30 Autism Parents Describe Their Kids' Bizarre and Funny Eating Habits

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Being a parent to a child with autism comes with its own special set of challenges, one of them being keeping your kid fed. Children on the spectrum can have some seemingly peculiar eating habits, so we at The Mighty asked our readers what unusual, outrageous and funny food requests they’ve received from their kids.

With autism, ritual is important, so for these parents, no food request is too difficult, too strange or even too gross to make a reality. They’ll do whatever it takes to keep their kids happy and healthy.

30 Autism Parents Describe Their Kids’ Bizarre and Funny Eating Habits: 

1. “When my son was little and eating junior baby food they changed the style of the jar. I had take the meal out of the new jar and and put it in an old jar or he would not eat it!” — Lori Stuart Francis

2.Ketchup on everything. Including his peanut butter and jelly sandwich.” — Myndie O’Hare

3. Frozen waffles ([kept] frozen). Frozen peas, frozen blueberries… always gotta have a theme with autism spectrum disorder.” — Kelly Smith

4. “When [my daughter] eats a turkey sandwich it must be put together like a sandwich, but she won’t eat it that way, she pulls it apart and eats it separately. However, she won’t eat it if it’s not made as a sandwich first.” — Lauren Cockrell 

A quote from Lauren Cockrell that says, "When [my daughter] eats a turkey sandwich it must be put together like a sandwich, but she won't eat it that way, she pulls it apart and eats it separately. However, she won't eat it if it's not made as a sandwich first."

5. My son just likes to put Sriracha on everything. Cereal, pasta, yogurt, you name it.” — Shelley Friesland

6. My son thinks salsa is a beverage.” — Lisa Natham

7. “My son loves chicken nuggets, and he eats a 20-piece. One time they only put 19 in the box. Needless to say, this did not go well.” — Tonya Warren

8. Cereal with sprite. Sour cream on eggs. A raw onion.” — Jessica Bowen

9. “My son made a graham cracker cheddar cheese s’more… and ate it!” — Jodie Tompkins

A quote from Jodie Tompkins that says, "My son made a graham cracker cheddar cheese s'more... and ate it!"

10. “My son is now 10, but because I introduced him only to healthy food to start with, that’s all he continued to want for years after. So, we would go to the mall and get something like, say, KFC with the family, and my son would order a bowl of green peas. Everyone always stared at us in horror, like we were punishing him. I had to keep offering him chicken loudly so they knew we weren’t withholding it!” — AJ Madams

11. “[My son] would carry a box of ‘Mac n Cheese.’ Didn’t want to eat it, just talk to it.” — Teresa Watts

12. My son only eats tan, room temperature crunchy items — chips, crackers, etc. If two crackers are stuck together he won’t touch it because ‘it’s broken.’ Been on this ‘diet’ for the last two years and still going strong! Somehow he keeps growing and he’s of a healthy weight.” — Jami Leavell

13. “My daughter loves Cheetos dipped in cherry yogurt.” — Judy Echeagaray

A quote from Judy Echeagaray that says, "My daughter loves Cheetos dipped in cherry yogurt."

14. A butter shake: a whole stick of butter and milk and ice.” — Ililani Foree

15. “Food may only be served in either a ‘Lightning McQueen’ bowl or plate.

16. Lemons are my 11-year-old’s favorite fruit.” — Erin Howell Sharpe

17. “My daughter used to dip brownies in ranch dressing.” — Mika Clardy

A quote from Mika Clardy that says, "My daughter used to dip brownies in ranch dressing."

18. “My son is now 21, but still every Friday he has to have a pineapple pizza. It doesn’t matter where we are in the world, he has to have it. When he was younger it was a cause of great distress if we couldn’t find anyone to make one whilst on holiday. I have even taken to buying tins of pineapple and asking pizza shops just to make a plain pizza and add my pineapple to it.” — Jane Parker

19. My son will not eat broken crackers. I eat them.read somewhere those ones have zero calories… really, he’s helping me out.” — Kirstin Aitken

20. “Ketchup with cereal… I stopped asking questions long ago.” — Lindsay Rose Jolly

A quote from Lindsay Rose Jolly that says, "Ketchup with cereal... I stopped asking questions long ago."

