In Emotional Video, Parents Share the Joys and Fears of a Down Syndrome Diagnosis


Downside Up Inc. is a nonprofit based in Chattanooga, Tennessee, helping bring together families who have loved ones with Down syndrome. The organization teamed up with a few families in the community to produce a video for parents who have just received a Down syndrome diagnosis, and as expected, there are both tears and smiles.

The aim of the video is to congratulate new parents and “bring hope to them for the future of their child at a moment where their joy of having a brand new beautiful baby is overshadowed by the fear of a diagnosis.”

“It’s OK to be scared and feel frustration and fear and sadness and a lot of things that you don’t expect to feel when you first have a baby,” one mother says in the clip, when asked if she could talk to her past self. “Because your journey has changed, and change is hard, but that doesn’t mean that it’s not going to be totally amazing.”


Have you seen the first film with a national release to star a person with Down syndrome? Check out the film “Where Hope Grows” today!

Available for purchase on Amazon and iTunes.

TOPICS
, Video,
JOIN THE CONVERSATION

Related to Down Syndrome

Madeline Stuart at I Can I Will Australia charity event

Madeline Stuart Model With Down Syndrome Takes a Stand to End Bullying

Madeline Stuart, the world-famous professional model with Down syndrome, is paying it forward. After walking the runway at New York Fashion Week last month, Stuart, 19, returned home to Australia and attended a pair of events for I Can I Will Australia, a nonprofit aimed at ending bullying. I Can I Will has a mentoring program that pairs young adults with children with [...]

12 Powerful Things People Said to New Parents of Babies With Down Syndrome

When parents are first told their baby has Down syndrome, the words that come after — whether they’re from a medical professional or loved one — are so important. Recently, we asked members of our Facebook communities the following question: “What’s one thing someone said that really resonated with you after your child was diagnosed [...]

One Single Piece of Advice I’d Offer All New Parents of Children With Down Syndrome

Welcome! You are now officially members of the club we like to call, “The Lucky Few.” Membership perks include: extended snuggles, celebrating every single milestone, beautiful almond-shaped eyes that will take your breath away when you least expect it and the knowing smiles from strangers on the street that act as our secret handshake — they’re part of the club, too, and [...]

The Statistic I Didn’t Know When My Son With Down Syndrome Was Born

“We believe your baby has Down syndrome.” You’ve just birthed a baby, a beautiful pink crying baby. And within moments, these are the words filling your brain. The thrill, the adrenaline of birth, the new, fresh excitement is weighed down, heavy, in the pit of your stomach, by that greedy monster of fear. The unknown. [...]