What Parents of Children With Microcephaly Want You to Know


I think everyone has heard about the Zika virus by now. According to the World Health Organization, there is “scientific consensus that Zika virus is a cause of microcephaly.”

There are even commercials on the radio for a product to “protect you and your baby” from the Zika virus.

Below is a comment someone posted in a Facebook support group I’m in about a Zika virus story:

“I wonder at what point in the pregnancy the mother found out the baby would have microcephaly? Probably very early. Having the poor baby was extremely selfish on behalf of the mother.”

This is what a group on Facebook for parents of children with microcephaly want you to know:

We love our children.

We are blessed to have them! Sometimes you know your baby has it before they are born (late in pregnancy), and sometimes you don’t know until later as the child grows. Would you love your child any less after finding out when they’re older? No!

Our children are happy.

There are varying side effects, and every child is different. There is no way to predict what your child will be able to accomplish. Some are college graduates with children of their own. They do experience joy and happiness just like you and me. Remember, they’re people, too.

Comments like the ones above are like a gut punch.

People hide behind their keyboards and say whatever they want without a thought to all the parents of kids with microcephaly. It’s hurtful and just plain mean.

We are in no way selfish for having and loving our children. That’s ridiculous!

Please think before you push that post button.

Lead photo source: Thinkstock Images


Find this story helpful? Share it with someone you care about.


Related to Microcephaly

How a Country Music Star Helped My Mother Raise Awareness for Microcephaly

You may have heard of microcephaly in the news lately. The World Health Organization has linked the Zika virus to microcephaly, as well as Guillain-Barre syndrome. Microcephaly is when a baby is born with a smaller-than-average head. Microcephaly can range from mild to severe, and it affects each person differently. My daughter has microcephaly. She [...]

To the People Just Learning About Microcephaly Because of the Zika Virus

In recent days, news about the Zika virus has flooded the airwaves. If you haven’t heard of it, it is a mosquito-borne illness, and there’s a possible association between the Zika virus and infants with microcephaly. (According to the CDC, “because of the possible association between Zika infection and microcephaly, pregnant women should take steps to prevent mosquito bites.”) [...]

To the Fox News Host Who Called My Children’s Disorder a 'Lifetime Disaster'

Dear Dr. Samadi, I was watching your show, Sunday Housecall, on Fox News recently. The subject turned to the Zika virus. As you discussed the virus and how it can affect unborn children, you said that deciding what to do (with the pregnancy) is a “family discussion” and that microcephaly is a “lifetime disaster.” [Editor’s note: According to the World Health Organization, [...]

Boy Born With Partial Skull Meets Santa for the First Time

Jaxon Buell has microhydranencephaly, a rare neurological condition that results in individuals missing most of the skull and brain. Doctors didn’t expect Jaxon to survive past birth, so when he turned 1 this summer, his milestone birthday made the news. Now he’s had another special event to add to his list: Meeting Santa Claus for the first time. The [...]