Mom’s Idea Will Help Protect People With Autism and Dementia in Her Community

This mother came up with a way to help firefighters and police officers identify and better protect people with conditions like autism and dementia.

Rose Cutting, from Fennimore, Wisconsin, has a son who was diagnosed with autism at three years old, WMTV News reported. Together with Lancaster Police Chief Debera Reukauf, Cutting came up with the idea to provide a sticker for families like hers to display on their homes or cars to let law enforcement know that someone in the household has a medical condition.

Photo of medical alert sticker

When officials arrive at the scene of an accident or respond to a call and see the sticker, they will be able to find out what kind of medical condition that person might have by looking up an address or license plate in a database. That way, officers will be able to get more information about the situation they are entering and be better equipped to help the people involved.

The sticker and database will be used mainly to identify people with Alzheimer’s, dementia, diabetes, epilepsy, food allergies and autism, and signing up for the program, which involves having infomation stored in the database, is voluntary.

This is the world we live in,” Reukauf told the WMTV. “There are more and more things coming up and we have to learn how to adapt and do a better job at our job.”

The idea to use decals or stickers to alert first responders to people with autism isn’t new, but, including the use of the database, it’s new to Cutting’s small, rural town.

Get more information from the video below: 




When the Coach of My Son With Autism Left Me a Note I Really Needed

It was just another hot, exhausting summer day in Indiana. For the most part, our days are the same. My two sons have autism, and we find ourselves living a daily routine. I picked up the boys as usual from their full day of applied behavior analysis (ABA). Once we arrived home, it all started.

My 5-year-old is nonverbal and requires regular care. I was in my second month of potty training him, and I was starting to feel like a failure. Amidst this, I have my 4-year-old son with autism who wants my undivided attention to play superheroes with him. On one particular evening, I was running on fumes. My non-sleeper had spent the last two nights up. I was sleep-deprived and needed a boost to keep going.

Lo and behold, I got want I needed that night. I felt tears coming to my eyes. I held them in, but there was no doubt I felt like a complete failure as a mother at that point. I didn’t think anything could help, until I found the note!

note on a napkin
Note on a napkin that reads: “Have a great evening! You’re a Supermom!”

I stepped into the kitchen to go through their book bags from the day. One of my son’s coaches left me a note in his book bag. To this day, I have no idea which one did it, but it was what I needed that night!

At that moment, I let the tears flow from my eyes. Someone knew and appreciated what I was going through and took time out of their day to write a few words on a napkin. That is all it took for me to get my boost and feel re-energized.

This is my journey, and I take great pride in it. I would be lying if I said I never got tired, because I do. It gets mentally and physically exhausting. However, on this particular day, in the snap of a finger, I felt like I was on top of the world. And it was all from one simple napkin.

The Mighty is asking the following: Share with us an unexpected moment with a teacher, parent or student during your (or your loved one’s) school year. If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Submit a Story page for more about our submission guidelines.

When a Movie Theater Manager’s Kind Acts Helped My Son After He Was Bullied

Much has been written on the subject of autism and bullying. My son hadn’t been bullied before. I created a safety net around my son, making a point of knowing his surroundings and all the parents in his classroom, overlooking and monitoring his therapists, having daily contact with his teachers and surrounding his weekends with family and friends I felt confident would accept him as he is — a person, a human being, a child with feelings and emotions. But it happened one day. My son was bullied. It’s a date I will never forget.

Our Friday nights consist of going to the movies, regardless if we are on vacation. It was a routine night out. French fries with cheese curd, no gravy, a slice of cheese pizza and water. The movie: “Alvin and the Chipmunks.” It was a great night, the movie was funny, my son was engaged and I was enjoying my mother/son bonding time. But after the movie, my son experienced an act of bullying that left him traumatized and visibly upset.

What mother doesn’t hurt when her child is upset? What mother doesn’t feel the pain when someone else deliberately hurts your child? Why? That is the definition of bullying: there is never a real answer, and if there is, it never makes sense. The person who bullied him didn’t care about his feelings.

Calmly, I approached the manager of the movie theater, a soft-spoken, pleasant gentleman. I explained what happened. Immediately he took us to sit down in the room where birthday parties are held, a special room with posters and colored chairs a room that gave my son space to himself to calm down and be distracted by all the sensory stimuli the room had to offer. I welcomed the gesture. He patiently listened to the course of events, offered me some recourse and apologized for an incident that was not his fault except for the fact that it happened at his place of work. After writing down the incident, I decided without adequate description from my son, not much could be done. It does not always take much to help someone; offering compassion, lending an ear and being thoughtful is many times more than enough.

