Philip Reyes is a seventh grader at Heim Middle School in Williamsville, New York, and he recently wrote a piece about autism and communication for The Buffalo News. Reyes is nonverbal, uses Rapid Prompting Method (RPM) to communicate, and he hopes sharing his story will give other nonverbal kids the same opportunities as him.

“I am attacking the idea that autism is a bad thing that should be eradicated,” Reyes wrote. “For me, autism is a different way of sensing, moving and interacting with the world.”

“When people talked about my concerning behaviors in front of me I would feel embarrassed and pent-up shame,” he added. “I was made to feel horrible for my autism.”

Reyes didn’t start using RPM until he was 9, and he wrote that the results were life-changing:

I have been lucky that my parents never made the mistake of giving up on finding a way for me to communicate. I appreciate the value of communication because it allows a person to be known.

Before communication, I felt like a caged animal because I had no say in my life. Since finding my voice, I feel more human, as people listen to my words. Most people forget how lucky they are to be able to talk. I was not one of the lucky ones. But I was fortunate to learn to type to communicate. Through RPM, I learned to show I could learn normally and communicate.

It has been three years since I learned RPM. During that time I was able to switch from an autism school where I learned basic letters and numbers up to 5, to a regular public middle school where I am included in regular classes. I am with good teachers who understand me. I also have been able to try more new things like riding a bike and playing soccer.

You can read more of Philip’s posts on his blog, Faith, Hope, and Love…With Autism and be sure to check out his Facebook page as well.

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Parents of children with autism are like all parents — they want the best for their kids. That means you can often find an autism parent bending over backwards to find (healthy) food their kids actually want to eat. Because of sensory issues relating to food, as well as a need for strict routines, children on the spectrum can sometimes have a sensitive palate and specific meal requirements that restricts the number of foods their parents can offer them.

Our autism parents will do whatever it takes to keep their kids happy and healthy. That isn’t always easy, but, finding humor in those challenges can be a great way to cope.

We asked our readers who are parents of children with autism to share some of their favorite memes about food-related issues their family faces every day.

Here’s what they shared with us:

1.

Autism Parent shopping when they find something their child will eat
Submitted by Liz Stanley

2.

Your face as you attempt to process the reality of gluten free, casein free, soy free, etc for your child
From Autism Odysseys Facebook page. Submitted by Stephanie Walrath Shultz.

3.

How I feltThis weekend Posted by Autism Mommy on Monday, November 23, 2015
4.
Taste the Rainbow (skittles) but only after they have been put into color coded groups and looked at for half an hour
From Autism From a Dads Eye View. Submitted by Kevin O’Neill.
5.
an autism parent's face when told she won't be able to tell the difference between food brands
Submitted by Grantham Autistic Information Network (GAIN) Facebook page
6.
you might be an autism parent if you know what brand loyalty is
By My Crazy Little People Facebook page. Submitted by Gena Noslen.
7.
8.
Autism rule #20 when offering your child a new food stealth observation may be preferable to direct observation
From Autism Odysseys. Submitted by Stephanie Walrath Shultz.
9.
the perk of having a kid with food aversions? you usually dont have to share your food
Submitted by Gena Noslen
10.
how autism parents look when our child eats a new food (shocked)
Submitted by Liz Stanley
11.
autism household's menu: chicken nuggets and pizza
Submitted by Stephanie Walrath Shultz
12.
Can anyone relate? LOL! Posted by Autism Odysseys on Tuesday, November 24, 2015
13.
nobody hides vegetables better than an autism parent
By Autism From a Dads Eye View Facebook page. Submitted by Kevin O’Neill.
14.
If you mess up our pizza order one more time, I will hunt you down and find you in 30 minutes or less
Submitted by Melissa Cote.
15.
You can never find your shoes when you need them, yet you can find a single piece of onion hidden in your dinner.
Submitted by Liz Stanley
16.  
LOL!TY Ink for Autism Posted by Rain Mom on Tuesday, November 17, 2015
  What would you add? Let us know in the comments below.  Related: 30 Autism Parents Describe Their Kids’ Bizarre and Funny Eating Habits


A couple years ago, I was telling an acquaintance about my son Treven’s autism diagnosis. Then I mentioned that I also have a younger son. The person’s comment didn’t register as offensive at the time, but now that I think back on it, I wish I could go back in time and set this person straight.

The comment was, “I can’t believe that you had another child after finding out your oldest has autism.” 

Well… for one thing, Treven was only 13 months old when we found out we were expecting his little brother, and Treven hadn’t started to show any signs of autism yet.

But, that’s beside the point. We decided to have another baby right away because Treven was a dream baby. He slept through the night at 6 weeks old, and he was happy and loving and hardly ever cried. He actually made my husband and I want another baby right away because he was so easy to love and such a bright spot in our lives. Furthermore, if we would have known about Treven’s autism, we still would have had another child.

Not that I should have needed to explain any of that. It always amazes me when people, especially parents, think it’s OK to make a comment like this.

I try to be understanding of other people’s ignorance, and most of the time I try to assume they probably don’t know what else to say, so an awkward comment slips out. And I try to put myself in their shoes. I guess that is one of the traits I’ve inherited from being a mother of a child with special needs. I try to give everyone the benefit of the doubt, and I try not to judge.