21.I made my son a sandwich with turkey, cheese and lettuce. He took it apart, put it in the ‘correct’ order and then ate it.” — Betsy Burnish Gibides

22. “Mine would only eat eggs if they were dyed green. Whatever it takes, I guess!” — Katherine McBrair

23. Everything has to be mushy. He won’t eat anything that’s in chunks or pieces. So everything he eats takes a trip through the food processor. The only exception to this rule is French fries. Those are fine as is.” — Cindy Webb

24.My son was obsessed with salt. He would attack and steal the salt shakers, dumping them out on the counter and eating the salt. We used to have to hide them. Glad that has passed.” — Karen Cleghorn

25. “[My child] loves Reese’s peanut butter cup cereal, but you have to put milk in, let it soak, then take the milk out.” — Jeanine Spano

A quote from Jeanine Spano that says, "[My child] loves Reese's peanut butter cup cereal, but you have to put milk in, let it soak, then take the milk out."

26.All bread items were to be dunked in water before he consumed them.” — Trudy Leal

27. “[My son] likes to dip his Triscuits in milk.” — Marissa Collins

28.Grape jelly on scrambled eggs.” — Kimberly Phillips Nelson

29.Ice cream cones… just the cone, no ice cream! I think it’s the cold because she also doesn’t like ice in her drinks.” — Aimee Lackey

30. “My son orders his burgers like this: ‘I want a plain burger, just bun, burger, bun, with nothing on it. Bun. Burger. Bun.’ I love that. Also, his school lunch is always what we call ‘meat in a bag.’ Ham in a bag with bread in a separate bag, and he eats them separately… [He] says ‘I’m just not a sandwich kind of guy,’ as his answer to anyone who questions him.” — Lauren Swick Jordan  A quote from Lauren Swick Jordan that says, ""My son orders his burgers like this: 'I want a plain burger, just bun, burger, bun, with nothing on it. Bun. Burger. Bun.' I love that."

Does your kid make elaborate and funny food requests? What are the best ones? Let us know in the comments below!

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How a Music Venue Made My Son With Autism Feel Included at a Concert

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My 16-year-old son with autism has two loves in his life: teddy bears and music. He likes the same Top 40 pop songs most kids like; it’s something he gets lost in. He dances with his head. Sometimes, his body is so rigid that other people think he’s awkwardly swaying. With padded headphones, which don’t cause him sensory discomfort, and an iPod, he does his own version of musical head-banging. He’s happy.

Over the years, we have included Andrew in nearly everything his siblings do. At 5 feet, 10 inches tall, he may no longer be the cute little boy I could scoop up into my arms during a meltdown in the supermarket, but he belongs in our community. 

This year, he wanted to go to a concert just like his sisters always love to do. And I’m talking about a concert in a big outside amphitheater. Fortunately, we can sit in a box, which provides some privacy from being knocked over by other people dancing.

I called Diane, one of the managers of the venue (the Xfinity Center in Mansfield, Massachusetts), and told her about Andrew. She was excited he was coming to a show and invited him for a private visit the day before. It was a simple act of kindness. She took an extra step to set him up for success and feel as included as everyone else at the venue.

Andrew, our behavior therapist and I made our way to the music venue on a Friday. Andrew was clutching his oldest and favorite teddy bear. Upon our arrival outside the gates, he was greeted by Diane and her warm smile and calm and kind words.

She took him everywhere. She showed him where he would enter at a restaurant to eat first. She even asked him what table he wanted to sit at. Then she showed him the private restrooms he would use, walked him around the arena and showed him our seats, explaining how loud it would be the next day. We reminded him that’s why he was bringing headphones and could ask for a break anytime.

She then showed him another space in one of the on-site offices. It was where some of the police working details congregated at the end of the night. It wasn’t fancy, but it was away from the noise if needed. It was a novel, creative accommodation for a venue that had been open for 35 years. Andrew left excited, and we listened to the music we would be seeing live on the way back home.

