Caregiving

So rowing, for me, was an antidote to that. ... On the river, there's a long experience of my body meeting challenges," she says. "When I'm leaning into a stroke, ... I love that. I can move this boat through anything."

Hear and read Joannah's story. Story and photos by Nancy Eve Cohen. Rowing upriver, leaving the wheelchair behind

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

“One misconception is that there is time and patients have time to wait until things get worse before they act,” says Dr. Augusto A. Miravalle, a neurologist at Rush University Medical Center in Chicago. "Prevention is very effective when used earlier in the course of the disease.”

Read veteran journalist with MS Ed Tobias' article recommending we "Hit It Fast and Hit It Hard." www.rarediseaseadvisor.com/patient-columns/take-it-from-pati...

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

The ms life community is an online community for all those affected by MS. This volunteer-led community offers a supportive and empowering community for those living with MS, whether they’re recently diagnosed, navigating life with MS, or supporting a loved one living with the disease.

Three things ms life is based on are community, education, and active living.

Expanding your online support network is good!

www.mslifecommunity.com

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Connect and learn with others who are new to multiple sclerosis and navigating their own journeys. This program offers info on MS and its symptoms, and advice on how to manage your case. Talk to attendees, ask questions of a health care professional and a volunteer who is living with MS, and share your own experiences.

Also find the New to MS Resource Guide on the same page, with info from the program. Note: This program repeats on the second Thursday of every month.

Sign up at www.nationalmssociety.org/Symptoms-Diagnosis/Newly-Diagnosed/New-to-MS

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

It’s no surprise that music can be a powerful source of comfort and emotional healing. For many people living with chronic illness, it can also be a helpful way to cope with symptoms and manage stress.

What’s a song you connect with, and what part of it resonates with you the most?

⭐ Your answer may be used to update a Mighty article! ⭐

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Cancer #Anxiety #PTSD #CheckInWithMe

¡Padres y cuidadores, esto es para USTEDES! ✨

Únanse a NAMI-NYC para una presentación especial en línea de Hablemos el martes 5 de mayo, de 6:00 a 7:00 p. m. Escuche al Dr. Ezequiel Lafont compartir herramientas para ayudar a la salud mental de su hijo, y a Mariana Pinanez compartir su experiencia con los desafíos de salud mental durante su juventud. Regístrense aquí: www.eventbrite.com/e/hablemos-lets-talk-tickets-1986451037527

✨ Parents and caregivers, this one’s for YOU! ✨

Join NAMI-NYC for a special Hablemos presentation online on Tuesday, May 5, 6-7 PM. Hear from Ezequiel Lafont MD share tools to help your child’s mental health and Mariana Pinanez share her experience with mental health challenges as a youth. Sign up here: www.eventbrite.com/e/hablemos-lets-talk-tickets-1986451037527

#MentalHealth #FamilyAndFriends #Caregiving

This Thursday's Ask an MS Expert is about learning safe, confidence‑building ways to stay active with multiple sclerosis at any ability level, from professor of kinesiology and nutrition Robert W. Motl of University of Illinois Chicago.

April 9, 2026 at 12-12:30 p.m. ET.

www.nationalmssociety.org/how-you-can-help/get-involved/cale...

#exercise #MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

This article is great for identifying so many of the feelings that swamped me then:

Grief: Mourning a friendship that once gave you joy.

Shame: Feeling like you’re “too much” or “not fun anymore.”

Isolation: Not knowing who you can lean on now.

Bitterness: Seeing others surrounded by support while you feel alone.

It also offers coping methods. MS/chronic illness made me tougher (scarred over, more like). And so grateful for online communities like you here at MS Connections and the Mighty — thanks! :)

How to Cope When Friends Disappear After Diagnosis

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #disability

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