This particular comment is only one of many I’ve heard over the years in regards to my son’s diagnosis…

“Maybe he’s just deaf.” (My son is nonverbal.) “Are you sure he has autism?” “You’re not going to medicate him, are you?” “Well, why don’t you just medicate him?” “Why doesn’t he eat healthier?” “He’s too thin.” Etc., etc., etc.

Then, in the quiet moments of the night (if it’s a “good” night), I am kept awake by the “little comments.” They run rampant through my mind. And they hurt. And they make me question myself. And I worry about making the right decisions for both my child with special needs and my neurotypical child. And that is not something that a parent, especially a parent already on the brink, should have to ponder.

No parent should have to rationalize or explain their parenting decisions to anyone. As a special needs parent, I’ve had many feelings of, “I’m damned if I do, and I’m damned if I don’t.”

The bottom line is this: Treven’s younger brother is his best friend. And nothing about Treven (not even his worst day with autism) would ever make us not want to parent him or any other child. Autism is hard, but I would never say, “I sure hope we don’t have another kid like him.” Even thinking this breaks my heart.

Treven is an amazing gift, and we treasure him for the wonderful person he is. He’s the best part of me and the best part of my husband combined, and there has never been any regret with creating him, just the way he is.

 Follow this journey on Love Needs No Words — Chuckie’s Life With Autism.

The Mighty is asking the following: Write a letter to anyone you wish had a better understanding of your experience with disability and/or disease. If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Share Your Story page for more about our submission guidelines.


To all the children with autism around the world,

Hi kids, Santa here and I’m writing to you from the North Pole to tell you how excited we are that Christmas is coming! My elves are hard at work making toys, and the reindeer have been preparing for our long trip around the world. I’ve noticed my naughty list is much lighter this year, so I’m sure you have earned a spot on my nice list.

The elves and I are writing to you today to let you know we understand how the holidays can be tough sometimes, especially when it comes to meeting me. Malls can be loud, the crowds can be pushy and it can be an overwhelming experience. How do I know so much about this? Well, I’ll let you in on a little secret…

I have autism, just like you.

When I was younger, the wind blowing in to bring snow for my sleigh to land on made my head spin. The elves practiced carols and sang out to spread Christmas joy, but the loud volume and pitches of their voice made me want to hide under Mrs. Claus’s apron. Whenever the reindeer played their reindeer games, all of the hustle, bustle and excitement overwhelmed me, and I would need to lie down and relax. Even when I would go to malls to see other lovely children, like you, I would feel out of place during the holiday season and never really know why.

As I got older, with the help of my elf family, reindeer friends and of course Mrs. Claus, I became more and more comfortable in all of these situations. Sometimes I still have a hard time with these things — and that is OK!

Thanks to all of the support we’ve had through the years, the elves and I have decided we are prepared to bring a little bit of our North Pole Christmas cheer directly to you! You see, because of my younger days, I’m now going to help host an autism-friendly day for you all to enjoy! My elves will teach you all the songs they practiced, on the quieter side just for your ears. The elves are also going to show you how they do arts and crafts, North Pole-style. And finally (and this is my favorite part), you and I will take a picture together so we can both remember how much fun we had celebrating Christmas.

The elves and I are so excited to meet all of you in person. I can only hope we will be able to host more autism-friendly events for all the children with autism around the world. Wishing all of you a Merry Christmas and a Happy New Year!

Happy Holidays,

Santa

You can learn more about our Autism-Friendly Day at Santa’s Elf Factory in Jersey City, New Jersey here.

A version of this post originally appeared on Kerrymagro.com.

The Mighty is asking the following: What’s one thing people might not know about your experience with disability, disease or illness during the holiday season, and what would you say to teach them? If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Share Your Story page for more about our submission guidelines.


I am a parent of a child with autism. Ten years ago, before I knew she was on the spectrum, she received early intervention services. Services that were crucial to her development, to her ability to learn how to walk, to learn fine motor skills, gross motor skills, to speak. Her very future relied on these services — not from a doctor’s office, a neurologist or any other specialist. No, a child can only get services like these from a regional center, and today, Inland Regional Center in San Bernardino, California, where she has been receiving services ever since, was reportedly under attack by three shooters. And people were killed. And my heart sank.

I thought of the many case workers over the years who have spent countless hours advocating for my daughter who were placed in danger. One in particular will always be close to my heart. Though the school district diagnosed my daughter with autism, the Inland Regional Center did not, and this would have prevented her from receiving autism services I knew she needed. Her case worker fought to get those services anyway, and she won. She cared enough to do this for my child because she cared about my child’s future just as much as I do. And my child is thriving now, making gains, doing things I never imagined, all because of the services from the Inland Regional Center, because her case worker was on my side.

I thought of the respite care I’ve received through the regional center funding, and what blessings these respite workers have been to have in my home. Without them, I would be hanging by a thread. Their help has been invaluable in giving me peace and support while raising my special children.