The gentleman watched as he tried to calm and district himself, and he offered words of comfort to us. He read my complaint and saw we attended the movies every week. Although I was satisfied with his actions up to now, he went above and beyond. He gave my son a poster and movie tickets to attend next week’s show. Even without the movie tickets, we would have returned to the movie theater because it is our weekly routine. But the gesture of kindness means more to the heart than one can explain in words.

We left the theater happy — my son holding his poster and me contemplating the events, grateful to the manager for his support and thinking of all the good people in the world. But there can be people who are not so patient, understanding and can even be downright mean. When I reached the driveway to my house, I will not lie, I broke down in tears.

I have to remember for every person who is not so nice, there are more people who are nice, compassionate and loving. Thank you to the movie theater manager for being the kind of person who makes me believe in this world.

The Mighty is asking its readers the following: Describe the moment a stranger — or someone you don’t know very well — showed you or a loved one incredible love. If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Submit a Story page for more about our submission guidelines.

Lead photo source: Thinkstock Images

Autism Takes Center Stage in New Family TV Series

Autism will take center stage in a new family TV drama airing this spring.

“The A-word,” a one-hour, six-episode show, will air on the SundanceTV channel following the BBC premiere, according to an AMC Networks press release.

The show is a portrait of a fictional family after their 5-year-old son Joe (played by Max Vento) is diagnosed with autism. The series follows them learning to understand the diagnosis, facing differing parenting philosophies and dealing with the intertwining and complicated lives of their relatives.

Photo of the cast of the new TV show "The A-Word"
Photo courtesy of AMC/SundanceTV

“[The show] is hopeful, honest and ultimately about the power of family and the range of issues that families can face together, from autism to aging to adultery,” Joel Stillerman, president of original programming and development for AMC and SundanceTV, said in a press release. “We can’t wait to share it with our growing universe of SundanceTV viewers.”

“The A-Word” is an adaptation of an award-winning 2010 Israeli series called “Yellow Peppers,” from creator, writer and director Keren Margalit, who is also executive producer on the UK series. This announcement of the show comes nearly a year and a half since the premiere of the sixth and final season of NBC’s critically acclaimed show “Parenthood.” “Parenthood” centered around the story of the Braverman family and often featured the challenges of one of the characters, Max Braverman, who has Asperger’s syndrome in the show. As it turned out, Max Braverman was based off the son of the show’s creator, Jason Katims.

Julian Maha, M.D., the founder and CEO of KultureCity, an Alabama-based autism nonprofit, thinks “The A-Word” has the potential to have a positive impact on our society, but that depends on how the story is told.

“Programs like ‘The A-Word’ bring a very interesting concept to television,” Maha told The Mighty in an email. “At the very least, it will help create more awareness on the topic of autism. At its best it could help promote autism acceptance and inclusion. The key is in the show’s execution and storytelling. If that is successful, this show could go a long way in helping the general public understand that autism can be an opportunity to live a life without limits outside the box.”

The Mighty reached out to Sundance to find out if anyone with autism is or was involved in the creation or production. A representative says right now, all the info available to share is in the original press release.

h/t Disability Scoop 

The Dirty Truth Behind Unemployment in the Autism Community

A startling truth has hit me this political season: America doesn’t understand that unemployment in the autism community can be largely caused by institutional discrimination.

This was a startling revelation for me, and one I would love to clear up because many people I meet on the autism spectrum (AS) would love to have meaningful employment.  People are often unaware of institutional biases and the way they can burden a particular group of applicants. I believe it is a dirty little secret in hiring, and it plays a large role in the unemployment of people with disabilities.

Human resources (HR) professionals have begun to take an interest in opening opportunities to people with disabilities. Some large companies, such as Walmart, have made this a focus. I am sure they would love to hire people with AS as employees, in theory. We tend to be conscientious, hard-working, responsible and honest people who follow rules carefully. I doubt Walmart employs many people with AS, though, for the same reason most large stores, companies and restaurant chains don’t, and my two-word reason may surprise you: personality testing. 

I believe this type of testing is the key to institutional discrimination against the autism community, and it is also an industry worth hundreds of millions, which explains my failure in taking this complaint to the Equal Employment Opportunity Commission (EEOC). Large companies attempt to weed out dishonest, antisocial, unreliable employees without the cost of an interview with standardized testing. And though the testing may weed out the people mentioned above, I believe it will be even more successful at eliminating AS candidates. There are two reasons for that, one obvious and one more insidious: extroversion and lie scales.