Laurel Collins the mighty.3-001

On concert day, we were led by Diane to the table Andrew had selected in the restaurant. She had placed a sign on it that read “Andrew’s friends” and decorated it with a teddy bear. The venue staff — from hospitality to security — had all been prepped for Andrew’s visit. Being a worried mama, I didn’t want him to get lost and not be able to ask for help. As we were eating, Diane approached Andrew, who was sitting with his bear, and introduced him to her teddy bear “Ozzy,” a rock-and-roll bear wearing a leather jacket and holding a guitar.  She gave it to him, saying Ozzy would be happier with him and his bears than at her house.

You could see the joy on Andrew’s face seeing the singers whose songs he knew and dancing in his own way. Taking it all in was hard for him, but there was a smile on his face. Yes, there were walks and breaks needed. Thanks to Diane, however, and the fact she took time out of her life to make him feel prepared, Andrew had the night of his life.

This is what inclusion is. It’s about including a child with special needs with kindness and joy and not out of a sense of obligation. “Ozzy” and Andrew’s bear have become good friends and have now gone to two more shows together. Andrew has become the “mayor” of the venue and the staff treats him with dignity, respect and kindness. You can see how relaxed he is when someone says, “Hi, Andrew.” These are the people he feels safe with.

Music brings many of us joy. It brought Andrew to a new place where he’s able to do what other kids get to do. Thanks to Diane, who set him up for success, he not only can access live music, but have fun. Seeing him happy and truly included makes my heart smile.

The Mighty is asking the following: Tell us about a time someone went out of his or her way to make you and/or your child feel included or not included. If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our “Share Your Story” page for more about our submission guidelines.

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To the Mom Worried Her Child With Autism Isn't Meeting Milestones

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In the beginning, they ask, “Is your baby rolling? Crawling? Babbling?” Then the questions become, “Is he walking? Eating well? Potty-trained? And what if, at those moments when he’s “supposed to be,” he just isn’t?

Your worries take over as a mommy. You wonder, did I somehow fail?

These feelings are real. It feels like you spend forever waiting and wondering, staying awake late into the night with a strong prayer: “Please just let him catch up.”

If you’re like me and have broken the search engine for answers with tears of worry in your eyes, know this: It’s OK. We need to stand strong and support our children, even if they aren’t necessarily fitting into those set milestones.

If you’re going through it now, I’m here to say: The beginning is most definitely the toughest. Be the Mommy, Daddy, Best Friend, Advocate, Teacher and Hero for your child  but understand that above all, he will teach you more about yourself than you will have learned in all of your years on this earth.

Where do you go from here? You choose positivity — it’s what floats hope. And when they ask those questions, smile, Mama — breathe and do what you need to next. Walk away, laugh and nod, go home and scream into your pillow, and then hug your boy. Promise you’ll stand by him, protect his individuality and celebrate him. He’s wonderful, beautiful, kind, gentle and smart. Anyone too ignorant to see that falls short of those qualities themselves.

Don’t try to make him what you thought he would’ve been. Embrace him, for he is much more than you ever hoped for.

Don’t be afraid to say with pride, “He has autism.”

If he wants to spin, spin with him. If he wants to dance, dance with him. Scream, hug him tightly. Laugh with him, and be thankful he’s different. After all, who would want to be the same?

Your child will hopefully go through life empowering others to step out of their small generalist boxes and become something special.

As Dr. Seuss said, “Why fit in when you were born to stand out?”

'Why fit in when you were born to stand out?' -Dr. Seuss

Signed,

One Proud Mama

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Mom Finds Her Autism Awareness Sign Vandalized

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Eliese Livingston, from Sandy, Utah, has a 5-year-old son, named Kyler, who has autism and limited communication skills. Because of this, Livingston put a sign on her car reading, “Autistic child may not respond to verbal commands,” to let first responders and others know about Kyler, KSL News reported.

On Tuesday, July 14, Livingston found that someone had vandalized her car and the sign by adding words of their own to it.

sign reads "Autistic child may not respond to verbal commands" Others have written "spoiled brat," "unentitled," "undisciplined."

Stickers reading “Spoiled Brat” and “Undisciplined” were placed near Livingston’s autism awareness sign, as well as the misspelled word “Unetitled.”

It’s just appalling, all of it,” Livingston told KSL News, “He will struggle for his entire life and people want to make fun of it?”

In addition to filing a police report about the vandalism, Livingston also used this as an opportunity to talk to her neighbors and educate them about her son’s disability.

Get the full story in the video below: 

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When I Hear What My Son With Autism Doesn't Say

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If we’re lucky, we have a few close friends, a few besties we can count on for the good times, the hard times and the times when life just takes a big, giant dump on you. Each one of those friends plays a different role. There’s the grab-a-bottle-of-wine friend who helps you connect with denial when you want to shut it all out and drown your problems with wine, cheese, chocolate and idle chit chat. There’s the friend who takes that bottle of wine and helps you put your big-girl pants on while dragging you kicking and screaming into your wine-free reality.

And then there’s the friend whose soul is so similar to your own, you’re convinced you were friends, if not sisters, in another lifetime. The friend you share a quiet connection with, a deep-rooted bond based on hearts and minds that are so alike. The friend who hears what you don’t say.

best-friends-hear-what-you-dont-say

This friend, who knows my brain and my heart almost as well as her own, bought me this sign for my birthday that reads, “Best friends hear what you don’t say…” I love it because it’s true and because it’s us. This friend and I have heard one another without ever saying a word.

As I stared at my sign that hangs on my most favorite place in the world, my beloved back porch, I couldn’t help but compare this unique, wordless bond I share with my friend to the quiet bond I share with my son, Ryan. Of course Ryan would never call me his “friend,” let alone his “best friend” because, well, I’m just Mom, but my connection with Ryan is equally unique, and just like my friend and I, sometimes I can hear Ryan without him saying a word.

Although Ryan is completely verbal, he doesn’t say much. There are no sitdowns where he shares his feelings with me. I get almost no information on how his day went, what’s happening in his life and how he feels about it. I understand this is typical behavior for many teens, and I understand hormones make Ryan’s silence seem even louder, but most teenagers have a bestie they can confide in. A friend who shows up, a friend who helps them forget, a friend who gets it, a friend who hears what they don’t say. Ryan does not. Autism makes finding that connection, that bond, that friend difficult. And even if he finds it, knowing what to do with it is even more difficult.

With Ryan, there’s also no, “Hey Mom, how are you? How was your day?” coming from his mouth. I know he cares about me and my day, but autism makes that social back-and-forth exchange difficult for him, so it’s easier not to ask. Not asking doesn’t equal not caring. As I sat swaying back and forth on my porch swing, recognizing the parallels between my friendship with my girlfriend and my relationship with my son, I couldn’t help but smile.

In that moment, I realized most of the time, even through the silence, I hear what Ryan doesn’t say.

When Ryan comes up and presses his forehead against my own, he’s saying, “Mom, I have something good to tell you, so please ask.” When he walks in the front door after school and goes straight to his room without putting his backpack in the foyer closet, taking off his shoes and coming to give me a hug, he’s saying, “There was a glitch in my day.” When Ryan pulls at his eyes and grabs at his face in an attempt to hold back his tears, he’s saying, “Mom, I’m hurting, I’m sad and I don’t know how to tell you.”

When he sniffs 50 times in 30 seconds, he’s saying, “I need some type of deep pressure, squeezy-tight hug because my sensory system is overloaded.” When Ryan’s hand flicks back and forth and back and forth until it is just a blur of skin, he’s saying, “I’m anxious” or “I’m excited.” When he fights back a smile and contorts his face in an anti-smile grimace, Ryan’s saying, “I’m proud, happy, excited, but I’m not sure how to react or share my joy.” If I “listen” closely, I hear what he doesn’t say.

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And although Ryan may not directly ask me about my day, when he catches me silently crying, he will snuggle close. Even though he doesn’t utter a word, I can feel his “I’m sorry you’re sad, Mom” in his knock-me-down hug. I can see Ryan’s compassion and his sympathy for my sorrow when a tear or two falls to match my own. I can hear his joy when he laughs with me even if he has no idea what I am laughing about. Yes, Ryan hears what I don’t say, too.

So just like with my bestie, I have that quiet, unspoken connection with Ryan, too. And I know he has that quiet connection with me. Ryan shares his life, his joy, his accomplishments and his heartache with me. I just have to see it, I have to feel it and I have to hear it, even when he says nothing at all.

