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John
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@themightyjohn
Multiple Sclerosis Connections 14h
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“As someone with MS, I find that it’s very therapeutic to learn about how other people have coped with this disease and other disabilities.”

Helen Russon invites you to The MS Book and Screen Support Group. They read books and watch films related to the journeys of people living with MS and discuss how these journeys relate to their own lives. The group is open to anyone, regardless of location.

Interested in joining? Visit tinyurl.com/3pbh9dv3

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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John
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@themightyjohn
Multiple Sclerosis Connections 2d
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A Sister's Love: Sylvia Lawry placed an ad in the N.Y. Times looking for others with MS like her brother Bernard.

It led to her starting the MS Society, 80 years ago this month. “She went where she needed to go, talked to who she needed to talk to and didn’t take no for an answer and did that because she believed we needed to find a cure for her brother,” says Dr. Tim Coetzee, president of the MS Society.

Lawry's MS Society is now the world's largest private funder of MS research, playing a part in every one of more than 20 current treatments for the disease. It also provides free supports and info to 1 million in the US living with MS and their families. "Think of the scores of people that were impacted by the work she did. It’s remarkable," Coetzee says.

Sylvia Lawry died in 2001 at age 85. “I really believed this would be a short-term undertaking,” Lawry said in her biography, 'Courage: The Story of the Mighty Effort to End the Devastating Effects of Multiple Sclerosis,' by Richard Trubo. “Of course, I was wrong.”

Source and article: www.nationalmssociety.org/news-and-magazine/momentum-magazin...

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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John
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@themightyjohn
Multiple Sclerosis Connections 4d
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When I went to the doctor, limping from MS, he told me to exercise more. #@*&$! diagnosis process!

This Thursday's Ask an MS Expert is about MS diagnosis. Learn what's involved and conditions that can be confused for MS, from a professor of neuro studies. From 10/26/23.

3/26 11AM CDT. tinyurl.com/5cjy3acp

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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Lori M
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@positivethruthepain
Anxiety, Stress, and Me 1w

Happy March!! 💚

How is your month? What's new?
Almost Spring time.. time for new growth, a reset time for us all 🌼🪷🌹
Wishing you peace, love, and renewal in this Spring ❤️ 🙏
#MentalHealth
#Anxiety
#Arthritis
#Caregiving
#ChronicIllness
#Migraine

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happywhenitrains
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@happywhenitrains
Daily Dose of Nature 1w
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Sitting outside birdwatching with my client when I feel something crawl up my leg. Look down to see this little brown anole lizard staring up at me. She stayed on me for a few minutes while I told her how pretty she is because I'm "weird" and talk to plants and animals. There's a huge population of these critters where I live and some people are freaked out by them, but I love them. Are you a nature person or do prefer the indoors?

#MentalHealth #ADHD #AutismSpectrumDisorder #Autism #Depression #GeneralizedAnxietyDisorder #Anxiety #ComplexPosttraumaticStressDisorder #PTSD #Caregiving #SocialAnxiety

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Group Leader
John
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@themightyjohn
Multiple Sclerosis Connections 2w
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MS is still there, even when you can’t see it.

Fatigue, pain, and other unpredictable, invisible symptoms shape every decision of daily life.

For me, muscle spasticity means muscle tightness throughout my body 24/7, causing fatigue and spasms. A lot of our (my wife and I) lives, routine and re$ource$ go toward controlling this one symptom — which is completely invisible from the outside and impossible to even measure.

During MS Awareness Week, I’m joining the @National MS Society in revealing the unseen realities of living with MS.

Understanding and support matter. See the disease for what it is and learn how you can bring us closer to ending MS together:

www.nationalmssociety.org/how-you-can-help/get-involved/rais...

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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John
 • 
@themightyjohn
Multiple Sclerosis Connections 2w
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Group Leader
John
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@themightyjohn
Multiple Sclerosis Connections 3w
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How does your pet or service animal help you cope? When Jeff Smith’s hands go numb from MS, his black Lab, Colt, carries the house keys in his mouth.

“He picks up on my MS symptoms even before I do," Smith says. He is a 44-year-old resident of Florida, diagnosed in 2011. Colt is his trusty service dog.

“He gets me up in the morning when the fatigue just completely racks me.” Smith grips Colt’s harness when going up and down stairs, using him as both a guide and an anchor. “Colt stays glued to my side when I’m walking and makes me feel more stable."

Read more about the power of supportive pets, and how to get a service animal, at this Momentum article from the MS Society.

www.nationalmssociety.org/news-and-magazine/momentum-magazin...

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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John
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@themightyjohn
Multiple Sclerosis Connections 3w
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Christina Applegate on MS exhaustion: "It feels as though I’ve been on a 3‑day sleepless bender – and that’s how I feel after a good night’s sleep."

"Hence all the time I spend on and in bed, snuggled up against my heating pad."

"I don’t have patience for bullshit any more, for things that are meaningless or merely 'extra,'" Applegate writes in "You With the Sad Eyes: A Memoir," just published. She was diagnosed in 2021. "I’ve become an honesty missile. When your physical situation deteriorates, and your life shrinks to the size of a king-sized bed, suddenly all the things you thought were important shift, too."

These excerpts in the Guardian had me nodding my head: Christina Applegate on life with multiple sclerosis: ‘I won’...

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Christina Applegate on life with multiple sclerosis: ‘I won’t lie and say any of this is a blessing’

When the Emmy-winning comedy star was diagnosed, her body started giving up on her. She writes about losing control, gaining weight – and refusing to be a ‘good girl’
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Group Leader
John
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@themightyjohn
Multiple Sclerosis Connections 3w
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