When Advocating Becomes Bullying in the Autism Community


As someone on the autism spectrum, I definitely consider myself to be a major self-advocate. I truly love sharing my experiences. My hope is that others can take what I’ve been through and apply it in a way that may help someone else on the spectrum.

Sometimes it can be difficult to be an advocate. I need to remember that I’m not the only one with an opinion. I need to remember to be respectful, even if I disagree. But I’ve been seeing another issue lately. That issue is when I see others — both on and off the spectrum — attacking each other and complaining about the things they don’t like. I don’t just mean disagreeing. What I’m seeing is almost bullying.

As World Autism Awareness Day draws near, I have seen multiple strong-worded posts about how people who aren’t on the spectrum should and shouldn’t act. And they were posted in a support group for people who aren’t on the spectrum. I saw other posts bashing people simply for trying to show support to an organization of their choice.

I see a lot of people complain about the way others spread awareness (and I will be the first to admit that I’ve been guilty of this at times, too!). But I think there comes a point where the autism community needs to stop criticizing the way others advocate, and start to just ignore those actions if they really dislike them that much. Instead, just advocate the way you would like to. Stop telling others what not to like, and spread the love of what you would like to see instead.

Let’s be happy for others, instead of taking positive stories and turning them into something to be unhappy about. Advocating shouldn’t be about tearing down the people who you disagree with. It should be about supporting others who you appreciate and lifting them up.

I’m going to try to remember to do this more often. It’s tough at times, but I am tired of the hate. There’s a fine line between taking a stand and being negative or even downright rude or mean.

April is Autism Awareness Month. Let’s remember to be kind to one another when we spread autism awareness, acceptance and understanding.

The Mighty is asking the following: Describe a moment you were met with negativity or adversity related to your disability and/or disease (or a loved one’s) and why you were proud of your response — or how you wish you could’ve responded. If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Submit a Story page for more about our submission guidelines.

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