Girl With Down Syndrome and Cancer Has Priceless Reaction to Portrait of Herself


On October 1 Rhode Island-based photographer Laura Kilgus hosted a gallery show to bring her community together for Down Syndrome Awareness Month, and not surprisingly, it was a smash success.

Kilgus told The Mighty in an email that nearly 200 people showed up to the event, and it was a “happy tears” kind of night. She added that the kids’ reactions to their own portraits were priceless, but she was especially moved by 5-year-old Celia, with whom she’s done a number of portrait sessions over the years. Celia is currently undergoing treatment for cancer.

Image courtesy of Laura Kilgus/9ten Photography

“Celia’s smile was so huge when she looked at the photos of her and her sister, Ava,” Kilgus told The Mighty. “She pointed and knew exactly who that was. She also pointed and smiled at the photo below hers of her friends. She said, ‘That’s Ryan! That’s Logan!’ Seeing her light up with that same happiness showcased in that image was something I will never forget. It was really a special moment to witness. I can’t imagine what that must have been like for her.”

Kilgus said Celia was playing with other children in the hall and “even doing some cartwheels, Celia style!”

Image courtesy of Laura Kilgus/9ten Photography

Celia’s mom, Katie Furtado, said the portraits of her daughters is giving them hope for the future.

“It reminds me of a different time, an easier time,” she told The Mighty in an email. “It is a wonderful memory, exactly what a picture is supposed to be, I guess. It was before Celia was diagnosed with cancer, before she lost her hair and before she became too weak to walk. We will get back there, she will walk again and run through the park again, but until that day, we have this beautiful memory and nothing can replace that.”

Check out more of Laura Kilgus’ photographer on her website, 9ten Photography.

TOPICS
JOIN THE CONVERSATION

Related to Down Syndrome

Portrait Series of Kids With Down Syndrome Spreads Contagious Joy

For the last four years, Rhode Island-based photographer Laura Kilgus has been passionate about helping the Down syndrome community in any way she can. After reaching out to Claudia Lowe, executive director at the Down Syndrome Society of Rhode Island (DSSRI), Kilgus, 29, has offered complimentary photo services to a number of families involved in [...]

Zombie Filmmakers Have Stellar Advice for Other Teens With Down Syndrome

Last year Sam Suchmann and Mattie Zufelt made headlines when they launched a Kickstarter campaign to gain funding for their yet-to-be-titled zombie movie. After just three weeks on the crowd funding site, 1,494 backers donated $68,936 to the teens, and in August, Suchmann and Zufelt finished principal shooting the film. So what’s next for the [...]

Actor With Down Syndrome Makes Debut on the U.K.’s Longest-Running Soap Opera

Liam Bairstow is the first actor with Down Syndrome to appear on ITV’s hit series “Coronation Street,” and on Sunday, September 13, he made his small screen debut. Joseph Scanlon/ITV Bairstow, 26, starred as main character Cathy Matthews’ nephew, Alex, and he will continue his guest role later this year, The Independent reported. ITV confirmed that Bairstow [...]

Why You Should See ‘Where Hope Grows’

You know that moment when the film credits end and you walk out of the theater and turn to the person with you and say, “What do you think?” Last night, after seeing “Where Hope Grows,” my wife said, “What do you think?” Me: “It’s not what I expected.” Her: “What do you mean?” Me: [...]