The 3 Words My Son Said as He Squeezed My Hand in the Hospital

Isaiah is almost 2 years old and has already been poked by at least 50 needles, had tubes pushed up his nose, had two surgeries and broke more than 20 bones. He has a severe form of Osteogenesis Imperfecta (OI) and a moderate case of hydrocephalus.

Hydrocephalus is what brought us to an MRI table at the hospital, our second home. He had surgery only a month before to place a shunt in his head to relieve the built-up spinal fluid, so an MRI was needed to check if things were improving.

Thanks to Isaiah’s OI, I’m always nervous when he undergoes new procedures because of his risk of fractures. His last MRI was done under sedation; this time, he was going to be awake. But I was also going in the MRI scanner with him in this case. This is standard procedure at this hospital for kids his age. Normally, I’m on the sidelines during Isaiah’s procedures. This time, we got to face things together.

I placed Isaiah on the MRI table and was directed on how to lie next to him. My son is the size of a typical 6-month-old, so there was a lot of room on the table for me. Isaiah had a cage-looking device placed around his head, and I hopped up on the table at his feet with my head hovering right above his belly. We put in our earplugs, and the table lifted and moved into the MRI scanner.

The scanner started booming and clicking and sounded a bit like a very loud vacuum cleaner. Isaiah was startled, so I gently grabbed his hands and started singing. After a run through of “Wheels on the Bus,” “Boom, Boom, Ain’t It Great to Be Crazy?” and “Old MacDonald Had a Farm,” the technician came over the speaker and told us it’d be just another two minutes.

I was so glad I was there with him, but it made me face the reality of what Isaiah is going through. It’s scary and he’s not exactly at an age where I can explain what’s going on.

More loud booms.

Just when I thought Isaiah would jump and start crying, he did something I never expected.

We locked eyes. He squeezed my hands and said three little words that I often say to him: “I’ve got you.”

Of course, it sounded more like “I gah ew,” since he’s still learning to talk. But there he was, surrounded by a loud machine, going through more testing, with every reason to be afraid, assuring me that we were going to be OK.

“I’ve got you” is what Isaiah’s daddy and I say to him when we pick him while we’re on an elevator or someplace new. We always say, “I’ve got you. You’re going to be OK.” As soon as he hears us utter those words, you can see the relief in his eyes.

“You’ve got me? That’s right, Isaiah. You’ve got me. I’ve got you too.” Those are the words I spoke back to him while blinking away the tears in my eyes. That moment in the MRI scanner confirmed so much about Isaiah in my heart.

He is brave. He is loving. He is selfless.

I’m so glad we’ve got each other.

Follow Isaiah’s journey on OI Believe in Isaiah.

The Mighty is asking the following: What’s one unexpected source of comfort when it comes to your (or a loved one’s) disability and/or disease? If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our “Share Your Story” page for more about our submission guidelines.

Find this story helpful? Share it with someone you care about.

Related to Osteogenesis Imperfecta

baby boy laying outside laughing

To the Mom Who Learned Her Unborn Baby's Condition May Be Lethal

Dear Vicky, Osteogenesis Imperfecta. OI. You knew nothing of those big words or that acronym before Isaiah. At your 20-week ultrasound, you were anticipating finding out your baby’s gender. You’d just recently started feeling little kicks and flutters; you were elated. Your baby was growing big and strong. (Or so you thought.) You watched your baby on [...]

Autism Didn't Change My Son. It Changed Us.

If I could go back to December 17, 2011, I would want to make myself sit down with someone — a professional or trusted figure — and just let out the complex feelings I tried to put a resolute demeanor over. We weren’t surprised to receive an autism diagnosis for our 3-year-old son; we were [...]

When I Finally Realized My Son Would Not Be Like Other Children

My journey from pregnancy to the birth of my son, Tyler, was unremarkable. I had no issues getting pregnant, the pregnancy was uneventful and my delivery at age 32 was enviable. His first year of life was not without challenges, but being my firstborn, I didn’t suspect anything was “wrong.” He wasn’t typical by any [...]

Why It Was Necessary for Us to Mourn Autism for 24 Hours

Thinking back on when I first began trying to get pregnant, I recall conversations before, during and after visits to the OB/GYN between my husband and I as we weighed our options for conceiving the child we’d talked about so many times. In my early 20’s, I found out that I have a syndrome which [...]