A Letter to the Teacher of a Sibling of a Child With Special Needs


As another school year begins, I know you are busy preparing your classroom, mapping out lessons, attending faculty meetings and anticipating the new faces that will enter your classroom and your life. It is a busy time — a little overwhelming and so very exciting — for you, for the kids, and for parents like me.

Ever since my youngest daughter entered day care, I have always composed a letter to her teacher. It is detailed and has probably garnered its fair share of eye rolls and sighs. It explains, in no particular order, how and when to put on and take off my daughter’s SMOs, how to handle her meltdowns from sensory overload, how her hypotonia often makes tasks like writing her name and keeping up with the other students in the hallway a struggle, how when presented with something she knows will be a challenge for her muscles, she will sometimes shutdown.

I feel like I must write that letter. Every. Single. Year. That letter is easy to write. I have most of the answers. I know what the end goal is. I understand the journey we are on. I write that letter to make the teacher’s life a little bit easier. To make my daughter’s day at school a little bit brighter. And to make my time away from her a little bit more manageable.

But, there is one letter I have never written until today, and it is this letter to you. A letter to my oldest daughter’s teacher.

In a few short days, my daughter, L, will be stepping into your classroom for the first time, and I know upon meeting her, you will notice the obvious: She truly loves learning. This summer, she spent many days  at our local library devouring book after book. “I want to make sure I check out at least one fiction and non-fiction book each time to keep my reading balanced,” she told me one day. And she did. When she wasn’t reading, she was participating in a Young Author’s Club. She penned an R.L. Stein-inspired short story infused with flashbacks and allusions and cliffhangers and dialogue. She revised the piece five times. She’s a perfectionist and a hard worker.

You will easily see she has a big heart and is constantly going out of her way to take care of the people around her, to make sure everyone is included, to lift up people who are feeling down. She will eagerly volunteer to help you pass out papers, and she will happily help her classmates without being asked (but with your permission because she is also a big rule follower).

Within a week or two, you will probably pick up on the fact that she is not a fan of math, but she can do the work. That she approaches difficult tasks with a positive, “can-do” attitude. That she loves music class and drawing and science experiments, and that when given the choice to dance in P.E. class or walk laps, she will always pick to walk laps.

You will recognize that she makes friends easily. She always brings her lunch and she still thinks boys may possibly have cooties. (I am OK with this. Her father and I have decided she can date when she is married and 35.)

But I am not worried about what you may see on this journey. I want you to know what you may not always see.

As you have already read, her younger sister has special needs. In the perfect world, that would mean absolutely nothing. It would mean L hasn’t had to frequent the offices of various specialists: genetics, neuro, caridology, to name a few. It would mean she has never waited patiently for two hours a week while her sister goes to occupational and physical therapy. It would mean she has never sat in the car with me, following an ambulance as it rushed her sister to the PICU for a lengthy stay. It would mean she has never seen her sister made fun of or ignored because she was “different.”

Unfortunately, ours is not a perfect world. L has experienced all of these things and more. While it pains me to write that, I also know these experiences have shaped her into the beautiful soul she is.

She is a patient and considerate individual. She knows the power of an “inchstone.” She has watched her sister slowly learn to crawl and walk and run. She holds her sister’s hand, mindful of slowing her pace, as they walk together so her sister can keep up.

She is a compassionate and accepting individual. She has witnessed firsthand the hurt that comes from being left out and how good it feels to bring others in. She believes beauty exists in our differences.

She is a nurturing and strong individual because she often feels it is her responsibility to protect her sister from the cruelties of the world, to help her, to keep her safe, to stand up for her.

Like many other siblings of children with special needs, L knows more about sacrifice than I wish she did, but she also knows about the power of unconditional love.

I want you to know sometimes she worries about her sister — that she might get hurt and never be able to walk again. Some nights, she cries, fearful that the next time her sister gets sick, there will be another hospital stay. While at school, she is afraid her sister will go back to the hospital and never come home again. At bedtime, she prays for her sister’s muscles to grow stronger and to stay strong.

And I do my best to reassure her. I hold her. I wipe away her tears. I listen. I pray too. But I am not perfect. I am still learning how to parent two extremely different children — one who constantly needs me and one who deserves more of me.

I don’t have a list of instructions with this letter because I don’t have any answers. I am navigating murky waters on an uncharted journey. And I know you have many students, all with diverse needs that you are expected to meet every day. And I know you don’t get to pick which students you want and what homes they come from and what experiences they have lived through. So, I write this letter to simply say thank you. I know this is a journey you didn’t necessarily sign up for, but I already feel better knowing you are traveling these waters with me.

Image via Thinkstock.


Find this story helpful? Share it with someone you care about.


Related to Disability

Woman sitting and looking on the landscape

What Gets Left Out When We Talk About 'Quality of Life'

“Let’s talk about your quality of life.” I think this one of the most widely-known quotes within the disabled community. I can’t count the amount of times on all of my fingers and toes how often I’ve heard this phrase, and for some reason, much to my surprise, the quote “Let’s talk about your quality [...]
Jessica Graham’s family

What Life in a Special Needs Family Looks Like

There are a lot of misconceptions about what life in a special needs family looks like. Often people tend to overemphasize the difficult parts or downplay the physical and emotional toll that consistent daily stresses can cause.  We happen to have two children with “significant” special needs, and here’s what life looks like for us.  [...]
Side by side of Vogue photo and paralympians with Vogue models

Vogue Brazil Photoshops Models to Look Like Paralympic Athletes

Vogue Brazils is facing controversy over its new photo campaign featuring two able-bodied models, Brazilian actors Cleo Pires and Paulo Vilhena, photoshopped as Paralympian athletes Renato Leite and Bruna Alexandre. According to an Instagram caption posted by Vogue Brazil, Pires and Vilhena are ambassadors to Brazil’s Paralympic Committee. They are also the stars of Brazil’s “We Are All Special Olympics” campaign, [...]
Tatyana McFadden.

The Biggest Win for Me as a 2016 Paralympic Athlete

In just a few days the 2016 Paralympics will commence in Rio, two weeks after the Olympic Games. And for the first time in history, the Paralympics will be broadcast live on network television in the United States, with over 66 hours of coverage. It will also be the first time that mainstream America will [...]