sleep Health," 1-8-26 at 12-12:30 p.m. ET

Sleep is crucial for people with MS dealing with fatigue, spasticity or cognitive changes. Learn about the 4 domains of sleep health and the science behind good sleep from Katie Siengsukon, professor of Physical Therapy, Rehabilitation Science and Athletic Training at the Kansas University Medical Center.

Streaming on Facebook, YouTube, and Twitch. www.nationalmssociety.org/how-you-can-help/get-involved/cale...

This program originally aired on May 8, 2025. All programs are recorded and available at the MS Society's YouTube channel.

#sleep #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune