Autism Takes Center Stage in New Family TV Series

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Autism will take center stage in a new family TV drama airing this spring.

“The A-word,” a one-hour, six-episode show, will air on the SundanceTV channel following the BBC premiere, according to an AMC Networks press release.

The show is a portrait of a fictional family after their 5-year-old son Joe (played by Max Vento) is diagnosed with autism. The series follows them learning to understand the diagnosis, facing differing parenting philosophies and dealing with the intertwining and complicated lives of their relatives.

Photo of the cast of the new TV show "The A-Word"
Photo courtesy of AMC/SundanceTV

“[The show] is hopeful, honest and ultimately about the power of family and the range of issues that families can face together, from autism to aging to adultery,” Joel Stillerman, president of original programming and development for AMC and SundanceTV, said in a press release. “We can’t wait to share it with our growing universe of SundanceTV viewers.”

“The A-Word” is an adaptation of an award-winning 2010 Israeli series called “Yellow Peppers,” from creator, writer and director Keren Margalit, who is also executive producer on the UK series. This announcement of the show comes nearly a year and a half since the premiere of the sixth and final season of NBC’s critically acclaimed show “Parenthood.” “Parenthood” centered around the story of the Braverman family and often featured the challenges of one of the characters, Max Braverman, who has Asperger’s syndrome in the show. As it turned out, Max Braverman was based off the son of the show’s creator, Jason Katims.

Julian Maha, M.D., the founder and CEO of KultureCity, an Alabama-based autism nonprofit, thinks “The A-Word” has the potential to have a positive impact on our society, but that depends on how the story is told.

“Programs like ‘The A-Word’ bring a very interesting concept to television,” Maha told The Mighty in an email. “At the very least, it will help create more awareness on the topic of autism. At its best it could help promote autism acceptance and inclusion. The key is in the show’s execution and storytelling. If that is successful, this show could go a long way in helping the general public understand that autism can be an opportunity to live a life without limits outside the box.”

The Mighty reached out to Sundance to find out if anyone with autism is or was involved in the creation or production. A representative says right now, all the info available to share is in the original press release.

h/t Disability Scoop 

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The Dirty Truth Behind Unemployment in the Autism Community

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A startling truth has hit me this political season: America doesn’t understand that unemployment in the autism community can be largely caused by institutional discrimination.

This was a startling revelation for me, and one I would love to clear up because many people I meet on the autism spectrum (AS) would love to have meaningful employment.  People are often unaware of institutional biases and the way they can burden a particular group of applicants. I believe it is a dirty little secret in hiring, and it plays a large role in the unemployment of people with disabilities.

Human resources (HR) professionals have begun to take an interest in opening opportunities to people with disabilities. Some large companies, such as Walmart, have made this a focus. I am sure they would love to hire people with AS as employees, in theory. We tend to be conscientious, hard-working, responsible and honest people who follow rules carefully. I doubt Walmart employs many people with AS, though, for the same reason most large stores, companies and restaurant chains don’t, and my two-word reason may surprise you: personality testing. 

I believe this type of testing is the key to institutional discrimination against the autism community, and it is also an industry worth hundreds of millions, which explains my failure in taking this complaint to the Equal Employment Opportunity Commission (EEOC). Large companies attempt to weed out dishonest, antisocial, unreliable employees without the cost of an interview with standardized testing. And though the testing may weed out the people mentioned above, I believe it will be even more successful at eliminating AS candidates. There are two reasons for that, one obvious and one more insidious: extroversion and lie scales.

Extroversion is a key measure on most tests for entry-level employees. Questions are asked to pinpoint friendliness, preference for group interaction, skill with people, a love of customer service, large amounts of happiness, etc. On the surface, this does not seem to be discrimination. It can be argued that friendliness is a necessary skill for a waitress, a cashier or a customer service representative. Where this gets devastating and discriminatory is when you realize these stores aren’t merely giving these personality tests to their wait staff. These tests are being given to everyone: bussers, stock room employees, night staff, line cooks, file clerks, etc. These are jobs where people rarely deal with the public and where, given the opportunity, people with AS might excel, but thanks to an extroversion hiring bias, we may never get the chance.

Before I went with a group of AS advocates to the EEOC, I searched autism chat boards for stories about employment discrimination and personality testing, and I remember one story that broke my heart. This young man was not socially skilled with people but had a deep love of animals and skill at caring for them. He was excited when his local pet store posted a job for a night employee to work at the store and care for the animals during the evening hours. Few customers would come during this shift, and he was excited to care for the lizards, small mammals and tropical fish at the store. He knew he was qualified for the job until the smiling manager presented him with the Personality Test taken by all employees. Needless to say, this young man was still unemployed.

But people with AS often have high intelligence, you might argue. They tend to be honest people, but they could be trained to take personality tests and pretend to be extroverted for the noble cause of employment!

I was taught to fake extroversion on personality tests, but I am here to tell you I still faced two years of entry-level unemployment for a more insidious reason — a staple of all personality testing: lie scales. Lie scales are a clever invention of standardized testing companies inserted into tests to detect deception and dishonesty in a potential employee. Innocuous questions are inserted into the tests and often repeated, and there is a certain way that honest, neurotypical adults respond to these questions when they are not being deceitful. People who fail to respond to these specific questions the way a “normal, honest person” would are eliminated as deceitful.

Here’s the obvious problem: by definition, a person on the autism spectrum has a brain wired differently than an average brain. So when I answer questions, no matter how honest I am, I do not answer them the same way a neurotypical person does. Even when I try to be dishonest and mimic an honest, “typical” person, I don’t do it correctly. It literally hurts my brain to lie, and yet I am constantly eliminated as “deceptive” from candidate pools due to personality testing. The irony is that employers concerned with employee honesty and conscientiousness could ask for no more than an employee on the autism spectrum, yet their systems eliminate us without a second glance.

This is a reason why employees with the intelligence, skill and independence to work can’t find entry-level employment or gain work experience; not low self-esteem. Can this problem be solved? I suggested the EEOC require a hidden autism scale in the standardized testing. This scale would be designed not to expose applicants on the spectrum but rather to automatically pass these candidates on to the interview process, so they could be interviewed and judged on their merits, without testing bias. Please excuse my passionate efforts at lobbying, but if you care about an unemployed person on the autism spectrum, please share this piece. Please help me end at least some of the employment discrimination in the AS community.

Two women, one behind a table working and the other looking at the table

The Mighty is asking the following: What’s one thing people might not know about your experience with disability, disease or mental illness, and what would you say to teach them? If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Submit a Story page for more about our submission guidelines.

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Proposed Oklahoma Law Could Really Help Parents of Children With Autism

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Oklahoma lawmakers and parents are fighting for insurance coverage of children on the autism spectrum.

Oklahoma is one of only seven states that do not require insurance companies to help with autism treatment and medication costs, Fox 25 reported. In an attempt to change this, Representative Jason Nelson authored House Bill 2962, which will make insurance companies cover treatment and diagnosis costs of children on the spectrum up until they are 18.

Parents have left the state because they say the cost of much needed and evidence-based treatments are too much, especially when many of the states surrounding Oklahoma have laws in place that require insurance companies to pay.

It kind of stinks when you’ve been paying into your insurance and they tell you ‘we’re sorry you’re not covered,'” Phil Inzinga, an Oklahoma resident and autism parent, says in the video below.

This is only the state’s latest attempt, because in 2008 a similar bill, “Nick’s Law,” named after Nick Rhode, was proposed, but the bill was never even heard. The Rhode family ultimately left the state.

Get more on the story from the video below: 

 

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The Reason I’m Lucky to Have a Special Needs Family

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Just now I was sitting outside on the porch, enjoying the fresh air and only slightly cool breeze that is a Texas winter, and had a rare, contented moment of thinking, “I love my family. I am so lucky.”

For the ordinary person, that wouldn’t be an unusual feeling to have, but having a child with special needs means that sentiment doesn’t fit into society’s narrative of what it’s like to be a special needs family. I should love and be devoted to my family, but I shouldn’t necessarily consider myself lucky.

“That’s not true,” you say. “I wouldn’t be surprised to hear someone say they felt lucky in their special needs family.”

But way deep down, maybe there’s that tiny, dark place where you think, “I feel so lucky to have ‘healthy’ children.” Because to many people, someone with a disability is an “other.” Her child is different from my child.

But I tell you, I am lucky. To an extent, most of us special needs families are. This isn’t the part where I say, “We’re not lucky because of the disability, we’re lucky in spite of it.” And I’m not going to run through all the valid attributions of “being lucky to have my child alive” or “being lucky to have a child at all, when many can’t.”

What I’m referring to is the unavoidable and essential ability to view things through someone else’s eyes (to the extent that you can). With autism, you must learn early on how to ferret out the antecedent to a meltdown, or you won’t know how to avoid future meltdowns. Was it a sensory response? Was he overstimulated? Is he coming down with something? Are his clothes uncomfortable? Did the change of routine cause an anxiety overload? You think of little else for days or weeks on end, not because you want to, but because you become obsessed with trying to understand your child.

When you’ve finally uncovered that the sound of your hairdryer is causing your child major anxiety, you set about changing the environment so your child won’t be caused distress. Most of us will close doors and get our child noise-canceling earphones. We know avoiding hairdryers for the rest of their lives isn’t reasonable, but making small, doable changes is reasonable, and you are relieved to ease your child’s pain by just that small accommodation.

In short (lie; this is terribly verbose), you learn how to critically examine cause and effect, and analyze the interactions of different experiences on mood and behavior. Because you have to.

This brings me to my hypothesis: most “typical” people don’t have to think in those terms on a constant basis. I would venture that the “average” person goes about their day, giving little thought to whether the sound their shoes make on the tile floor is bothersome to someone, or whether they’ve properly prepared to use their hairdryer.

The reason this acquired necessity makes us lucky is because it gives us an enhanced way of viewing the world. You many not understand why that enhancement is as valuable as it is, so I’ll try to illustrate it.

Imagine if you worked at a convenience store, and one evening a young man comes in and holds a gun to your head, demanding all the money you have in the cash register.

Now, some of you would try to calmly do as he asks, hoping and praying he just doesn’t kill you. Some of you might actually try to fight him, or grab for a weapon behind the counter. Either way, no matter which way you responded, you would probably feel angry and want him put in prison for a long time. He’s a criminal. He’s a scumbag who steals from hardworking people instead of getting a job.

And maybe he is those things. But how many people would take the step beyond to wonder what conditions came together to make up this man’s life, leading him to commit those crimes? And to have the wherewithal to know that asking those questions, caring about those possible conditions enough to give them careful thought, doesn’t mean you’re excusing the behavior or the need for a consequence. On the contrary, having those thoughts leads to discussions. And discussions lead to careful inquiry about important circumstances that shape people’s lives, like poverty, racism, classism, disability, gender identification, sexuality, family dynamics, community and health resources.

Maybe you’re thinking you would be the kind of person to think about those things. At the same time, thinking about those things and even talking about them doesn’t mean we can run right out and make all those changes so that everyone has a wonderful upbringing, right? That’s true, but we’re not stopping here. There’s a next step to this.

The next step in this process is to consider: if we know that human beings growing up in certain environments are more likely to have some kind of negative outcome, which ultimately affects society as a whole, then how do we begin making changes right now that will create positive long-term effects in our country? With the knowledge of how conditions shape human behavior, do we reconsider how we approach the big topics we wrestle with as a nation, like wage equality, access to women’s health services, investing in impoverished communities, mental health services and access to higher education? Do we look at the utter failure of our prison systems to “rehabilitate” criminals, as evidenced by the high rate of recidivism? Do we think about whether spending federal dollars upfront to avoid future criminal behavior by investing in people and their environments, rather than spending it to house them endlessly in prisons that are perpetually bursting at the seams? Do we then apply this advanced level of critical thinking to the choices we make politically?

Have I lost you yet? Are you tired of trying to keep up with this train of thought?