As I relax on my back-porch swing, wine in hand listening to the crickets and the sound of Ryan scripting the latest Minecraft YouTuber coming from his bathroom window, I look at the sign and smile. “Best friends hear what you don’t say…” helps me to remember that although Ryan will never refer to me as his “best friend,” I will always hear him.

Even as my little boy slowly morphs into a full-fledged, silent, brooding teenager, in those moments where I worry he’s slipping away from me, if I listen closely, I can still hear what he doesn’t say. Ryan may not have a friend who tells him to “put on his big girl pants” (“Why would I wear girls’ clothing?”) and face what lies ahead, but if Ryan finds one friend who sees him, who feels him and who hears him when he doesn’t say a word, I believe they’ll both be happy, secure and comfortable in their silence.

In a world that’s busy, loud and full of noise, sometimes a best friend (or a mom) really can hear you without any words spoken, without any connection from your mouth to their ears. All anyone needs is a connection to your heart, and they’ll always be able to hear what you don’t say.

Follow this journey on The AWEnesty of Autism.

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The Animation Game That Could Help Kids With Autism Develop Social Skills

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A new animation program is making learning social skills easier and more fun for kids with autism.

Gary Jesch, a digital animator based in Carson City, Nevada, recently developed Invirtua Animation for Autism, a live animation system designed to help children with autism work through social anxiety and learn social interaction skills.

Also referred to as a “digital puppeteer,” Invirtua features animated 3-D characters controlled on a screen to demonstrate positive behaviors like facial expressions, eye contact and social interaction. Children with autism can interact with the avatars and learn from the behaviors they model in a fun, engaging way. They can also control the avatars to convey their own feelings.

“Therapy can often be frustrating and challenging. Depending on the child, it might be hard to hold their attention or lower their anxiety enough to make it effective,” Jesch told The Mighty. “We [thought] bringing this live animation technology — which really seems to appeal to kids — into therapies could help.”

The concept behind Invirtua is based on video modeling, a teaching method sometimes used in autism therapy where children visually learn behaviors or skills by watching them on a screen. A parent or therapist can control a chosen character on the Invirtua computer screen using a tablet and a pen in what is called the “control room.” The character — an animated fish, dinosaur, animal or a person — displays on a screen in another room, the “audience room.” The Invirtua program provides a webcam that can be placed on top of the screen in the audience room so whoever is in the “control room” can monitor the child in the “audience room.”

The person in the control room can make their character talk, and his or her voice comes through the speakers in the audience room. From the audience room, the child can see and hear the character doing whatever the person in the control room wants it to do — moving across the screen, expressing a range of emotions and making facial expressions.

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This is what the screen, controls and tablet look like in the control room. Copyright 2014 CHOPS & Assoc. Live Animation

For children who find it difficult to talk and make eye contact with others, socializing with a character on a screen can be a helpful step toward feeling comfortable interacting with people. The avatar removes the authority figure, like a teacher or a therapist, from the equation and allows the child to practice important communication skills in a lower-stress environment. Jesch, who’s worked in live animation for more than 20 years, noted that the children who participated in Invirtua’s pilot programs demonstrated lowered anxiety levels once they began working with the avatars. 

“Humans, without realizing it, can convey anxiety and stress. Kids pick up on that,” Jesch told The Mighty. “Avatars can make that all a lot easier. They aren’t intimidating; they’re silly and fun.”

In addition to helping children with autism develop social skills, Jesch said this technology could be useful for training airline personnel, police officers, teachers and other professionals to learn to better interact with people who have autism. He also plans to meet with children who have nonverbal autism and their parents to see how the technology could help them.

Check out some of the available avatars and watch the Invirtua program in action below:

Morphie01
Copyright 2014 CHOPS & Assoc. Live Animation
Malachi01
Copyright 2014 CHOPS & Assoc. Live Animation
kikof01
Copyright 2014 CHOPS & Assoc. Live Animation

The Invirtua Animation for Autism program is available through the Animation for Autism website.

To learn more about this program, visit the Invirtua website and contact Gary Jesch.

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