Extroversion is a key measure on most tests for entry-level employees. Questions are asked to pinpoint friendliness, preference for group interaction, skill with people, a love of customer service, large amounts of happiness, etc. On the surface, this does not seem to be discrimination. It can be argued that friendliness is a necessary skill for a waitress, a cashier or a customer service representative. Where this gets devastating and discriminatory is when you realize these stores aren’t merely giving these personality tests to their wait staff. These tests are being given to everyone: bussers, stock room employees, night staff, line cooks, file clerks, etc. These are jobs where people rarely deal with the public and where, given the opportunity, people with AS might excel, but thanks to an extroversion hiring bias, we may never get the chance.

Before I went with a group of AS advocates to the EEOC, I searched autism chat boards for stories about employment discrimination and personality testing, and I remember one story that broke my heart. This young man was not socially skilled with people but had a deep love of animals and skill at caring for them. He was excited when his local pet store posted a job for a night employee to work at the store and care for the animals during the evening hours. Few customers would come during this shift, and he was excited to care for the lizards, small mammals and tropical fish at the store. He knew he was qualified for the job until the smiling manager presented him with the Personality Test taken by all employees. Needless to say, this young man was still unemployed.

But people with AS often have high intelligence, you might argue. They tend to be honest people, but they could be trained to take personality tests and pretend to be extroverted for the noble cause of employment!

I was taught to fake extroversion on personality tests, but I am here to tell you I still faced two years of entry-level unemployment for a more insidious reason — a staple of all personality testing: lie scales. Lie scales are a clever invention of standardized testing companies inserted into tests to detect deception and dishonesty in a potential employee. Innocuous questions are inserted into the tests and often repeated, and there is a certain way that honest, neurotypical adults respond to these questions when they are not being deceitful. People who fail to respond to these specific questions the way a “normal, honest person” would are eliminated as deceitful.

Here’s the obvious problem: by definition, a person on the autism spectrum has a brain wired differently than an average brain. So when I answer questions, no matter how honest I am, I do not answer them the same way a neurotypical person does. Even when I try to be dishonest and mimic an honest, “typical” person, I don’t do it correctly. It literally hurts my brain to lie, and yet I am constantly eliminated as “deceptive” from candidate pools due to personality testing. The irony is that employers concerned with employee honesty and conscientiousness could ask for no more than an employee on the autism spectrum, yet their systems eliminate us without a second glance.

This is a reason why employees with the intelligence, skill and independence to work can’t find entry-level employment or gain work experience; not low self-esteem. Can this problem be solved? I suggested the EEOC require a hidden autism scale in the standardized testing. This scale would be designed not to expose applicants on the spectrum but rather to automatically pass these candidates on to the interview process, so they could be interviewed and judged on their merits, without testing bias. Please excuse my passionate efforts at lobbying, but if you care about an unemployed person on the autism spectrum, please share this piece. Please help me end at least some of the employment discrimination in the AS community.

Two women, one behind a table working and the other looking at the table

The Mighty is asking the following: What’s one thing people might not know about your experience with disability, disease or mental illness, and what would you say to teach them? If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Submit a Story page for more about our submission guidelines.

Proposed Oklahoma Law Could Really Help Parents of Children With Autism

Oklahoma lawmakers and parents are fighting for insurance coverage of children on the autism spectrum.

Oklahoma is one of only seven states that do not require insurance companies to help with autism treatment and medication costs, Fox 25 reported. In an attempt to change this, Representative Jason Nelson authored House Bill 2962, which will make insurance companies cover treatment and diagnosis costs of children on the spectrum up until they are 18.

Parents have left the state because they say the cost of much needed and evidence-based treatments are too much, especially when many of the states surrounding Oklahoma have laws in place that require insurance companies to pay.

It kind of stinks when you’ve been paying into your insurance and they tell you ‘we’re sorry you’re not covered,'” Phil Inzinga, an Oklahoma resident and autism parent, says in the video below.

This is only the state’s latest attempt, because in 2008 a similar bill, “Nick’s Law,” named after Nick Rhode, was proposed, but the bill was never even heard. The Rhode family ultimately left the state.

Get more on the story from the video below: 


Real People. Real Stories.

150 Million

We face disability, disease and mental illness together.