Caregiving

This article is great for identifying so many of the feelings that swamped me then:

Grief: Mourning a friendship that once gave you joy.

Shame: Feeling like you’re “too much” or “not fun anymore.”

Isolation: Not knowing who you can lean on now.

Bitterness: Seeing others surrounded by support while you feel alone.

It also offers coping methods. MS/chronic illness made me tougher (scarred over, more like). And so grateful for online communities like you here at MS Connections and the Mighty — thanks! :)

How to Cope When Friends Disappear After Diagnosis

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #disability

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Is there a vet in your life who has MS or a chronic illness?

Here he's wearing his "Proud uncle of a Marine" cap.

Find resources for veterans with MS — www.nationalmssociety.org/resources/get-support/find-support...

#veterans MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Helen Russon invites you to The MS Book and Screen Support Group. They read books and watch films related to the journeys of people living with MS and discuss how these journeys relate to their own lives. The group is open to anyone, regardless of location.

Interested in joining? Visit tinyurl.com/3pbh9dv3

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Helen Russon invites you to The MS Book and Screen Support Group. They read books and watch films related to the journeys of people living with MS and discuss how these journeys relate to their own lives. The group is open to anyone, regardless of location.

Interested in joining? Reach out to Helen at helenrusson0225@gmail.com.

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

It led to her starting the MS Society, 80 years ago this month. “She went where she needed to go, talked to who she needed to talk to and didn’t take no for an answer and did that because she believed we needed to find a cure for her brother,” says Dr. Tim Coetzee, president of the MS Society.

Lawry's MS Society is now the world's largest private funder of MS research, playing a part in every one of more than 20 current treatments for the disease. It also provides free supports and info to 1 million in the US living with MS and their families. "Think of the scores of people that were impacted by the work she did. It’s remarkable," Coetzee says.

Sylvia Lawry died in 2001 at age 85. “I really believed this would be a short-term undertaking,” Lawry said in her biography, 'Courage: The Story of the Mighty Effort to End the Devastating Effects of Multiple Sclerosis,' by Richard Trubo. “Of course, I was wrong.”

Source and article: www.nationalmssociety.org/news-and-magazine/momentum-magazin...

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

This Thursday's Ask an MS Expert is about MS diagnosis. Learn what's involved and conditions that can be confused for MS, from a professor of neuro studies. From 10/26/23.

3/26 11AM CDT. tinyurl.com/5cjy3acp

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Fatigue, pain, and other unpredictable, invisible symptoms shape every decision of daily life.

For me, muscle spasticity means muscle tightness throughout my body 24/7, causing fatigue and spasms. A lot of our (my wife and I) lives, routine and re$ource$ go toward controlling this one symptom — which is completely invisible from the outside and impossible to even measure.

During MS Awareness Week, I’m joining the @National MS Society in revealing the unseen realities of living with MS.

Understanding and support matter. See the disease for what it is and learn how you can bring us closer to ending MS together:

www.nationalmssociety.org/how-you-can-help/get-involved/rais...

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability