autistic boy's drawing where he labels himself as bad

When my son Edward was little it seemed he was constantly getting told off by most people he came into contact with, certainly by my husband Nick and I and his older sister, Leila. Back then, we didn’t know he was autistic, and I think we would have been more patient with him had we known. He was forever at the receiving end of “don’t do that,” “stop it,” “be quiet,” “sit down,” “calm down” and so on.

His behavior was often “inappropriate” compared to other children the same age, and so he got frequent feedback that he was doing things wrong.

When I picked him up from his first full day at preschool the super experienced teacher said, “Edward has settled in OK today, but I have to say he is the most assertive child I have ever met.” Curious and a little disconcerted I asked for more information. It transpired that Edward had quickly found the large wooden building bricks and had spent his entire time at preschool playing with them. He must have viewed the bricks as his own, as he had defended them like a bear defends its young, shoving and shouting at anyone who dared try and take them away from him. To him they were his bricks and he needed them, every single one. Taking turns and sharing didn’t exactly come easily to Edward, but he got there in the end. His love of wooden blocks has never really passed, considerable hours have been devoted to the stacking and rearranging of these wonderful items – here’s one of his creations from a few years ago.

bricks stacked like a castle

I used to dread picking Edward up from school throughout his reception year; his teacher would invariably want to have a word with me. On one of these occasions, when the teacher was telling me how badly Edward had behaved, Edward started humming a happy little tune while running his hand up and down the teacher’s back. In that moment it dawned on me that in addition to helping Edward learn how to improve his behavior at school I was going to have to train him in how to respond when being told off by a teacher.

Knowing how to behave appropriately while being told off must surely be part of the essential school survival kit. Most kids simply know they need to look solemn and get their “I’m taking this seriously and I’m sorry for what I have done” face on. No one teaches them this: they just know what to do. Autistic kids are likely to have trouble picking up these untaught social conventions, and so they may have absolutely no idea how to respond appropriately to a teacher who is telling them off.

In our family the “being told off” game was birthed when Edward was still in reception – I would  impersonate his teacher telling him off (which he actually found quite funny) and his job was to respond by 1. Standing still. 2. Looking down at the ground 3. Keeping his hands down and possibly most importantly 4. Keeping quiet. Please be assured that we managed to keep this game fun and Edward was always up for playing it.

One day I discovered a piece of paper in Edward’s bedroom and I realized all the negative feedback he was receiving, day in day out, was taking a toll on his self-esteem. He was 7 years old. On the paper he had drawn a single line with the word “good” written at one end and the word “bad” at the other. Above the word “good” I saw he had written “mummy,” which made me feel ridiculously smug for a short moment. The rest of the family names were written fairly close together at the good end, although not necessarily in the order I would have predicted. When I noticed Edward had written his own name directly above the word “bad,” miles away from the rest of the family, I felt so sad. I had a chat with him and told him he wasn’t bad, but I could see my words were just bouncing off him like rain on stoney ground.

autistic boy's drawing where he labels himself as bad

Nick came home from work, and I showed him the piece of paper. He didn’t try and chat with Edward. He simply got another four sheets of paper and taped them to the first one. He crossed out the original “bad,” extended the line so it went across all four sheets and at the very end of that long line he rewrote the word “bad.” He left all of our names exactly where Edward had written them and quietly, without any fuss, placed the paper on the mantelpiece.

dad's drawing on a mantle

After a while Edward came in and took a long look at the revised version of his work. He didn’t say anything, but I could see him visibly relax as if a weight had lifted.

Sometimes visual communication can get to the heart of the matter in a way words cannot.

A year later Edward was diagnosed with Asperger’s syndrome. The understanding that came with the diagnosis helped Edward see himself in a different light. He wasn’t bad, he was autistic. His self-esteem had taken a wobble, but his diagnosis helped him get back on track.

Follow this journey on A Blog About Raising My Autistic Son.


You are rude and have been badly raised.”

I turned around to face the person who had said that to my son. In a split second I had figured out what had caused such harsh judgment. My son had reached out and touched the woman, making circular movements with his fist on her left arm. That incensed her even more, and she yelled louder at him. The words seemed directed at me though for being such a terrible parent. She was after all, saying Ethan was badly brought up and had no manners.

We were at the supermarket, and Ethan had probably been distracted and ended up separated from his brother and me by the now irate shopper. In his need to join us, he rushed past, stepping on her foot and triggering the rebuke that first caught my attention. Ethan is on the autism spectrum and has severe language delays in English. The enraged shopper was speaking in French, a language he neither speaks nor understands. He did, however, understand that the shopper was annoyed and that he was the cause. He tried to apologize using the universal language of touch and completely missed the mark. Rather than understanding, he provoked a volley of insults.

I was calm when I turned to face the shopper and spoke to her in French, my fifth language. I apologized for my son having stepped on her and explained that he has autism and not only has a language delay but does not speak French. I told her my son didn’t mean to offend her by touching her but rather, had been trying to apologize.

A few years ago, before Ethan developed any language at all, I had tried teaching both of us American Sign Language (ASL). He never quite got the sign for “sorry” and would rub his fist on the other person’s chest instead of his own. Over the years I’ve managed to persuade him to avoid touching people’s chests. For that, I was extremely grateful that day at the supermarket. At least the police were not called.

Ethan at supermarket

Although the woman’s facial expression remained set and dark after my explanation, she did at least stop her yelling thus allowing us to complete making our purchases.

As soon as I had shepherded my sons outside the door, I switched into parenting for the benefit of those around me. I made sure all the people passing by heard me tell my son to ask to be excused rather than walking into people. I continued in my microphone voice to tell him not to touch strangers since some of them don’t like being touched. (I had to make sure they all knew he was well brought-up!)

I pulled out of the parking lot feeling anger, regret and worry. I regretted having put on a performance for the benefit of complete strangers, many of whom would probably continue to judge my family anyway. I was angry at the woman. How dare she question my child’s upbringing! Has she any idea how much deliberation, research, soul-searching, sleepless nights and even money go into raising a child with special needs?

I even found myself wondering if the woman would have been as angry and judgmental if, a blond, blue-eyed boy had stepped on her foot and then touched her. What role did the fact that a tall black kid had done it instead? What did the future hold for us when Ethan became a tall black, teenage boy with autism in our neighborhood?

It’s been a few months since the supermarket incident, but it definitely left an impression on Ethan and me. Ethan remembers the incident as being funny. He always laughs when he recalls the incident in bouts peppered with “the lady’s foot,” “French gibberish” and “Madame,” the first word I said to the woman. More importantly, it taught him in a rather dramatic way, the consequences of not asking to be excused when one walks past people and accidentally steps on their feet. It achieved in a few minutes what years of my theoretical lessons had failed.

As for me, I laugh at the absurdity of trying to parent for the benefit of complete strangers. What was I thinking? At least I know I will get a chance to redeem myself in the future because the judgmental looks, whispers and reproaches happen far too frequently.

I’m on the autism spectrum. And while I developed speech at a “typical” age, communication has never really come easily to me. Sure, I have made multiple YouTube videos, and I’ve done many presentations about what life is like for me personally on the spectrum. I don’t always speak in grammatically correct sentences, but I’ve made it into college and even did a TEDx Talk along the way. Yet, I still struggle with communication.

For example, I have a difficult time using the correct words to get across what I’m trying to say. I want to make sure that people understand me, but sometimes I just don’t say it right. It may be because I don’t know how to say it, or it could just be that I’m so exhausted that I can’t process my thoughts into words. It’s as if my brain just shuts down, but I need to answer a question or be present in a conversation, so my mouth keeps going. I try to avoid these situations, but it’s not always possible.

The other issue I can have is with tone of voice. Thankfully, I’m starting to become more aware of tone. It’s still a struggle for me to recognize it, however. There have been many times where I will say something, and a person hears it as maybe attitude or sarcasm. I find myself constantly apologizing for coming across as rude or uncaring or disrespectful. It can be so difficult and frustrating!

I’m glad I have the ability to speak. Yet, I still find it difficult to use that ability. And while many people may deal with these issues once in a while, I find it a daily struggle. I have tried to develop a few coping skills, such as writing out what I want to say before using a phone, or getting opinions from friends about what went wrong in troublesome conversations. In the end, it’s important for people to remember that just because I have the ability to speak doesn’t mean it’s always easy for me to communicate.

Image via Thinkstock Images

One thing I don’t intend to do — whether I’m posting on my own blog or other sites — is write much about my children and their behavior.

As an adult-diagnosed autistic woman, the primary goal of writing is to provide a catharsis for myself and to share my experiences with others. When my children are old enough, and independent enough, they’ll be able to choose whether or not to share their own lives with the rest of the world, and I’ll provide support and guidance to help them do so as safely as possible. But in the meantime, I need to respect their privacy and their personhood and avoid abusing my responsibilities as their adult caregiver.

I am, however, still a parent, and that means that at times, like all parents, I can get frustrated by my children’s behavior — no matter how much I might be able to empathize and understand where they’re coming from. Mealtime would be one of those times. Oh yes, we have some battles on our hands.

Many autistic people have issues with food. I am not really one of them. I love food. I see it as one of life’s great sensory pleasures. I enjoy complexities of flavor, color and texture. I can detect in a dish the subtleties of small amounts of ingredients that others don’t notice. I’m fascinated by the way certain flavor combinations really convey the essence of a particular cuisine or culture. I love experimenting with flavors and ingredients in cooking — this is one of the few times I’m truly spontaneous. I love food as a focus for social interaction. (Well, it sure cuts down on the need for small talk.)

The only food-related issue I have is with the texture of meat. I can’t stand it. So I don’t eat it.

If you experience a strong, negative sensory response to something, you tend to want to avoid it.

Until the question was raised about whether one of my children might be autistic, and I started my journey into the world of autism (discovering along the way that I, myself, am autistic), I couldn’t fathom why anyone wouldn’t want to eat. Food is wonderful, and that’s all there is to it.

My research into the condition started to change my view, and I started to think about the problem from a new perspective.

Many autistic people can experience challenges with processing sensory information or input. We get either too much or too little coming at us at once. We lack the ability to “filter” in the same way as neurotypical folks. One of my biggest struggles is with noise.

If I’m tired, it’s the first thing to grind me down. Certain unexpected noises — emergency vehicle sirens or pots and pans crashing off the kitchen draining board — can feel, quite literally, like a sudden and violent physical attack to me. Others — motorbike engines, construction noise and old, poorly-serviced air conditioning units — penetrate and jar my entire body at times when I’m already overwhelmed. And, bless him, my youngest child’s cries (and those of any baby) are always overlaid by a high-pitched, crackling, sibilant distortion that, again, can at times be painful to experience. Ordinarily I love music, but there are times when even this is something I can’t abide.

All of this is why I wear earplugs a lot, why I often have the volume down and the subtitles on when I’m watching television and why I frequently use noise-cancelling headphones at work.

Different autistic people have different sensory challenges.

And I thought to myself:

Imagine if, at least three times a day, I was required to sit still and endure, nonstop, a repeated series of ambulance sirens, pot-and-pan crashes and motor vehicle engine revs. Noises so loud and intense they felt painful. And I would not be able to leave this situation until another person told me they thought I’d had enough.

What if food did the same thing to me that noises do?

If the above example doesn’t resonate with you, think of anything that causes you extreme pain or discomfort. Would you want to sit still and endure it at least three times a day until someone else told you you’d had enough?

When I’m overloaded or overwhelmed, I want to scream, shout, flail my arms, protest or simply get up and leave. Fight or flight. Negative sensory input — and, in particular, noise — is usually the “last straw” for me; merely the culmination of a series of overwhelming events that have built up over time. It’s not just the noise; it’s the noise plus all the other stuff that came first.

And it’s the same for an autistic person who faces challenges with food. When you’re exhausted and already had a day of feeling overwhelmed, to come home and be assaulted by the pain of different textures in your mouth, the overpowering, assaulting stimulus of flavors that always seem too strong and the visual discordance of certain color combinations on your plate, it can simply get too much. And so you scream, shout, flail your arms, protest or get up and leave.

And, again, if you can’t fathom what either of these situations feel like, imagine being tired and emotionally overwhelmed after a hard day at school or work and then being subjected to a physical attack.

And this happens every day.

Several times a day.

Some kids are fussy eaters. Some adults are fussy eaters. But sometimes, the aversion to food stems from something far deeper. We need to bear this in mind when we’re at the dinner table.

Lead photo source: Thinkstock Images

I’m going to discuss my experiences in life when it comes to eating as a person on the autism spectrum.

People with autism can be picky eaters as children or adults. They don’t always like to eat the foods they’re supposed to. Healthy eating is all about the food guide pyramid — carbs, proteins, fats, fruits, vegetables and dairy.

But when I was younger, I loved to eat fast food because I didn’t like leftovers. I would rather go to Burger King or McDonald’s pretty much every day. I also never liked to drink water and loved drinking diet soda every day. I was addicted to diet soda like it was smoking. Sometimes I would have it for only one meal, sometimes two and sometimes even all three!

I didn’t know how to cook, so that was another hard part about my eating habits and why I went out for fast food for most meals. I always liked fried foods at fast food restaurants like chicken nuggets and fries. I also never liked to eat fruits. I got into vegetables as I got older, but it took a while. And I did like food after it was just cooked at home but never the next day. I never liked lunch meat, so lunch was always a hard meal.

Needless to say, my health got bad while doing this. My blood pressure went up, and I was overweight. Fast food also has all those preservatives that aren’t good for you. 