As exhausting as it may be to analyze things to this extent, it’s the very reason I feel lucky to have a special needs family. The training I got from my son has given me a lot more anxiety, that’s true. But it’s also given me the ability to think far ahead about the cause and effect of conditions on human beings. And it’s given me the invaluable knowledge that it’s essential to our long-term survival to see the kinds of changes needed to elevate us as a species, rather than remaining unconcerned for those “other” people until they come to us to commit a crime.

I am lucky. My life and my thoughts are infinitely more challenging and complex, and it’s worth it. If it wasn’t for my son, maybe I would be someone who thinks we need more guns, more prisons, more walls, more police, more us versus them.

Instead, I’m someone who wants more access to healthcare, more education about diversity, more community centers, more access to housing for the homeless, more benefits for veterans, more mental health resources, more kindness, more love — because I know these are the kinds of supports that shape positive outcomes that ultimately affect all of us.

Follow this journey on The Connor Chronicles.

The Mighty is asking the following: What’s one thing people might not know about your experience with disability, disease or mental illness, and what would you say to teach them? If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Submit a Story page for more about our submission guidelines.

Lead photo source: Thinkstock Images

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When a T-Shirt Sparked a Conversation About Autism Awareness

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A t-shirt is like a walking billboard to me. It spreads a message. When my son Dominic’s teacher was ordering autism awareness shirts a while back, some of my family and friends ordered one.

My daughter, Lauren:

My “auntie” who lives in Virginia:

woman wearing autism awareness t-shirt
Cathy’s “auntie”

And my brother who lives in Maryland:

man wearing autism awareness t-shirt
Cathy’s brother

I especially like the message on the front: “Autism Awareness – Accept – Understand – Love.” My brother told me recently about a gal who saw his shirt when he was out and about one day and started chatting with him. She asked my brother if he had read a particular book on autism. He said, “She was very enthusiastic and happy to see the t-shirt in public. She instantly connected with me even though we’d never met. I was a person in her camp.”

My brother agreed that was true! I love that wearing a t-shirt starts the conversation.

Follow this journey on Bountiful Plate.

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Dear Leonardo DiCaprio: You Helped Me Succeed as a Person With Autism

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Dear Leonardo DiCaprio,

When anyone goes after something in his or her lives, a word that often comes up in the conversation is the need for “commitment.” Growing up with a passion for film, watching your commitment as an actor, to take on different characters and to shine in them, has had an incredible impact in my development. 

My journey with the word “commitment” started when I was diagnosed with autism at 4.  Theater therapy was something that helped me progress when many other things wouldn’t. I instantly became one of your fans when I got involved with theater and then later started watching films. I saw your commitment in your films right off the bat. I would try to mimic that type of commitment in my roles on stage.

I couldn’t explain what it was in your roles until I read about the months on end you would take before each role to prepare both physically and mentally to command your performance. That was something I wanted to do.

Later, I’d learn this commitment I was putting into my acting was something I needed to put more and more into my therapies. You can often feel stretched to the limit when you have to juggle physical, speech and occupational therapy, but stretching is something I could see in you as you stretched yourself to film several movies at once. You could make it through all of that. It made me realize I could do that also.

From my therapies I turned to doing well in school, and maybe most importantly, proving people wrong about what I would be able to achieve in my life.

As I followed your career into my teens, I got to know more about your work helping others. That’s something I admire as someone who started community service for the first time in high school. I later wanted to become a disability advocate to help those with special needs like me.

After following your work for years, and everything you do for others, I would like to commend you. When I think about commitment as an adult who has been able to overcome obstacles to become a speaker, author and film consultant, I can only hope those who read this, regardless of their age, disability or gender, know they can achieve anything they want in their lives. I hope they can have the same type of commitment you have shown time and time again in your career.

Congratulations on your success and for everyone you have inspired and will certainly inspire in the future.

Your friend,

Kerry

A version of this post originally appeared on Kerrymagro.com.

The Mighty is asking the following: Share a powerful moment you or a loved one has had with a public figure. Or, write a letter to a public figure who you feel has helped you or a loved one through his or her work. If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Submit a Story page for more about our submission guidelines.

Lead photo source: Thinkstock Images

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