Just six weeks ago, I came full circle as I brought my 2-year-old son to the Inland Regional Center for evaluation to determine if he was on the autism spectrum. He had already been enrolled in the best 39-hour-a-month early intervention program for the last 18 months, fully funded by the center. A kind, welcoming psychologist assessed him. She played with him, she laughed with him, she spent two hours with him and she listened to my story and my appreciation for the many services I’ve received from their center. I recently got a certified letter from Inland Regional Center, saying he was discharged because he had no qualifying diagnosis. He will no longer receive services from this center, but I will forever be grateful for their generosity, and to his case worker, who I pray was not harmed today.

The Inland Regional Center, and all regional centers, are the vital link in the chain of children with disabilities. They provide services that no school district or medical professional provides: they come to your homes. They sit down and listen to you. They fight for your children. They are your advocates when you are too tired to be one. They give services to your children when they become adults. They are right there with you, helping you to understand, to support and to raise your children.

To all the countless therapists and providers who have come to my home as a result of the Inland Regional Center, I say, thank you. You have made my job as a parent to children with special needs more manageable, and more hopeful.

I will forever be grateful to those selfless individuals who have fought traffic to meet me in my living room, to give me comfort like no one else could. They are an integral part of my family’s life — in fact, they’re almost like family. I owe so much to them and to my children’s development.

Follow this journey on The Special Reds.

More on the San Bernardino shooting: 

– Live updates
How to Help Your Anxious Kids When Bad Things Happen
Dad Reads Texts From Daughter in Building During San Bernardino Shooting
Politicians Tweet Responses to San Bernardino Shooting

Video From Inside Building at San Bernardino Shooting


On my Facebook newsfeed this morning: a photo of a birthday cake with numerous likes and comments, and over 100,000 shares. It wasn’t a fondant masterpiece or celebrating a Kardashian; it was just a simple sheet cake with unexpectedly imperfect lettering from a supermarket bakery. The excitement and attention for the cake came from the backstory, which, according to the storyteller, has the moral that “kindness is important.”

The customer explained on her social media post that she simply chose a cake and asked the employee at the bakery counter to personalize it with “Happy Birthday” in colorful icing. As she received the cake, she noticed that the lettering was not comparable to the scrolling edible script we are all accustomed to seeing. Nonetheless, it was legible, so she smiled, thanked the employee and went to check out. At the register, supermarket employees (including the store manager) crowded her to take photos of the cake. They lauded her for smiling at and thanking the employee. One cashier said, “…even though she’s not supposed to write on cakes, you probably made her day.”

It turns out that the bakery employee who was tasked with writing the icing message on the customer’s cake is a woman who has an autism diagnosis. The likes and comments were cheering the customer’s good deed. I have devoted my life to working with people who have developmental disabilities and their families. I am always thrilled to see positive stories about inclusion and acceptance, especially on social media platforms that spread these messages so broadly. Unfortunately, I did not feel thrilled about this particular story, which seems to have garnered a lot of public attention.

Here’s the thing: I’m not sure what autism has to do with cake lettering. Maybe I am mistaken, but it sounded to me like a customer made a request and a bakery employee fulfilled that request to the best of her ability (in cake lettering, remember). According to the American Psychiatric Association’s Diagnostic and Statistical Manual, Fifth Edition (DSM-5), autism is defined by persistent deficits in social communication and restricted and repetitive patterns of behavior, interests or activities. In other words, this employee’s cake lettering ability (or lack thereof) is more likely attributed to her inexperience with cake lettering than it is to her diagnosis of autism. So why is this employee “not supposed to write on cakes?” Why was it that the customer “probably made her day” by accepting the cake? Why was the customer heralded for smiling and thanking the employee? Why are we blowing up social media about this? I have to believe all the questions would be answered with, “Well, because the employee has autism.” Would this social media post even exist if the employee didn’t have autism or the customer wasn’t made aware of her diagnosis?

As a society, we have made leaps and bounds in the short number of years since the civil rights movement for persons with disabilities. We continue to work on this as we see marked increases in the prevalence of many diagnoses, including autism. The Centers for Disease Control and Prevention (CDC) currently estimate about 1 in 68 American children have been identified with autism spectrum disorder. I ask you to consider how many people might be employed at your favorite supermarket. Do you think it’s probably somewhere around or greater than 68 people? If so, you could venture to guess that one of those employees is someone who has autism.

In this story, it was the bakery employee, just doing her job. All the children who have autism will be adults who have autism. We will be transformed as a society whether we plan for this or not. Inclusion of and exposure to persons who carry autism diagnoses will be commonplace in our communities, and it’s time to start practicing true kindness. To me, that means respect. I can’t imagine the cashier thanking the customer, taking photos of a cake and creating a viral social media post because the woman who lettered it is going through a divorce. That employee’s diagnosis is private and personal, and it has nothing to do with her abilities in the bakery.

Despite all my misgivings about the nature of the post and the general public reaction, I’m so glad this photo went viral on social media. I hope that bakery managers across America will see this photo and strike up a conversation with their employees about opportunities for training in cake lettering and other bakery duties. I’m sure there are many employees, those with autism and those without, who are eager to learn a new skill and expand their resumes.

Lead photo source: Thinkstock Images

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