So at one point, I started to exercise again and learned how to cook for myself after I moved out and lost 60 pounds in two years. I used an app on my iPhone to help me lose weight and get healthy. My blood pressure has dropped a lot since I did all this. I also started drinking more water, which helped a lot, too.

I feel much better about myself. I have more energy, and I feel like a new man. If fast food or picky eating in general is a problem for anyone with autism, they’re not alone. It was a tough road for me to overcome this, but it’s not impossible. Everyone has the right to be healthy and so do people with autism.

My advice to you is to start drinking more water with meals. Eat no more than 2,000 calories a day. You can still eat fast food, but just don’t eat it every day and don’t eat it for every meal. Start learning to eat leftovers or look up healthy meals to make for yourself that are simple to make.

If there are certain things you like, go out to buy those things at the store even if you have to go with someone. Exercise more, too. I did it and so can you.

Lead photo source: Thinkstock Images

On Friday, September 9, I woke up without peripheral vision. As I struggled to get our kids ready for school, I silently thought to myself “I can’t see.”

I knew what that meant. It wasn’t a first-time experience. It was an impending migraine. I took my medication and went back to bed, but despite the fact that the medication rids me of my migraines pretty rapidly, I still only managed to leave my bed twice that day.

You see, on Thursday I drove to Birmingham, Alabama, to attend a one-day conference. It was exciting. It was inspiring. I learned a lot. I got a chance to spend time with an extraordinary young man I am mentoring. It was all worth it, but in the back of my mind I knew I would pay the price.

This is the ASD (autism spectrum disorder) I live with.

Social anxiety and sensory processing issues are a huge part of my experience. The way autism affects those who live with it is as vast as the personalities of the people themselves. My life with autism isn’t going to look like the life of the other person you know with autism.

In fact if you’re secretly looking for anything that would indicate I am on the spectrum, I would say that you most likely won’t see anything at all.

Sometimes understanding how autism affects me can only be found in what you don’t see.

Let me explain.

What you don’t see is me leaving my home much beyond work, church, and trips to the gym. You won’t see tons of pictures of me out with family and friends on social media.

lamar hardwick

You won’t see me at the football game, or the concert that everyone is going to. You often won’t see me hanging out at the mall or at an amusement park. You won’t always see me at the Memorial Day, Labor Day, or Independence Day cook outs and fireworks shows.

I love all of those events and environments, but the reality I live with is that I am often forced to choose very carefully how I spend my time and my sensory resources.

Perhaps that’s why when you see me I appear to be fine. What you think you see is someone not affected by autism when in reality what you see is someone who has given up dozens of opportunities to leave home so I can be seen in the few places you always see me.

What you don’t see is how much I prepare and how much I pray.

Preparation and prayer for most people is something they do when they take an exam.

Preparation and prayer for me is what I have to do just to exit my home.

Every day I spend hours preparing to encounter a world that my brain isn’t built for, and I pray for the grace, courage, and strength to manage it successfully. 

When you see that I’m doing fine just know that fine is a short distance between not being able to get out of bed on a Friday and being able to speak in front of hundreds of people on Sunday morning.

Fine is a short distance between failure and faith and fatigue and focus. Like a smartphone app stuck in refresh mode, my brain is constantly searching for data, taking in the sights, sounds, and smells using up all of my precious data, and the end result is always a drained battery that leaves me with just enough physical energy to climb out of bed to use the restroom.

That’s what you don’t see, but let me tell you what you do see.

What you see is a warrior. Despite my difficulties with sensory processing and social anxiety what you don’t see is someone who is weak. I am strong. I am a fighter. I am a gladiator.

Like the athletes who grace the gridiron on Saturdays and Sundays playing the great sport of football, my life is the perfect blend between beauty and brutality and between grace and grit.

What you see is a gift given to me by God. A gift to persevere. A gift to overcome. A gift to inspire. What you see is a talent for transforming life’s toughest moments into life’s most teachable moments.

My life on the spectrum showcases the strength of the human spirit. My challenges haven’t defined me but rather I have publicly defied the odds that have been stacked against me.

What you see is God using the stage of my struggles as a platform to showcase a divine strength. A strength that is so other worldly that it actually makes my life look easy.

What you see is the grace to learn how to be less of a taker and more of a giver.

Life on the spectrum may have taken parts of me but rather than responding by becoming a victim and a taker it has motivated me not to take things for granted but to take chances, take risks, take opportunities, take charge, and to take a stand, and by taking these things I have in return been given the grace to give the world the best of me.

To all of my awesome autism warriors, keep fighting the good fight. We see you!

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