The World Is a Better Place Now That You Are Here


Three years ago I experienced a heartache so intense I thought it impossible to recover from. In some ways, I’m not completely recovered.

Just hearing the name of your diagnosis can spring instant tears to my eyes. Some days they are tears of sorrow, but many days they are tears of pride. You’ve shown me a strength I didn’t know I possess. Your strength is nothing short of heroic and beautiful. You’re resilient, courageous and you persevere, despite the obstacles that line your path. You often cannot express what’s on your mind, what you’re feeling, and you can’t always make sense of what’s going on around you. You cannot understand the world you inhabit, and yet you always smile.

Screen Shot 2015-03-17 at 12.01.05 PM

You shine. You beam from within. It illuminates my path when I stumble, when I’m fraught with indecision, mired in what-ifs, the constant worry about tomorrow and the ongoing challenges ahead. You carry me through the darker days and nights when your sister prays and asks Santa again to take away your disability.

I used to beg, bargain and plead for the same thing — until I realized then that you wouldn’t be you. You wouldn’t be the child whose silliness I adore, whose character and compassion I so admire. And your laugh, it’s my favorite song, the sweetest melody.

As a parent, a mother, it’s my role to help teach you, to guide you, but it turns out, the lessons come from you. You’re kind, gracious and so joyful. You love unconditionally. I look up to you. The world is a far better place now that you are here.

Screen Shot 2015-03-17 at 9.43.51 AM

Want to end the stigma around disability? Like us on Facebook.

And sign up for what we hope will be your favorite thing to read at night.

TOPICS
JOIN THE CONVERSATION

Related to Williams Syndrome

This Fun Version of ‘Uptown Funk’ Has an Important Twist

Hernando High School in Desoto County, Mississippi, released the video below last week. In it, members of the high school’s Interact Club and the CFA Leadership Academy perform a goofy lip dub to the song “Uptown Funk” by Mark Ronson, featuring Bruno Mars. The lip dub, called “Uptown Blue” aims at raising awareness for autism. Check [...]

When My Son Reminded Me to ‘Stop and Smell the Flowers’

This past summer I took my boys out for an evening walk around the block. My toddler was hyper, and I was hoping to let him run off some energy before bed. What I’d intended to be a quick 10-minute loop turned into a 45-minute extravaganza, and we were just half way home. My 4-year-old was [...]

Know One Thing, Spina Bifida

Dear spina bifida, We got along pretty well at first. I could deal with the fact that I couldn’t do certain things, as long as I had some control over my body and knew what to expect from day to day. Now, I feel as if I’m in a constant battle every single day. The pain [...]

When Someone Suggests Your Child Has Autism

It’s been suggested to you — maybe by a well-meaning neighbor, teacher or family friend — that your child may have autism. You don’t know anything about autism. You can remember seeing “Rain Man” once. You can remember seeing a documentary with a person with autism. Your child is not like that. No, your friend or [...]