To the Mom Who Thought a Down Syndrome Diagnosis Was Devastating News


Screen Shot 2015-01-21 at 10.36.25 AM If I could go back to the day I received what I deemed “the most devastating news ever” — that my newborn son had Down syndrome — I would say, “Girl, you shed an extreme amount of unhappy tears on a day that was supposed to be one of the happiest days of your life.”

I would tell myself, “Just wait, you’re going to experience a need to protect like you’ve never felt before. You will fully understand what the term ‘mama bear’ means.”

I would tell myself, “Greyson will always be able to turn your frown upside down.”

I would tell myself, “Greyson is going to teach you patience, empathy and compassion.”

I would warn myself, “You’re going to realize your special needs son is special — but not because he has an extra chromosome,”

I would say, “Don’t stress about what his future holds; cherish his preciousness now.

I would insist, “Don’t read the crap on the internet about Down syndrome or what ‘they’ say will happen.”

I assure myself, “Greyson is going to amaze you with his ability. You’re going to use the term ‘quick study’ when referring to your little man.”

I would console myself. “I know you’re going to worry about what strangers whisper about your son, but you will become oblivious to those around you. You won’t look for the stares. You’ll find strangers who are smitten with your blonde-haired, blue-eyed baby boy.”

I would tell myself, “You’re going to be so proud of your son and excited when he reaches each milestone. You’re going to become his biggest cheerleader, proudly touting each and every accomplishment.”

If I could go back to the day I got Greyson’s diagnosis, I would simply say, “You, with the love and support of your family and friends, got this! You’re going to be fine. More important, he is going to be fine. Actually, he is going to be better than fine.”

6188

This post originally appeared on Greyson and Gavin’s Ma.

The Mighty is asking its readers this question: If you could go back to the day you (or a loved one) got a diagnosis, what would you tell yourself? If you’d like to participate, please send a blog post to [email protected] Please  include a photo for the piece, a photo of yourself and 1-2 sentence bio.

TOPICS
JOIN THE CONVERSATION

Related to Down Syndrome

My Son Says ‘Mama’ in a Different Way Than Most, and I Love It

Before I began my career as a nurse, I worked as a preschool teacher (and I still wanted children!). I said things like “use your walking feet,” and “teeth are for smiling and eating apples but not biting our friends.” My personal favorite was “use your words.” I find myself using similar sayings when speaking to my children and [...]

Dear Doctor Who Gave Us a Down Syndrome Diagnosis, This Is What You Should and Shouldn't Have Said

Dear Doctor, We tried for months to conceive, and we’re so thrilled to be pregnant again. Remember how excited I was at our first prenatal visit? Our 2-year-old daughter is going to be a big sister! My family and friends are so excited for us. I told everyone at work that I had the Panorama blood [...]

Once I Saw Past the Diagnosis, I Realized We Hit the Jackpot

Two years ago, we went in for our gender reveal ultra sound to hear we’d be having another girl. Instead, we left that appointment shaken. Our OB gently told us that they found small calcium deposits on Kennedy’s heart. They said we shouldn’t be alarmed, but an appointment had already been arranged for us at a [...]

Dear Dad Facing Your Daughter’s Down Syndrome Diagnosis, You’re So Screwed…

Dear Esteban, Dude, relax. Take a deep breath. It’s OK to feel scared. Do you want to punch that wall again? Go ahead. Did it help? Now you’re still scared and your hand hurts. I know you feel like you have to get it out of your system, and that’s OK. Go. Lock yourself in [...]